Breast Cancer Care Forum

Hi everyone....My plaitaxol weekly chemo is not too bad Mariose side effects...lose hair..numb toes...tired but not sick a few mouth ulcers but no where near as bad as the e/e combo which I know you suffered with. It does tie you to the hospital having it weekly but side effects much less and its working !!!  I have bone mets in my neck but denosemub helps, Im off this at the moment as still got tooth problems and noticeing aches more. I had radio on my shoulder blade after my diagnosis and it was a magic cure, still great to this day 2 1/2 years later. Spring is in the air here today helps to pick up your spirits when the sun is shining..keep well everyone x ... View more

Hi karen i too have just had a scan and didn't sleep after worrying about results and only had to wait two days!  After tha scan you can ring your breadt nurse and ask for an earlier appointment as they understand what it is like waiting. Good luck and by the way I had good results on mine just had first 8 weeks of plaxitaxol and seems to be working, first good news I have had for a year..good news is out there so fingers crossed x ... View more

Hi everyone I haven't posted here for a while but I have reading your posts. I have been having weekly taxol for the past nine weeks and a scan to check progress last friday. Went to onc today and was pleased to get good news that everything is shrinking....hurrah!  This is the first good news I have had for a year as was on e/e before and had progression from that.  Hope everyone is doing ok and you all get some positive news soon xxx ... View more

Hi everyone, happy new year to you all hope 2016 ix good to us all. Just had good news that my daughter is pregnant with her 2nd child due Sept...hope all goes well and will be around to meet my new grandchild....certainly gives you somethong to live for ! ... View more

Hi I have just started weekly taxol 3 infusions now. Hair just starting to fall out.  Been tired but not too bad.  My primary breast lump is still with me as diagnosed secondaries from the start 2 yrs ago..it seems smaller already hope that's not just wishful thinking! Good luck with your new treatment x ... View more

Hi stress head, thanks for your info, having pain in my enlarged lymp node and from liver mets so taxol not stopped that although not a week yet. I had four cycles of cape and those pains stopped but skin mets appeared so onc said cape not working although I thought it was, maybe with luck it might be the other way around, i think it's not working and it is....trying to be positive but so down at the mo, maybe the steriods?? My 2 yr old granddson came around today, he said hope doctor makes you better nanny, bless so do I. He did make me smile today with his antics. Just can't see a future at the moment I suppose we all feel a bit like that sometimes. Hubby says positive thinking and live for today , he is a treasure  x         ... View more

Hi all, well I had an appointment with my onc and showed her some lumps that have developed on my breast. I still have my primary cancer which has grown enormously because I had to stop treatment whilst sorting out my wisdom tooth problem for about 5 mths , anyway these lumps are peas sized and look like spots but she said skin mets. A bit devastated because for about a year now have not had any good news, now have oung, liver, bone and skin mets and feel that this is the end. I have started weekly taxol and had a pic line inserted. I have only had one dose and yhe pic line wouldnt work cos it had a clot which had to be desolved . It took all,day but still didn't work so had to back the next day (Friday ) to get chemo. The pic line worked after free it up with some prescription . Yesterday went back to see onc and have blood test. Same thing , pic did not work so 8 hours later they took it out. Had to sit  there waiting feeling anxious but they said they would fit a port in the new year. Sorry for going on because what i really wanted to ask is that onc asked if  i had noticed any change and i hadn't but it had only been 4 days since treatment. She said I should notice something by next week. Now feeling it's not working and she said skin mets worse, all this in a week. Can anyone let me know how long it took to show changes on taxol, feeling so down in the dumps! ... View more

Sorry meant tio say law 36....always was useless with numbers! ... View more

Hi everyone thanks for your info it is much appreciated. I had my pic line fitted today,  much more of an op tban I realised, then I got my wig which I must say was sooo much better than I thought it woukd be. It was nhs sorted out by macmillon. I skyped my sister and after a while I asked what she thought of the wig...she was so surprised she said wow I didn't notice any difference , silly to worry about your hair as it is the least of our worries but I did feel a bit better. So start dreaded chemo thurs.....watch this space. Hi law34 I has issues with my wisdom tooth whilst on denosemub and had to stop whld I had my tooth out. I then got a numb lip and chin which I was told could be a cancer spread so had to have lots of scans before the tooth extraction. Thet said it wasn't cancer but one onc said it still could  be a it is sometimes subtle?  whilst I had this I heard from a lady in Australia on this forum who said she had a tumour in her mouth which gave her a numb lip and chin like me and chemo had sorted it out and after nine months she was a lot better. It's not that common but there is treatment so don't despair,   Its all a roller coaster but give your mum a hug from us hope she gets treatment soon it always feels better when your treatment starts xxx ... View more

Hi everyone....stresshead I was on cape for 4 cycles but onc said it was not working so having a pic line fitted tomorrow  and starting weekly taxol on thursday...have to have it Christmas eve and new years eve great !My first intravenous chemo so quite scared specially as I have a house full over christmas, but they are family  So have all vowed to help. Tomorrow  I have to get up at 6.30 am to get ready and get to hosp at 8am for pic line then onc appointment 10am then wig fitting at 11.30 all go. Then back thurs for chemo , anyone else on weekly taxol, how are you coping shoukd I expect to even more tired than on cape? Hey ho no point in worrying got Christmas to worry about. Best wishes to everyone..anyone out there got good news? Its always great to hear xx oh wanted to ask how long before your hair falls out got an appointment with a hairdresser next week case my nhs wig is not great but she said she would match my style and colour but if my hair is already gone after a week she won't be able to do that !   ... View more

Hi everyone sorry to hear about your scan mariose, I feel a bit the same at the moment the e/e combo didn't  work for me but took 9mths to decide, then went on cape for 4 cycles and told not working well enough so starting intravenous chemo taxol weekly. I wondered if anyone could tell me if this is usuall but stopped taking cape two weeks ago..one week was my week off and no new tablets this week ad waiting for pic line to be fitted for new chemo, but feel awful this week, so tired and aching not able to do much and still have sore feet though a bit better and now ulcers and sore mouth. I am wondering if this could be side effects of cape even though I havent taken it for 2 weeks ,  or that my cancer has got so much worse. My onc said worried about my liver nets (first time I knew I had liver mets !!) Could this be causing the fatigue ? Sorry to rant on but it's  scary to think cancer has advanced so quick. Best wishes to everyone hope we all get good news for christmas xx ... View more

Hi Jannette  I was given gabazentin for the nerve pain I have with my wisdom tooth extraction, I took one at night and it did help me sleep, maybe just try a lower dose.  you can get pain from hormone treatment and my breast nurse told me it takes AT LEAST 6 weeks to kick in so hang on in there. Do you have bone strengthening inj ? They actually stopped my pain had to stop my inj whilst I had dental treatment and I really missed them.  Hope all goes well xx ... View more

Oh Glo just what  I needed a bit of encouragement! I am feeling the fight has been knocked out of me but may feel better once new treatment hax started. Tried on my husbands beanie hat it looked awful but made us both laugh through the tears, it was black so maybe better in a different coulor!  Thank you so much for your post xxxx ... View more

Hi everyone....well went to see onc today to get scan results....not good she said the cape was not working and she was worried about my liver mets which had grown much larger. This was the first time I had been told I has liver mets as well as bone and lung so feel very down . Up to now I had letrozole for a year and since then e/e for 9 months which slowed things down a bit and 3 cycles and 1 week on cape. She recommended intravenous chemo paclitaxel weekly.  I said what are the chances of this treatment working and she shook her head slightly and hopefully it may work and that my cancer was hormone based so she had some other options if this treatment fails.  I wonder if anyone here has had this, I feel so downhearted that my first chemo cape failed does that mean I have less chance of any chemo working?  My onc talked a bit about end of life care which made me feel even worse!  I am going to loose my hair is it worth going for a cold cap?  My onc said she would get my breast nurse to call but not sure what to say just hoping something will work. Sorry for the rant so scared and family all look devestated x ... View more

Hi Jannette  when I first had letrozole my breast nurse told me it takes at least 6 weeks to kick in. I had it for a year and it worked great....since then have had a year of uncertainty on cape now results of scan next tuesday hope its working as we know scan anxiety!  ... View more

Hi everyone not sure I shoild be asking b this question here or on the treatment page but here goes. I have been on cape for three cycles and just started the fourth. I have developed a lot of breathlessness  especially after walking up stairs.  before I started cape my onc said my mets had developed in my lungs about six months ago and the e/e treatment I had before cape wasn't working . What  I am asking is has anyone had breathlessness with cape or is my lung secondaries making me breathlessness!  bit scared and not seeinf  my onc for three weeks.  ... View more

Hi Lezhop sory you are feeling so down at the moment. I have been on denosemub for two years now. Recently I had a wisdom tooth problem and had to stop the inj for 5 months to have tooth extraction and long drawn out treatment. I was so glad to get the inj back as was experiencing lots of bone aches and 'fizzy' tumour feelings. My side effects are back aches just after the inj and some siatica down my leg. I am sure the benefits outway the negatives . The trouble is without clear information and correct interpretation from your scans your mind goes into overdrive! Best wishes to you hope you feel some improvemeng soon. I have a very good breast care nurse why not contact your and ask her advice, its worth a try xx ... View more

Hi everyone hope you are all doing ok. Lovely weather at the moment ,went to the beach today as it is near where I live bit tiring though walking back up the cliff! I am on my third week of cape so no tablets still wondering how long for side effects to kick in feel a bit tired but still suffering from my tooth extraction so could be that. I expect the se to get worse but woild be great if they stayed the same ...and it worked! Watched andy murray play tennis for the davies cup and didn't think about cancer for a few hours result! havexa good week everyone xxx ... View more

Hi stresshead sorry i dont know much about skin mets but you sound so worried and I know what thats like!  can you ring your breast nurse or macmillion and tell how worried you are and they may be able to set your mind at rest a bit about treatments or your brest nurse can ask your onc to explain. The very positive thing is no organs effected thats great! Its the not knowing that does you in, best wishes xxxx ... View more