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T3D
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since
11-03-2015
157
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23-04-2017
10:37
Thanks Mysti will mention it to my oncologist at my next check up in May x
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23-04-2017
07:20
I realise this may be a silly question but I really don't know the answer so could do with some advice. i was diagnosed with bc her2 + in 2015 had chemo April 2015, mastectomy August 2015 and radiotherapy October 2015 I had my last period in August 2015 and had apparently not started my menopause pre treatment in Feb 2016 I was diagnosed with secondary brain met had neurosurgery March 2016 and whole brain radiotherapy shortly after. Further treatment needed so had gamma knife radiosurgery in August 2016 im now 53 and the past few nights I have been SO hot really sweaty - just like I've heard the menopause is BUT I've had non medical people tell me that if I haven't had a period for two years I'm through it whats your opinion? How has it been for you? I am still on trustuzamab injections but no other meds. Thanks for any info T3D
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17-07-2016
10:33
Hi Deedeepuss. I had craniotomy at the end of March followed by radiotherapy following a secondary breast cancer brain tumour. I did have some side effects mostly tiredness and I'm completely bald as I had full brain treatment. For me the tiredness was by far the worst -much more than with last years chemo and rads to breast. I found going upstairs exhausting (even cried coz I don't live in a bungalow - haha) so plan your day carefully and rest as much as you possibly can. I was on steroids for quite a while and when I came off them the tiredness kicked back in. I feel much better now and I'm about 3.5 mionths post surgery. I am also having herceptin one injection every three weeks and apparently this can penetrate brain tissue after radiotherapy so I'll stay on that indefinitely Unfortunately I just had my CT and MRI results back and I still have a bit of tumour left , which is a pain, but I should hear next week about some further radiotherapy. Hope your treatment goes well.
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26-04-2016
06:43
Had my second rad treatment today - second time around for me. I'm having a whole brain radiotherapy for secondary brain tumour breast cancer - cannot believe how tired I am slept most of yesterday and all afternoon today! Anyone else having the same threatment?
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05-04-2016
10:27
hi there. I have had a somewhat hectic couple of weeks starting with headaches and losing the ability to read to turns out I had a secondary breast cancer brain tumour in left temporal lobe. I was whisked of to kings where I had the rumour removed. 12 days on and I'm feeling pretty good. Met with oncologist yesterday and my next treatment is 10 sessions if whole head radiotherapy and then maintenance herceptin for life. I Just wondered if there any of you ladies out there that can shine a light on what to truly expect from the radiotherapy and if you have any tips for dealing with the side effects it brings it would be very much appreciated. Also to know how you are doing post treatment would be good. many thanks Tracey
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01-03-2016
01:42
Cif. Thank you so much for taking the trouble to reply I really appreciate it. I am slowly working my way through the information. I am going to speak to my oncologist later today. Thanks again warmest regards Tracey X
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28-02-2016
09:55
Don't know if there's anyone that can give some help and please apologise for not having read more but I am having headaches and having problems with recalling names etc and have a problem with reading - hence why I haven't been able to read the background. I am really struggling with reading from text and tablets. I am takin herceptin but nothing else I've had chemo finished in July and finished radiotherapy in November I'm on not 11 and have 7 left to go. I hope this makes sense if not I'm sorry I have been to gp and awaiting mri but wondered if anyone else out there has had anything like it
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01-10-2015
04:19
Thanks for the good wishes. All went well -I even got called in five minutes early!! Treated myself to a nice new pair of shoes after 😉
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30-09-2015
11:52
I should have started on Monday but they had too many problems getting me to line up on the machine so they've repeated my set up ct and I'm starting on Thursday. It's all been to do with having my set up so close to my surgery which meant that my swelling had gone down so my shape had changed dramatically. Fingers crossed for Thursday!
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19-08-2015
03:28
Hi Rosie14 having subcut injections and happy to report feet are MUCH better. Using flexitol cream at least twice a day and it's really helped phew! Hope you're better too x
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18-08-2015
05:41
I and the hideous salt taste and found that sweet things helped to counteract it. I ended up with an addiction to McDonald's apple pies!!!
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13-08-2015
08:24
Met my breast care nurse today first time I've had an appointment with her as I'm a chemo first girl! I bawled my eyes out acted like a complete idiot! Once I started I couldn't stop I felt totally out of control. I started when she asked me if I'd thought about what I would look like after surgery and then sobbed with each subsequent question. I'm surprised I wasn't dehydrated by the time I left! Came away with a free bra, a fake boob and was completely exhausted. not sure where that reaction came from as I'm completely happy with the full mastectomy decision and realise that the node clearance is really necessary, I do wonder if it's because it's the first appointment I've been to on my own so I didn't have to be brave for anyone else? Hope everyone else is doing okay x
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12-08-2015
09:43
Oh hunnneebee what a shock that must have been for you. Glad the wine and choc are helping x egret what a nightmare you're having hope it all gets sorted soon x
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08-08-2015
09:09
Congrats Egret! I got really frustrated with myself for having side effects after the last chemo it was almost like as I'd had the last one I shouldn't of had any lol. Still haven't had my champers as now on bloody antibiotics but wedding anni on the 25th so will wait til then!
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07-08-2015
02:06
The skin on my knuckles all came off but my poor feet are awful. The skin is coming off in sheets kinda peeling off all over. It's hideous!
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04-08-2015
07:34
Met with my lovely surgeon this afternoon. Booked in for mastectomy and full right node clearance on 27th. At least I'll get to go out for my wedding anniversary on 25th! Stay well ladies xxx
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31-07-2015
07:30
Thanks ladies val I still have a three week appointment schedule for a years worth of herceptin! But your right I does feed odd to be done. Off to meet with my surgeon on Tuesday so will have a better idea of what's next after that. Stay well all xxx
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30-07-2015
08:39
Well ladies I'm done! I had my last chemo today. Can't tell you how odd it felt looking forward to going for it as I'm usually a bit panicy and absolutely dreading it but I couldn't wait to get there today. Hope you're all doing well. X
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