Breast Cancer Now Forum

Hi Ange, Tamoxifen is for oestrogen positive too so may be worth asking the question? I am seeing GP this afternoon to ask about checking vit D levels as I have been told that will help as a supplement.I take cod liver oil and glucosamine with chondroitin and have tried tumeric but didn't notice  difference so stopped that. Amanda was up for a meet and I have mentioned it to Daisy, yes feel free to ring whenever that is fine xx ... View more

Thanks Ange, knees do get quite sore and I am limited to how far I can walk but suppose just getting used to it now. Surgeon did suggest seeing ONC and asking to change medication, I would of thought someone would of suggested the same to you with hair loss.I was told originally I could have tamoxifen if letrozole didn't suit. I am happy to set a date for meet whenever....any suggestions? xx ... View more

Hi ladies, not been on for few weeks so hope all are ok? Had a nice week in Corfu but 3 days bad weather cold and rain/storms!! Ange sorry to hear about your hair how unlucky, I had read letrozole can cause hair loss but mine is okay and veryt thick wish I could give you some. I am up for a meet and will fit in with whatever I  can be free Thursday, Friday, Saturday and Sunday but can take a day off if it's the beginning of the week. Amanda don't let work stress you it is not worth risking your health for, could you not look for something else part time? We have been through enough already, how did you get on with ONC and rib pain? I sometimes do get it, feels like they are bruised just under boob where I had rads but it comes and goes. My worse problem is bone pain in legs and joint stiffness I have arthritis in both knees anway but saw surgeon yesterday ans he said pain and stiffness is probably worse due to letrozole. Anyway take care and love to all. Sue xx ... View more

Hi girls, hope all doing well, Daisy how is your Mum hope she is recovering well. November thread has been very quiet so hope that means we are all getting on with life? I had a lovvely few days in Majorca last month with eldest daughter and her partner and off to Corfu next Sunday with  friend. If the big C has taught me anything its live for today! I do hope we can get together again in the summer it will be lovely to catch up. I am working 3 days until September and then it will be reviewed but hoping to retire (VR) next March and then get a little less stressful job but will miss my families. We ghave had a lovely day here with lots of sunshine and warmth so nice to sit out for a change. Ange hope work still going okay? Come on girls lets arrange a date and meet up for lunch.drinks again? Sue xx   ... View more

Hi Ladies hope you have all had a good weekend and better weather than he in the northwest, t shirts Friday and hailstones yesterday! Good to hear from you Daffodili but sorry to hear about your divorce something I may be doing too if I can be bothered. Dawn hope you are home and your boob is settling down, I see my surgeon in  few weeks and am thinking about getting evened off a bit bad boob is smaller and firmer so feel bit lopsided. Got a bit of pitted oedema to sort first so having some low level laser treatment. Amanda glad you are still enjoying getting away....I love it. Off to Majorca in 3 weeks then home for 3 weeks and going to Corfu for a week so looking forward to that. Ange that is good news about heart meds lets hope you will soon be sorted and don't have any further problems. Hope everyone else is keeping well and up for another meet in the summer. Take care all Sue xx ... View more

Hi Dawn let us know how you get on, we are thinking of getting together again in summer Ange is 60 this year, hope you can make it xx ... View more

Morning ladies, I am from November starters so couple of weeks behind you. It has been so reassuring reading your post this past few weeks ........my memory is dreadful just keep getting blanks when I try to think of things and I don't feel like my brain makes the right connections at times. Also sometimes when I speak the initial sounds of words get mixed up. I know what I want to say but by the time it comes out of my mouth eg Was asking a relative were they strong pain killers she was taking but it came out .....strain pong killers........I do make family and friends and myself laugh....BCN just says chemo brain and said do crosswords etc to get it going again. A friend whose Mum had chemo 8yrs ago said her memory was bad for about 18 months..........so nearly there. Take care all Sue xx ... View more

Hi Ange good to hear from you was just thinking the same the other day ....been very quiet so hope all ok. Be careful back at work and don't let them push you too hard, I am managing 3 full days and am shattered when I get in. Been using A/L 2 days a week so still getting full salary but from April have cut to 3 days..... health must come first....no good having big bank balance and being too ill/tired to enjoy it. YES I am definately up for another meet in the summer, we don't need an excuse but helping you celebrate your big 60 would be lovely. xx ... View more

OMG Ange as if you hadn't had enough, you were lucky you were not hurt. I am feeling much better thanks and today is a year since my last chemo! Two of my close friends are 60 this year and as I told them 60 is the new 50, we are as old as we feel.......90 in my case haha. Hope everyone else is doing okay and enjoying themselves ....spring is on the way xx ... View more

Hi Ange, yes monitoring would be a better option for you but they must know what needs to be done. How is work going, I have been off sick again today woke feeling very sick and few times in the night too so hope that isn't the start of things to come. Probably take tomorrow and on leave Friday anyway so hopefully fit again for Monday. xx ... View more

Hi Ange, why the surgery is it the Polyp or have I missed something? Hope work is managable and doesn't tire you too much God Luck xx ... View more

Hi all, hope you are enjoying your weekend ....very wet and miserable here!. Had a lovely few days in sunny Spain last week which I really enjoyed but back to reality now:-( Glad to hear your good news Ange it is such a relief to be told cancer free, hope polyp op goes smoothly when are you having it done? You are doing well with walking I am still struggling with my knackered knees so cannot walk very far but try to swim half a mile three times a week. Well done on losing weight too I could do with shedding at least 2 but that is also a struggle. Amanda and Juls well done to you two with excersise you are doing great. Caroline don't know how you manage to work so many hours that will be keeping you fit I am still keeping to 3 days using leave but have asked for 3 days from April on reduced hours for six months. Dawn how are you doing not heard from you for a while? Daisy's mum is still having problems she had a problem with an artery following axilla clearance but the good news is only 2 nodes contained cancer cells so think they are deciding about radiotherapy to axilla now....it has been a long haul for her.   Love to all Sue xx ... View more

Hi Girls hope you have all had a good weekend. I saw my GP last week and she said there is no blood test she is aware of that tests hormone levels to check Letrozole is working.......not happy with that response so will ask BCN next time I speak to her.......seems pretty routine to me. Still having pain in my legs....maybe due to arthritic knees but I do think worsened by letrozole or this bloody cold weather. I have put in a request fort V time to reduce my working hours on  temp basis for 6 months so hopefully wil lbe doing 3ays from April till october at least then will look at it again. Off to Spain next sunday for 5 nights and hopefully some sun........be happy Sue xx   ... View more

Hi thanks for the reply I have finished active treatment and the blood tests were just routine from GP, oncologist has never suggested a blood test to check hormone levels which surprises me I would of thought it was routine. Good luck with rads......much easier than chemo xx ... View more

Morning all, talking about liver probs I had some blood tests done about 6months ago and was told all ok......afterwards like( I always do) I thought .....ok for someone just finished chemo or okay full stop. On following vist to GP I asked her and she said one thing (can't remember what...surprise surprise haha) was low but consistent following chemo but liver was perfect!!! I am due a visit in next couple of weeks so will ask her again. Has anyone been offered blood tests to check letrozole/tamoxifen is working I read somewhere we should and I haven't....really suffering with bone/joint pain this weekend so want to know it is at least doing it's job!! XX ... View more

Hi girls hope everyone is well and recovered from festivities, I had a lovely xmas and really enjoyed centre parcs....well worth a visit. Back at work now and got 2 more weeks of phased return but will take annual leave then so still doing 3 days a week until the end of March the asking to reduce my hours. How are you getting on Ange, think you were due to go back after xmas? Caroline are you still coping with the long hours you had been doing? Hope Amanda, Juls and Dawn are ok? Lets hope 2016 is kind to us all.Love Sue xx ... View more

I will second that Amanda, Hope we all have a lovely christmas and a fantastic, happy, healthy 2016......Enjoy everyone Love Sue xx ... View more

Morning Ladies, I am good at the moment thanks Ange just trying to keep away from germs and bugs so I don't pick anything else up....really don't want to be ill for xmas. Has anyone tried the mindfulness course I have looked at it sweral times but can't decide if I fancy it or not. Wocher have a deal on for it at the moment £19 to do it online with phone and email support or £99 for 2 day intensive course at a hotel not far from me. Off to do bit of shopping and pick my prescription up ....don't want to run out over the holiday. Have a good day all xx  ... View more

Morning Ladies, hope you are well and looking forward to xmas. I am much better now and went back to work last Wednesday but still on phased return so only did Wednesday and Friday morning for 3.5hrs, doing the same hours Monday and Wednesday next week then off for 11 days over xmas and new year. Then doing 15 hours first week back then 22.5 for 2 weeks then off to Spain for a week  YAY!!!! I am determined to make the most of every opportunity to get away next year. Been worrying about Daisy, hope her Mum is okay I really feel for her having to do chemo again., My chest infection to me back to chemo days and it was awful to remember just how s---t I felt. Sun is shining here today after torrential rain through the night again! so going to try and get some washing dry. Love to all Sue xx   ... View more