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Marie_
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since
18-02-2015
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26-10-2017
02:41
1 Hug
Hi, I had Grade 3, stage 2B cancer which I finished all treatment for two years ago (no Tamoxifen as it's not hormone responsive). I'm 43 and now back to full fitness. I've got a bone mets worry - which I'm going to speak to my GP about - but I wondered if anyone could help me with a question I have... About 5 months ago I woke up with lower back pain despite having no cause for it. The pain got progressively worse over the coming days (particularly bad at night). I went to a trusted sports masseuse who could see no muscular reason for it. I do Pilates to an advanced level and at the three week mark my instructor (who does lots of medical referrals) thought I should mention it to oncology. I raised a flag but a few days later the pain begain to subside and then went away. A couple of days ago the pain came back and it is exactly the same as before. This was while I was awake so I know I didn't twist it in any way. This time I'm going straight to my GP. My question is this...Could bone mets have caused the pain and then gone away before coming back? or would it be more likely that once pain was felt it would be continuous... I feel a bit paranoid (which really isn't my style)! Thank you.
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12-06-2017
11:43
Hi Guys I woke up with really bad lower back pain a couple of days ago. Because it was so sudden I wasn't worried about mets immediately but now it is crossing my mind. Did anyone else go from no pain to sudden pain or is the build up more gradual? I haven't done anything that could explain it. Luckily I have a bone scan for density tomorrow so I can ask them to look for anything more sinister. I'm sure I'm worrying about nothing but once the idea pops up it's hard to stop thinking about it....!
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15-01-2016
02:43
Hi, my PS has suggested we try lipofilling on its own to create an A cup breast for me. She says I may need 2-3 procedures to get to size. I've now had a chance to research it extensively and although there is very little out there about this as a standalone process (rather than as a filler or to augment other recon techniques) I have some concerns. Its not a common procedure so I've struggled to find evidence of good results. 2-3 procedures also seems a little optimistic given the reabsoption rates. Has anyone in this forum had this procedure as the only method of recon? if so I'm be very grateful to hear how you got on...thanks
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09-07-2015
03:56
Hi Miarose I was diagnosed with grade 3 breast cancer last October. I have two boys (then 6 and 8). My lump was just over 2cm plus two smaller satellite tumors. I'm HER2 positive and hormone non-repsonsive which also limits what they can give me e.g. Herceptin yes, Tamoxifen no. When I was diagnosed I was so worried about my boys - both telling them and also more importantly worrying I would die while they were still young. I had a mastectomy and sentinel lymph node disection which showed the cancer had spread. That was probably my lowest point. I then had a second op - an axillary lymph node clearance - and the result were clear - yay! 6 months on I've just finished chemo (FEC-T) and I'm about to start radiotherapy. So now I've explained my history I'll get the point I wanted to make! My boys were fine when I told them my diagnosis - there have been moments where they were concerned but generally they've completely taken it in their stride. I was naturally very worried about the future when I got my diagnosis and particularly when I found it had spread (I'm now stage 2b). But you know what? treatment has removed my cancer and odds-on it will for you too as you've found it early. I'm nowhere near as doom and gloomy as I was 6-8 months ago and that's the same for the group of women I've palled up with who have all been through chemo at the same time. Obviously there is a chance of recurrence, or more significant spread, but even if that happens there is so much they can do now. I know it is very hard to be at the stage you're at now but please know that there is light at the end of the tunnel x
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11-03-2015
01:03
Nicola Jane do some vest tops with built in bra which I was thinking of trying. They're very helpful there so perhaps worth a call for advice on swimming...
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10-03-2015
05:18
Hi Minimanda I too was very p'd off when I got breast cancer as I spent a lot of time and effort last year getting really fit! Great to hear Roadrunners account as I'm planning to try and run through treatment too. I ran between diagnosis and my mastectomy (Christmas) and a second op at the end of Jan (axillary clearance). I started running again 3 weeks ago (5k three times per week) and I now feel normal again. I start chemo next week (FEC-T, then Herceptin & radiotherapy) and I plan to try and run/walk throughout. When I was at the stage you are at now I did feel a bit low on occasion and I was particularly anxious waiting for biopsy results. I've got young children and an aggressive cancer - you can't help but have a few doom and gloom moments. As I've moved through treatment I've gradually felt more and more in control. Getting back into my normal exercise routine has really helped. There have been trails on the benefit of exercise and one I read up on said that out of the two test groups the group that did high cardio exercise 3 times a week were 60% less likely to have cancer recurr than the less active group!
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10-03-2015
04:40
Hi Pinklepurr Sorry to hear you have another health scare. I didn't have redness but I'm commenting because you mention a couple of times about whether the lump moves or not. My lump was also small and described as 'free moving'. My GP said it was almost certainly benign because it was free moving and likely to go away on its own. She referred me for scans though anyway (health care in Norfolk is excellent - I think they have bigger budgets here as we have a larger than normal population of older people!). On the day of my scans at the hospital I was first seen by a doctor and student. The doctor confirmed there was a lump and said that as it was free moving it would be benign but as I was here do the scans anyway and then I could tell them at the desk that I had been told it was OK for me to go and not wait for the results. I bounced back into the waiting room full of relief. It was during the ultrasound that the good news turned to bad - the doctor doing the ultrasound was very worried about the images and then after doing a biopsy she said that although we'd have to wait for the histology report to confirm she was sorry to say that she was 100% confident I had cancer. I don't want to scare you, or add to your concern, but please do push for further tests and don't automatically assume that free moving means it's OK. I'm sure that statistically it probably is but it wasn't in my case. Have you been referred for further tests? Hope you get a good result. x
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03-03-2015
01:53
Thanks Helena et al, great advice and I much appreciate everyone's contributions. Sodastream - your hair photos were really helpful thank you!
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02-03-2015
06:04
Thanks Marli, very interested to hear you felt the thickness contributed to the thinning - I guess that has pretty much answered my question about whether or not to go ahead. This is probably the hardest decison I've had to make and I swear I'm not normally so vain! My 9 year old son is very worried about me cutting my hair which is probably contributing to my agonising over it. My 6 year old son just wants me to go bald because he thinks it'll be funny 🙂 x
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02-03-2015
02:45
Thanks Somerset, I've never heard of Talika Lipocils but I have come across Revitalash which I was planning on buying for post chemo. Interesting to hear that Talika Lipocils was OK'd to use during and that it works as it is a lot cheaper!
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02-03-2015
01:15
Thanks Marli that's really helpful, I'll get some of that powder. Can I ask where on your head it thinned most? Did you cut your hair specifically to reduce thickness or just for length/to tidy it up?
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02-03-2015
11:56
Hi, I'm having 6 x FEC-T from the 17th March and I'm toying with the idea of cutting my hair into a short hair style (pixie cut or similar). It's currently below shoulder and thick so this would be quite a change and I'd really appreciate some views on this to help me decide whether to go for it or not. My reasoning is as follows: Pro: 1) Short hair will mean less thickness for the cold cap to penetrate...so better chance of success 2) Short hair shedding is less to clean up 3) Short hair may mean more even shedding over the scalp, so perhaps this will be less obvious 4) Short hair is easier to keep so less pulling on fragile hair... Con: 5) Advice seems to be that your hair whould be cut no longer than a bob but I've found nothing to say that you should necessarily cut it shorter than that. So is a short hair cut actually going to help the cold cap work better and help prevent/minimise hair loss or not? 6) Will longer hair actually conceal thinning better than a short hair style...? 7) Although I have long hair it is very low maintenance and I worry a short cut might prove to be more of a hassle. Currently I dry it naturally, often wear it tied back in a scrunchy etc Judging by my son's bed head he has to style his short hair every morning... So, to conclude I'm very pro cutting it short if that will increase the chances of me keeping it however I do worry that cutting it will make no appreciable difference and I needn't have bothered.... I'd really like to hear from anyone else who has experienced this (or is going through it) and what decision they made and whether they'd do the same again etc... Thank you, Marie
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25-02-2015
01:34
Hi Kurup Just in case I've been misinterpreted I love your posts and was grateful for the thorough account. I posted about people handling things differently in response to MrsBojangles worries. Not sure if I've I've offended somehow - always difficult to tell online - but certainly didn't mean to. x
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24-02-2015
05:32
poor you Sarah and hi MK I'm not going to paint on nails as I read a while ago about OnicoLife drops for nails which according to those who have used them stop most of the bad side affects. Similarly RaLife cream for skin (particularly during radiotherapy). Easily found on google and I'll report back when using them.
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24-02-2015
04:03
Hi MrsB I guess I see chemo as a positive step forwards after a pretty bleak few months so I'm actually looking forward to it. I have a rather agressive type of breast cancer and it had spread to my lymph nodes. At every step we were getting worse than expected news. With two rounds of surgery now behind me and chemo to come I really feel I'm beginning to get the upper hand. But that's just me, everyone is different. I have a friend who doesn't have BC but her mother died of it in Eastern Europe. Medical records have been lost so my friend has been offered a mastectomy and hysterectomy as a precaution. She is a single mother in her forties and is absolutely terrified. She jokes that I'm the best friend in the world as I'm doing the trial run for her and that she can't possibly complain about it as I'm not! I know if she actually had BC she'd be in pieces though no matter how much support we gave her. Have you thought about what aspect of chemo worries you most? perhaps it might help to share it with us... sending hugs x
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24-02-2015
02:11
Hi Guys I've had no clashes with birthdays, tropical diseases or 100 mile hikes to the hospital - I need to buck my ideas up! Actually though, I too have been occasionally banging a drum about the need to check for lumps as I never have before (no family history) so it was complete chance I found mine. It turns out a friend listened to me and checked and she too found a lump (albeit benign). and back to more amusing stuff - are you aware there is a charity called Knitted Knockers? very amused when I found out about that and I am now the proud owner of one. x
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24-02-2015
12:28
Hi Kurup Thanks for the thorough recap and glad you're feeling positive. I imagine we'll all feel a bit more in control once we know what we're in for! I'll plan on my appointment being a bit more lengthy that I was expecting based on your experience - although, mind you, I don't have a complicated medical history for them to unearth! x
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23-02-2015
02:16
Hi Kurup Good luck today and do lets us know how you got on...I'm endlessly speculating about what my first meeting with the oncologist will cover/say so it would be very interesting to hear. Like you I'm in the 'blast it with everything' camp. I've just turned 41 and I have two young boys (9 and 6) so I don't want to take any risks. Jets - I'm booked onto the 'look good feel better' workshop in April and very much looking forward to it. What sort of freebies did you get? Marie x
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18-02-2015
10:04
Hi Everyone I'm seeing my oncologist for the first time a week today and have been told Chemo will start 10 days or so later so I'd love to be part of this March group. Thanks for starting it Sarah. I don't know what I'll be having (other than chemo, herceptin and radiotherapy), I've already had a right side mastectomy and then a axillary clearance as my sentinel nodes had cancer cells in them. Thankfully the axillary clearance was negative. I'm HER2+ non-hormone responsive and stage-wise 2B - that's all I know so far. How about you guys? Is anyone else obsessively researching make up to fake eyebrows and lashes or is that just me?...It's strange really as I hardly ever wear make-up - maybe be it's my lack of skill that I'm worried about! I'm also gasping for a strong GnT but trying to get my liver in shape before it takes a beating. xxxx
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