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Boa
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04-10-2014
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07-03-2015
04:45
I had a second WLE to clear the margins. I was taken into theatre at 9 out at 10.15 and was raring to go home but the policy is four hours after coming round before you are discharged where I am. I was pretty well normal from then on though I didn't lift heavy objects for a whole and didn't drive for three days. I'm an older woman and I certainly don't run but when the dressing was removed about 10 days later it was healing well. I think you will be fine.
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01-03-2015
05:53
Everyone responds differently to Letrozole. I had hot flushes for about 6 weeks but they have gone. The way it saeems to affect me is short term memory but I know it is happening and make notes. So my story is positive. I hope yours is the same.
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19-02-2015
01:46
Hi Daisykins, good to see the treatment plan sorted out. Really rubbish to be diagnosed twice in such a short time. I'm sure all will go well and your family and friends will help.
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18-02-2015
06:57
June Just to support Magical Moon's post. Your friend isnt coping but you are. Please make your own decisions in due course on what is best for you. Boa
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17-02-2015
07:00
Sorry to hear your news. How did you get on at your appointment today?
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17-02-2015
06:55
Catchpole, very wise words from lexilou, I think. You might like to look at a book called Living with Dying by Margaret McCartney. She is a GP in Glasgow. She writes about situations where relatives and friends put others under pressure to take treatments by telling them they are selfish. I found it a very interesting read on the many topics she addresses. We all feel we have to 'fight cancer'. She suggests a lot of this narrative is around charities fighting for donations so the more emotive the more money. I have kept relatively well throughout my life and like doing things. The last time I had a day I'll in bed was about 30 years ago. Whilst I know I could cope with chemo I didn't want the effect it would have in the short term treatment or the longer effects. Many people want us to try everything but I think we are entitled to make our own decisions. I'll be interested to hear what the oncologist says. Boa
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15-02-2015
09:47
Daisy Sorry to hear your Mum is struggling and I send good wishes to her. Your description of the percentage calculation is correct. It's not about the individual but about the various factors concerning the cancer. And you are right you don't know which side of things you are on as an individual. It's a difficult situation but I knew how I felt about it. Boa
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14-02-2015
06:18
In the end, of course, only you can decide what to do. However, I'll just give my experience. I was borderline for chemotherapy. For my peer group the improvement in percentage terms was 3%. It was a short conversation as I declined. Even if the prognosis was better I would probably not have agreed. I'm a couple of years younger than you but I was more interested in the here and now and not a future which might or might not happen. But everyone is different. I just wanted you to know but some women say, thanks but no thanks. My follow up at the clinic is a year too. I think that's normal. I hope you're able to decide what is best in your situation.
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09-02-2015
03:23
Yes, the extra surgery delayed the radiotherapy but I've finished all treatment now. I was lucky. Radiotherapy went fine for me with no burning and no tiredness. Hope all goes well for you.
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08-02-2015
07:10
Dani, don't google stuff! Most of the sites are not reliable. I'm rather older than you and was diagnosed last year. However, when I was younger I had problems and was sent to clinics. GPS aren't experts and will usually refer on. Breast cancer manifests itself in many ways so sometimes there are no lumps to feel. But on the other hand there can be lumps that are not cancer. You are in the best possible hands so try to relax.
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08-02-2015
01:28
On the pathology of the tumour I understand. It is in relation to the difference to normal breast cells and how fast growing they are. My diagnosis was the same as yours but I had further surgery as the margins were not clear.
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08-02-2015
12:42
I can understand your concern but please try not to panic. Having decided to refer you to the clinic I think the GP probably wouldn't give an opinion or tell you not to worry. For the vast majority of women referred on to clinics there is nothing sinister found but most of us do worry. You were fortunate to get a doctor's appointment quickly and referred on. The waiting is always difficult but with a three year old there will be plenty to do! Try not to panic. Hope all goes well.
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07-02-2015
03:09
Catchpole, I didn't see anything in the papers about chemotherapy. However, when you have your next hospital appointment I am sure it will be discussed. Once the oncologist has results they will recommend the best option. Occasionally women are borderline for chemotherapy in that their profile is not much improved by chemotherapy. In my case it was 3% so I declined but someone in the same position might have another view. In any situation you can refuse chemo. Some people take the view that we should take everything offered. I don't. I hope all goes well for you.
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07-02-2015
12:02
I'm still getting shooting pains four months after second WLE to clear margins! Annoying! Consultant says they might go on another year. Probably the nerve endings healing.
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07-02-2015
11:57
Hello Loubylou I am sorry you are so worried but my advice is to keep off websites other than this one and Macmillan as they are generally scary and difficult to interpret. The best advice is from your consultant. People do report side effects with tamoxifen and arimidex. And you will see more people writing on sites like these with enquiries and issues than you will find writing about how much they like the medications. That's the nature of things! You may well have no side effects. I am taking letrozole which is an AI like Arimidex. I have a few side effects but they are manageable. It can't be great taking medication that gives you lots of side effects but if the medication is prescribed I suggest you take it and see how you get on.
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02-02-2015
05:04
I am taking letrozole which is also an AI. I haven't experienced low mood but do know of others who have so you may get some posts confirming what you feel.
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31-01-2015
02:12
I was HER2+ and it's correct that NICE has licensed Herceptin to be used with chemotherapy. I'm not sure but I think it's something to do with cost. When it came to talking statistics for my profile the chemo and herceptin looked like an improvement of only 3 % which is borderline so I declined. I'm 64.
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31-01-2015
01:48
I haven't had anything similar although I have heard of people who have. Waiting for appointments is difficult so just try to take it one day at a time. Let us know how you get on at the breast clinic.
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29-01-2015
04:57
Christine I think the reaction depends on the person. I had not had hot flushes for years but when I started letrozole they were very similar to what I had before. They disappeared after about two months. Boa
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