Hi Buddyfan I think that if you get severe side effects your dose will be reduced but it's worth asking your consultant in any case. I started off on a low dose and was coping but it was then increased but not to the full dose. I have been on capecitabine since 10th January but now have awful side effects and am feeling so miserable. My mouth is really sore and I find it so hard to eat and talk. I can hardly eat as every thing, apart from yoghurt, is such an effort. My feet are really painful and I shuffle to walk. I went to pick up my tablets on Wednesday and was told I would have another week off because of the side effects and I hope then it will be reduced.
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@Pawsome wrote: Hi, I remember the same thing after starting palbociclib. I kept waiting for the side effects to start after hearing they could be quite bad. Tbh mine never did. I’ve had a few days where I’ve felt bad due to headache/nausea at the start of each cycle but things have settled down now I’m on cycle 4. My team said the goal was to make me feel like I’m not actually on treatment and they have lots of ladies on their books who feel like that. I originally thought they must be talking nonsense but actually after a few months and things settling down they were right. Most days I don’t feel like I’m on treatment and I’m able to have moments in the day now where I don’t think about the cancer. My hospital have around 20 ladies on palbociclib and they’re all dealt with by the same person so they’ve got quite a bit of knowledge about the drug and side effects - more so than my BCN - so I speak to them if I have any problems. But as it’s new to the NHS they are constantly learning about how it affects different people. I’ve got lung mets and bone mets (spine, rib, sternum and pelvis). I’ve also spoken to lots of ladies on this combo and whilst it doesn’t suit everyone a lot of ladies are doing very well on it xx Thanks so much for replying. I have just taken 125 Ibrance (day 5) and still waiting for side effects just as you say. I am a bit obsessed with my hair though, and, even counting how many hairs I lose when I comb in the morning and at night and taking note of it. I used cold cap 4.5 years ago during chemo and retained as much as 50 - 60 % of hair, worked hard on it and would not like to lose my thick hair now. The hair issue I sent just an addition to the anxiety of having been diagnosed with secondary bc.
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