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flossie101
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16-11-2014
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28-11-2014
08:11
thanks riversidedawn xx I'm not having surgery until after the chemo, they're hoping to shrink the tumour first. how are you doing x
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26-11-2014
07:46
thankyou for all your replies xx I saw the oncologist on Monday, and today they dept phoned to say they had a cancellation, could I come at 10 tomorrow! So suddenly no more waiting, battlestations at the ready! Boss was a little put out but I did warn him I might get a phone call for this week. Dont think either of us really thought it would be that quick lol Good luck to you all with your treatments xxx
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22-11-2014
12:33
thanks for your replies ladies - I know in the grand scheme of things my wait won't be very long at all. I'm having chemo first and then surgery. I was really just interested in how long I can expect to wait xxx
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21-11-2014
09:59
hi ladies - just a quick question please How long did you have to wait to start your chemo? I was only diagnosed 8 days ago and see the oncologist on Monday. I'm desperate to get on with things! Unfortunately our local news reported this week that our big shiny new hospital is failing its targets with a wait of up to 60 days to start treatment. Just wondering what your experiences were?
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20-11-2014
07:26
What a fantastic list! Thank you to all the contributors 🙂 Something practical to share with family and friends who want to help - I'm going to ask them to help source items and put bag/packs/caddy together in readiness for when the time comes. Thank you again xx
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20-11-2014
07:19
hi waiting I was diagnosed a week ago and saw my consultant today, fully expecting to be given a start date - actually looking forward to having a start date so I can feel like I'm getting on with doing something! Instead I was given another appointment to see the oncologist next week, and told I will have to have an MRI before the chemo starts. So more waiting! Everyone in my life has been so supportive - but I am beginning to feel like they will get bored of seeing me waltzing around as normal! This experience is such a roller coaster 😞 I know what you mean about crumbling inside. I'm trying to put on a face for my son and my friends and work collegues but really I'm struggling with the feeling that I'm doing nothing! I'm sure once things get going I'll want it all to slow dawn again lol Good luck with your treatment. I hope you feel more settled once you get going xx
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18-11-2014
09:59
thanks remel I can totally understand the need for normality and routine - I find 6 weeks off in the summer too long a break if I'm honest! I can't wait to get back into the bustle of things lol I had a long chat with my head today about what I may or may not be able to do. He has told me that he is more than happy for me not to teach, and for me to work with a lead teacher from another school to develop my role as maths coordinator - only coming into school for things like book scrutinies if I feel up to it. Otherwise, the other teacher will carry out tasks like that on my behalf. we are expecting the dreaded inspectors and as I'm new to the role there is an awful lot of behind the scenes things to do! That should keep me busy without being in contact with snuffly children (and adults!) over the winter months. I'm really in two minds about actually being in class myself, so I'm happy to follow the docs advice for now, and see how I feel once the treatment starts. I have to say, I admire you being able to stand infront of a class all day with all this going on in your life!
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17-11-2014
07:22
hi yes. After my biopsy I had to wait 9 days for the tests to be done and the multdisciplinary team to meet to discuss the results. It was only after this that I was told I had cancer, along with the stage and grade. prior to this I was simply told that the lump was suspicious and the doctor wanted the pathology results to confirm the diagnosis. I was also told that the tumour is oestragen positive, but I have to wait another week to find out whether there are receptors to Herceptin before the doctor will confirm which drugs I will be treated with. All I know so far is I will be having chemo, surgery, tamifloxin and radiotherapy. I am amazed with how much they can find out from my little biopsy! I hope your wait isn't too long, or too stressful xx
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17-11-2014
06:32
thank you ladies for sharing your stories xx It does help to know that there are many people going through this, and yes, it never rains but it pours!!! I know there will be difficult times ahead. I'm waiting to find out exactly which drugs I'm have receptors for so still feel that theres a hell of a way to go. But to be honest, although I am truely scared about the treatment, I'm also ready for it. I just keep thinking I need to get on with it so I can get back to being me 🙂
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17-11-2014
06:09
Thanks skinnyminx. As you say, lots to think about in the days ahead x
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16-11-2014
09:16
Hello everybody I found my lump 4 weeks ago, saw my GP two days later, waited two weeks to see a consultant. Had a mamogram, two ultrasounds with two different consultants and a biospy. Then after another 9 days waiting was told that I have stage 1 grade 3 breast cancer. I know this is a difficult time and a whirlwind of emotions is normal. But frankly I feel relieved. I'm relieved that I know what I have and relieved that the doctors know how to treat it. Relieved that my GP didnt tell me I was being silly and it was nothing. Relieved that I'm not waiting around, hiding my fears from the world. Relieved that I can tell my friends and family that actually, there is something wrong but it is treatable. I'm wondering though if I should be feeling more empotional. Dont get me wrong, I've had a few tears, but mostly I seem to be walking around saying to everybody else - it's ok. It's only cancer. It's not a death sentence. It's just a word. It's ok to say it outloud. I'm wondering if I'm still in shock because frankly, everybody else in my life seems to be more upset about this than me.I actualy feel less afraid now I know exactly what the lump is. Am I normal or does everybody go through this stage?
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16-11-2014
09:03
Sorry to jump on your thread and add to your confusion - I was given my diagnosis last week, and told I will need chemo, surgery, tamifloxen, herceptin if I have receptors and radiotherapy! Almost the first thing I asked was "will I be able to work?" The doctor asked what I do and when I told him I teach 8 year olds he said no. The risk of infection with chemo and all the drugs would be too high. The speacalist nurse agreed with him. It seems different people are being told different things! I wonder if it is related to the stage/grade of the cancer or to the therapies you are likely to be having? I have told my head that I intend to work until I start chemo, then stop teaching. However I am happy to continue doing paperwork for my role as numeracy coordinator for as long as I feel up to it, working from home. He has been very supportive about my decision, as have my colleagues. I am a single parent so fingers crossed I can return to work before my hundred working days sick leave given to teachers! Good luck with your treatment. I'm sure you will make whatever is the right decision for you x
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