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Marie123
Member
since
06-03-2015
370
Posts
20
Hugs
15-07-2018
04:10
1 Hug
Hello all, I haven't been posted for a long time , but I do read often. As to the sugar question I have asked my onc about this (He is actually one of the lead people in research ) he told me to have a dessert if I wanted and have a glass of wine if I felt like it. He has however encouraged me to do The Clever Guts diet. Basically a Mediterranean diet : fish ,fruiit vegetables olive oil you can have chocolate and wine. Following recent research I do eat a lot of peaches . Rosie please don't leave , you have been a fantastic member of this forum. No one should get told off for their opinion. Well done to the ladies who have given up sugar , well done to as all for continuing to lead full and active lifes to the best of their abilities. Everyone is different , every cancer is different ,lets all continue to pull together,. Cancer is the bully not forum members . Love to all Marie xx
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06-05-2017
08:34
Hi , Thank you all so much for your kindness. The day I got the results I also had a biopsy that went very wrong. So ,I think that added to my anger. I think when something stops working we have to grieve for the friend we have lost ,but I am getting there . It is hard work staying positive . Cancer is a bully ! Love and hugs to all Marie xx
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03-05-2017
04:11
Mnay thanks Moijan , for your kind words, may seek a second opinion. M xx
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01-05-2017
01:19
Hello Ann, Can I join your rant. I too am feeling angry . I have 'obeyed the rules' , but cancer came looking for me too . Routine mammagram that showed the double whammy in 2013. I cannot come to terms with feeling well and then told treatment is not working. I know I am lucky not to be in pain , but find it shocking to be told of progression. The EE combo has been stopped , so now on Faslodex. If anyone has any experience of Faslodex I would very much appreciate advice. I feel like I am whizzing through my options. Best wishes to all , I know lots of you are in a worse postion , but this Marie is bloody annoyed ! M xxx
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15-04-2017
03:21
Hi Ramade, I have been on this combo since August. It is working so far have a scan this week so don't want to tempt fate. As to being toxic , a nurse put the fear of god in me how awful this med would be.I would have so many mouth ulcers I would be eating through a straw, i wouldn't be able to work , doom and gloom all round. Well, no real mouth ulcers to speak of, still working . I have lost weight , but seem to have reached a point now.Nails a little brittle , but ok. Have been abroad twice with no probs. We all react differently . I think they tell us the worse scenario. It has honestly been fine , I just want it to keep working . Good luck M xxx
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13-03-2017
04:26
Hello, Just wanted to say a big thank you. I moaned quite a bit when the secondary pin was not included in the Christmas catalogue. I am very happy to say that is included in the Spring catalogue. To those who remember the many discussions about its design and sadly how many of those wonderful ladies are no longer with us , it is so important to me that this pin has the publicity it deserves. Hopefully one of the magazines will pick on it and help spread the word. Well done BCC Marie xxxx
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01-02-2017
04:08
Hello , I just wanted to say welcome and sorry you have had to join us. It is very scary and surreal at the start , but it does get better. I got my scan results today and it was good news. I have been on this combo for 6 months, yes I have had a few hicups , but it is doing its job. Be gentle with yourself, ask lots of questions , scream , cry if you need. You will start to feel more like youself soon . Good luck Marie xxx
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10-01-2017
08:33
1 Hug
I am so sad to read the sad news of Marirose. She was so kind to me and often PM when she knew I wasn't well. This kind , caring , funny lady will be very much missed . Oh Marirose , we never met , but I feel we jad become good friends. My thoughts are with her family . M xxxxxx
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22-12-2016
01:59
Hi all, just after some advice. WBC crashed recently , treatment was stiopped for a while. Back on treatment hoping count is now going the right way. Feeling very tired ,any tips would be gratefully received. M xxx
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21-12-2016
12:01
Very sad news about Ellie, remembering her in my prayers. Thanks Carolyn however it was help with low White Blood Cell count I was after. M xxx
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21-12-2016
11:21
Hello everryone, Just want to wish everyone a happy and hopefully pain free Christmas. Also would like some advice.Have not been too well lately with one infection after another. It was discovered that my WBC was low 0.7 so Everolimus was stopped for a week for count to improve . It went up to 1.1 and onc allowed me back on Everolimis. Question, feeling absolutely shattered, has anyone else had this ? What can I do apart from avoiding infection ? Finally , hope next year is a good year for all. Marie xxxx
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01-12-2016
11:56
Hi Debbie, so sorry you have had to join us. It is hard , raw and scary . I remember at the beginning thinking will there ever be a day when SBC won't be my first thought. The truth is therre are days that are still tricky , but less of them , SBC is NOT my first thought of the day. Of course I wished this has never happened , however I have found a new me and so will you. There is fantastic support here . Don't be too hard on yourself , cry if you need and be gentle with yourself. It does get better, honest . Marie xxx
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22-11-2016
02:36
Thank you so much for getting back to me, BCC really do a wonderful and I know we are all grateful for your hard work. I think SBC can feel loke a dark secret . Thank you once again . M xxxxx
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21-11-2016
04:44
I know I sounded very angry on Saturday , but I really would like an answer from BCC as to why the SBC pin was not included . M x
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19-11-2016
01:28
I was so pleased to receive my BCC Christmas brochure this morning , as I want to order some cards and purchase some more secondary pins. I was shocked to discover the pins are not in the brochure. Some of you on here may remember the heated discussions to decide on the correct pin, but we got there i9n the end. But for what ? There is a pin for men , great , but I think statiscally there are more women with SBC Sorry BCC , I think you do a wonderful job , but the pin should be in the brochure. Also I have not seen one article in any magazine promoting it. The only mention of SBC has been Peggy in Eastenders who committed suicide , a terrible story line and a missed oportunity. Sorry for the rant
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