Sorry for taking so long to respond, thank you all for your replies. Shelly, I hope that you are getting on well with taxol. I found it to be a kind drug and tolerated it very well for 12 (I think) weeks with primary 5 years ago, and had 2 cycles of 3 doses back in March/April. Unfortunately it didn't work for me, fingers crossed for you, I've read on here ladies who have been on it for 5 years plus! Clinical trials - I've been turned down because of the amount of treatment I've already had over 5 years. It's a difficult one, but if a drug works for me how do they know that it's that drug on it's own or in the combination I've had? They need to test on people with a similar history unfortunately. I saw my oncologist on Thursday, the latest chemo is not working for me so we really are scrapping the barrel now. He reckons my liver has 6-8 weeks if it remains unchecked. I've had blood tests and see him next week and possibly go on to vinorelbine which has a lower % chance of working but with more intense side effects.... but we'll give it a go. Linda, I've seen the same oncologist for 5 years and whenever I've seen someone in his place I've been disappointed. I saw a different (junior) onc a few weeks ago before the start of my last cycle, and was shocked and disappointed by her consultation, lack of empathy, failure to listen, and much more. Because of that I pushed to see my onc asap - he stopped chemo, brought my scan forward and hence I saw him this week, he also agreed with me that the letter (consultation and clinic notes) from the other onc was not fit for purpose. She's basically wasted several weeks and subjected me to unnecessary chemo. I've had 2/3 separate cycles of 3 drugs so far this year: paclitaxel 3 x weekly doses then a week off, eribulin 2 x weekly does then a week off, Carboplatin once every 3 weeks. I don't know what the frequency will be for vinorelbine. For now I need to get nausea under control (liver and bowel mets). Linda, I managed 3 years "clear" after my primary diagnosis in September 2014. Bone mets confirmed dec 2017, but who knows how long they were bubbling away for before being spotted? Then spread to abdominal cavity jan/feb this year.... rapid deterioration from there. How about you? Time to get some sleep xx
... View more