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Nan66
Member
since
13-01-2015
17
Posts
3
Hugs
09-10-2019
01:54
Thanks for this info. I thought I could not have radiotherapy because I had already had it in that area after my mastectomy 5 years ago. I will talk to my onc.
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06-09-2019
04:21
do you mind me asking what chemo you are on? i feel much better on my present one. More energy. Scan 3october so hope it is working!
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11-08-2019
07:38
2 Hugs
I have just been diagnosed with skin met. I was on palbociclib and fulvestrant so that did not work for me. Just started capecitabine but only started a couple of days ago so too early to tell if it is working. I have lung mets and had a pleuridosis? Is that how it’s spelt..lung stuck with talc after fluid drained off. And bone mets. They were reducing with first treatment and I had good quality of life so skin mets a very unwelcome development. Will let you know how I get on.
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20-05-2016
08:38
I have been told there is no funding for this treatment. Do you live in Scotland? Has your reaction to it continued to be positive?
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02-03-2015
09:40
I'm so sorry to hear about your hair loss. I lost mine with FEC. I know a lot of ladies are quite comfortable without but I wore a wig when I went out and found it worked very well. Had no problems with it. The fringe hid the no eyebrows. I used 'hats' from suburban turban at home.
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24-02-2015
10:31
Just a thought Sam and any other ladies looking for insurance. I don't know of anyone who has tried to make a claim from this company. I haven't got the paperwork through yet so haven't read the small print.
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24-02-2015
09:50
Hope you don't mind me butting in. Hi Sam I have just got annual worldwide insurance with eurotunnel for £ 79. Other companies quoted £770 for 2 weeks.. They just asked if it had a terminal diagnosis and wanted a note on my file from the doc to say I was fit to travel.
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24-02-2015
09:27
1 Hug
I did not realise how useful eyelashes are.. Eyes kept watering and sunlight was difficult so bought an assortment of sunglasses.i suppose eyelashes shield the eyes from dirt and light! . Mine grew back.
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21-02-2015
06:30
I had several months gap after first chemo and hair was growing back nicely and then 9 weekly taxol and hair went thin and I had hardly any eyebrows or eyelashes left. They disappeared after I had finished! That took me by surprise..consequently I had sore eyes and used viscotears. However everyone seems to react differently. My nails were fine after using suntan cream.. Slight problem with finger tips and toes that took a few weeks to return to normal. but SE for me were minimal. I was very tired. I really hope you too can keep most of your hair. My oncologist warned me I could lose it all but I didn't. I did not have herceptin. Hope this helps.
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21-02-2015
06:27
I had several months gap after first chemo and hair was growing back nicely and then 9 weekly taxol and hair went thin and I have hardly any eyebrows or eyelashes left. They disappeared after I had finished! That took me by surprise..consequently I had sore eyes and used viscotears. However everyone seems to react differently. My nails were fine after using suntan cream.. Slight problem with finger tips and toes that took a few weeks to return to normal. but SE for me were minimal. I was very tired. I really hope you too can keep most of your hair. My oncologist warned me I could lose it all but I didn't. I did not have herceptin.
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07-02-2015
09:55
I had MX April 2014 lobular tumour 5 cm then had 6 X 3 weekly FEC and really sick etc etc just finished weekly paclitaxol. Which was very much easier. Thought I would have to report late side effect of dreadful burning itchy legs but OH had bought different washing powder.. Just what I need a massive re wash day. Hope it does the trick. 9 of 15 rad with bolus done with no itchy skin there!! Hastily cross fingers this continues. Hope ladies your treatment continues to be event free.
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01-02-2015
02:45
I'm sorry debt ex you are going through this problem. I hope you have managed to resolve it. I had a port so unfortunately can't advise on anything else. Re treatment decisions I have found these tough right through treatment and have seemed to land in the grey area with nothing definitely advised but 'up to me' so difficult. I do applaud everyone who gives money to or does reasearch that will make these decisions easier.
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30-01-2015
10:54
Is it your second dose today? Hope all goes well. Just an update..red soles of feet from paclitaxel are improving and slight tingling in fingers nearly gone. Nails still OK . Bit of skin rash after last dose used aveeno cream and almost gone. Still got bleeding nose in morning but think that's getting less too. Sleeping not good but think I need to reprogram after steroids.. Otherwise feeling tired but OK . From what I read of other posts weekly seems much better. Worth the hassle of turning up every week. Hope you have the same experience.
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24-01-2015
02:09
I had red rash from steroids. Re hands/ nails I was told to use suntan cream that did seem ridiculous in this weather but have no problems so maybe it worked.
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14-01-2015
12:08
No cold cap as thought it might aggravate neck injury. Lost hair with FEC . then after a gap of couple of months started weekly paclitaxol and hair that had started growing back seemed to stop growing but not shed very much at all. Have IV steroids 6.6 mg IV granisetron IV piriton and IV ranitidine and the saline of course before the paclitaxal. Also take omeprazole sorry forgot to put that down. Have an intermittent dry cough but think that is irritation from acid tum and blocked nose.. I have full blood tests each week just before treatment. I really don't feel too bad at all. Get out for a walk most days though weather does not encourage that at the moment.. Wind and wigs a bit dodgy though it does in fact feel secure enough but put my hood up..wig looks as if I have been to the hairdressers every day. It's a good job it is irritating after a while or I could become addicted. Hope your side effects are minimal too.
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13-01-2015
09:59
Everyone seems to have different responses but here are mine. Blood in nose and stuffed up. Have cream for this. Constipated take movicol. Slight hair loss. NO nausea..such a problem on FEC. White blood count consistently low but did not need injections..have kept away from everywhere..bug time of year.. Slight problems with sore feet. No nail problems. Hands sensitive to cold and very dry. Use aveeno cream. Tired. Insomnia. Slight acid tum. Pre meds steroids piriton and stuff for acid tum and sickness. Haven't taken or needed any take home meds. Apart from nose cream. SE much much less than on FEC. A couple more weekly treatments to go.
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