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bpbninja
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14-03-2015
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13-04-2015
01:07
Hi, I recently had a mastectomy (2 weeks ago) and can see where you are coming from. In all honesty I would / will wear my prosthesis when out, but around the house I don't like to. I never really feel comfortable using the prosthesis and find that I wear it more for the comfort of others (so as not to freak them out as I am very much recently diagnosed and about to embark on chemo - people around me are really unsure what to think or feel right now ). I wear a sports bra around the house and find that this suffices without the prosthesis. X
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30-03-2015
12:38
Hi kippy I was just swinging by the forum and wondered how you were getting on ? Sending you best wishes x
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30-03-2015
12:34
Hahaha brilliant !!! Gotta love five year olds 🙂
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23-03-2015
03:07
Thankyou all for your replies, Tracey you definately need a mallet for the teacher ! I try not to judge a whole profession with a blanket viewpoint, but when I do come across the occasional eeejit I try to remember that they have probably never left school in their life, they went to school, college, uni, and back to school, it's not a wide scope of choice to gain experience and life skills from. Baring this in mind has saved many a teacher a growl from me lol. (Teachers out there please note the disclaimer above, I do not judge you all by profession, I just use that profession to excuse the few who lack insight and experience into the world beyond those gates ) Thanks for the thread link I will take a look, I'm sure 'The stupid things people say' is destined to find it's way into my blog My sister has already began many chats with 'don't put this in your blog but' hahaha X
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22-03-2015
11:17
Hi, I was diagnosed 5 weeks or so ago (sorry I can't remember the date! ) and have since been getting on with my life, planning for time out during surgery (scheduled this coming Tuesday) and working out how to maintain my work (self employed) whilst undergoing chemo and radiotherapy etc. I'm 41 and the consultant is fairly clear that he plans to be reasonably aggressive with adjuvant therapy. I have a fairly large family, lots of friends for support, and an awesome husband and 12 year old daughter. Although the past few weeks have certainly been a ride and I can't deny I haven't had moments of feeling the eeebiegeebies my outlook is mostly positive. I've even began building and writing a blog on my journey kicking the ass of breast cancer as a means of reaching out to others. Amidst all of this I am finding I would probably benefit from a fairly large mallet, as I think there is possibly no other way to get through to people that it would be nice if they could think before they speak! A friend called me today to tell me her other friend had her mastectomy last week and I will probably find that I am in agony and cant move, my cousin reminded me that my aunt had breast cancer 2 years ago, but it was her mets which spread to her stomach which eventually got her (we have the same diagnosis), somebody else informed me that it wouldnt be the surgery that bothers them, it would be the assymetry afterwards... the list goes on. To be fair I have a fairly wild sense of humour, and can handle these scenarios as they arise with a hint of humour but still my mind boggles when such things are passed on to me. On the other hand, my 12 year old who heard my friends warning that come wednesday my life will be a misery came back to me later with a little thought of her own ; "Mum you are the toughest person I know, you wont be in agony at all" - and I am grateful to have her clapping me from the sidelines. So, in the absence of a mallet, I send all of you virtual hugs and encouragement in your march forward, and may you manage the thoughtlessness of others with a quiet acknowledgement that the problem with stupid people is that they will never know that they are stupid 😉 Rant over x
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22-03-2015
10:54
Hi, I hope you get a good response here for your research. I will happily speak to you about this, but wont be available for a week or so due to surgery, and so it depends on whether your timescales will allow for that. Feel free to private message me and confirm if you want me to get in touch. Good luck with your research. x
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21-03-2015
01:46
Hi daisykins, I don't know you, but I'm pleased all the same that your biopsy results were good I was diagnosed with breast cancer in February. As a self employed person I saw business suffer immediately (incessant appointments and call backs to hospital / clincs) and in the initial stages this really gave me little time to think too much. I did and still do have moments of becoming suddenly and quite inexplicably overwhelmed though, and although I really do manage to stay positive most of the time, I figure days like these are par for the course, it's best to just roll with them and allow myself the privelage of processing what is happening along the way. No matter how strong a person you may otherwise be, any news involving 'cancer' is a big thing to most people, the only genuine advice / support I can offer here seems to be 'try to be kind to yourself'. Im a web designer and content writer, and given that I have treatment scheduled which will challenge my ability to meet the demands of my clients, I've decided to start a blog as a positive means of interacting and reaching out to others in a similar position as me, or their friends / loved ones. Feel free to PM if you fancy swinging by and I will send you the link. Otherwise I hope to see you around the boards here. X
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19-03-2015
11:15
Hi, I'm sorry for needing to post this here but I just noticed that the link to my blog at the end of my posts has been deleted from every post by a moderator. The links have been there all week and I mark it clearly to explain what it is, but today they have been removed from every post. I'm thinking this must be against the rules ? I did look at the rules when I joined this forum and didn't see anything restricting this, but I do seem to be getting foggier by the day at the moment and might have overlooked it ! Can anybody please clarify ? My intention when including the link is purely to allow fellow members access if they would want to as another means of reaching out, not for spammy reasons as I don't collect data etc via my blog. Many thanks x
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19-03-2015
03:21
Hi, I am due to have a mastectomy next week for a diagnosis which is known to be often contralateral. No indications via imaging that it is in both breasts and therefore the consultant is going ahead with a single mastectomy. I did talk to him about this yesterday and he said that in future I would be screened yearly with a mammogram. I pointed out that the CA I have is usually not detected by mammogram and therefore didn't really feel reassured by this. He informed me that I would therefore have an MRI scan every other year. I'm feeling that every other year isn't enough but feel glad that I brought it up early in order that it can be an ongoing discussion. Don't feel afraid to discuss your worries with your team on a need - to basis, if that means bringing it up several times then so be it. This isn't a demanding approach to take, but more one of making it known what your concerns are, why and how they can be allayed ? It perhaps differs from area to area, but to be fair I find that even my GP is willing to arrange an MRI if he thinks it's needed to put a mind at rest.
Good Luck
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19-03-2015
03:12
Hi Kippy,
it's so hard to comment on the communication of the GP, I guess they would need to be fairly certain to even say it, and it may have been one of her specialities during GP training etc? who knows. It's a shame that in those situations we can be so shocked by something unexpected falling out of the GP's mouth that we don't manage to ask them clarify why they might make such a confident statement. My own GP was equally as sure but very reluctant to communicate that to me, I felt she wanted to but since we hadn't met before (she is new to the surgery) she was unsure of my personality and my potential reaction. A few questions down the road and I got the picture lol.
I hope that things turn out well for you.
Best Wishes x
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19-03-2015
03:05
Hi thirtyeighteff, thanks for the reply, I hope things go well for you.
I've started a blog as a means of something positive to focus on. Feel free to drop by and read / comment, or even contact me if it will be of help / support to you. Likewise all others who kindly took time out of their day to response to my thread, I really appreciate that you made the effort and hope to see you around here, or via the blog.
Warm Regards x
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16-03-2015
02:15
Hi Everybody, I hear what you are all saying and being in a similar boat I can totally relate to the head spin. I have a huge family and lots of friends to whom I can turn, but the fact is that I have always been their support, they have a little learning to do in terms of understanding that I have hit a point in my life where I might need to be investing in myself instead. After a few weeks of having time to think and put things into perspective I've decided to start a blog, I'm a writer and web techie person by trade so really I am just pulling on the skills I have to try and build something that might help / count duirng this whole journey. I'm sure we will run into eachother along the way in the forums and I'm always open to anybody getting in touch here, and for those of you who would be interested in following my blog, leaving a comment or anything else , then please feel free to do so.
I wish you all lots of luck.
Link edited by moderator
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16-03-2015
02:05
Hi Jules, I'm sorry to read your post, but it's nice to virtually meet you all the same. I understand it's a stressful and worrying time, everybody deals with that stage differently. For me it was a matter of sitting down and understanding that for a little while things were going to be out of my control, I can't speed up the labs, bring forward appointments etc. It wasn't easy but it did help keep things in perspective for me, and to be honest that is pretty much how I tick now, even after diagnosis. I hope things go ok for you. Feel free to reach out here and stay in touch. I've also decided to start building and writing a blog, you're always welcome to come along and leave a comment etc, my hope is that it will become a place of support / distraction/source of information over time.
Good Luck
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15-03-2015
09:10
Hi Alex, it's really nice, and very supportive that you are here asking the question in a bid to help your girlfriend. It's understandable that she is worried about her own future and any associated risks of breast cancer due to family history. Many types of Breast Cancer are not hereditary and it seems that more and more young people are facing a diagnosis these days - increasing our immediate exposure and awareness. I have a daughter whom is 12 years old and so the first thing I did was wonder about genetic factors, I'm fairly sure that both her sister and cousin will have thought about it at least fleetingly in the course of their minds whirring just because of the family circumstances right now. Maybe your girlfriend can drop a comment in passing ? "I was wondering if I should go to my GP and ask about genetic risks, what do you think ?" Involving them in the conversation would perhaps make it easier and give them opportunity to help her out... Good Luck x My Blog
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15-03-2015
08:56
Sorry Jo, I wasn't clear, I meant am I ok to highlight it as a resource on my own blog for others to access ? x
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15-03-2015
06:58
Thank you all for your kind words of support and hello's.
I've decided to try to make the journey a useful experience in some kind of way, and am in the process of pulling together a blog. I see the link for the info pack from BCC in many welocme threads, is it ok to post it on my site ?
Thanks again to all of you for taking the time out to say hello. X
Keep Smiling Everyone.
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14-03-2015
03:25
I hear you! The thought of telling my daughter my diagnosis was the hardest thing I have ever faced. She is 12 years old. Telling her was in fact easier than telling family or friends, she is just 12 she has a set of things she needs to know and much of it was driven by her own questions. The most important thing for her seemed to be understanding that I was due to have surgery and treatment, how that may affect us as a family, and how I am affected at the moment. My former stroppy hormonal daughter suddenly understands that I am not on top form. She is still stroppy and hormonal (!) but with just a hint of consideration haha. On the whole she has taken it well and I am sure we will get through it together. However the breast clinic where I was investigated and diagnosed were the first to offer support her in the event that I needed help with this. Don't be afraid to ask for support for you and the family. Good luck and take care x
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14-03-2015
03:16
Hi, I'm new here also. I was diagnosed in the last month and like yourself needed to go back for MRI to check for size and then determine treatment. I'm 41 years old, I have a 12 year old daughter and much like yourself I am focusing on staying positive and getting on with life as best I can. My mode of operation at the moment seems to be to take each day as it comes. Like yourself I didn't freak out or melt when I was diagnosed, but I have noticed that I feel less tolerant of other stressful situations as they arise. I find things which formerly would have seemed nothing now solicit a 'I don't need this' response from me these days. I understand that this is just my way of processing my situation and my lower tolerance to stress is part of it. There isn't a right or wrong way to absorb the fact that you have been diagnosed with Breast Cancer, we all deal with things differently. Stay strong and keep your chin up x
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14-03-2015
03:11
Hi, I'm new to the forum and have been diagnosed in the last month. The journey so far has been a ride, a day to day roller coaster of emotions, reactions, consultations and what not. But, I'm doing ok! Looking around the forum it seems well contributed to and full of useful information, I decided to join in hope that I can benefit from that support, and equally be of support to others. It's nice to virtually meet you all! Regards, BPB
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