Breast Cancer Now Forum

I wouldn't wait, I'd try and get referred earlier. Xx ... View more

I requested to join (I'm 36 and pregnant) but haven't had a response yet. Anything I need to do?x ... View more

Oh this makes me so angry. I'm 36 and was told it was "impossible" that I had cancer by my GP who didn't send off a referral for me. I went back to see a different doctor a few weeks later who put through an urgent referral and I was seen 2 weeks later. Unfortunately mine did turn out to be cancer, but chances are yours won't. Push them as much as you can if you haven't heard in 2 weeks. I'm still waiting for an apology from my doctor... Xx ... View more

It means that the cells are likely to be benign. It's awful waiting, I know. I hope it is good news for you. Xx ... View more

They won't refuse to pay you because of it, they'll just be checking you really are you and not someone else claiming to be you (who is 5ft 3!) but it must be so frustrating. We were hassling ours every day til we got an answer, I think they paid us just to shut us up haha! I'm sorry you had a crappy day, I hope you're feeling better today? Xx ... View more

Yay Claire go you! Have you lost any hair yet? I'd agree that for me days 5-8 were the worst for tiredness. I've also had a sore mouth with ulcers on my tongue and inside my mouth. Heartburn is also a big issue for me but I think a lot of that is the pregnancy. Good for you raising so much money Claire 🙂 xx ... View more

Hi Claire, yes I've had the headshave, it's taking a bit of getting used to but I'm glad I've done it. My daughter thinks it's hilarious. She said "but you don't look like a boy" so that's a relief 🙂 when I touch my head it's like touching someone elses! It's her birthday on Tuesday, so next Saturday it's her party and my headscarf head will get it's first party outing! How are you feeling? I've got a really odd sensation in my nose, sort of like I've snorted water...or snorted pepper. It's very strange!    La-La I'm pleased you're feeling ok so far. It's a relief to have it started isn't it?    I need suggestions for boys names please....My bump is a boy bump 🙂 xx ... View more

Don't be sorry for the rant, it's good for you and I absolutely understand where you're coming from. It's strange and sometimes sad to see how different people are reacting to us. I find my patience levels are crappy any way so I can't tolerate nonsense anymore!    Hope all goes well today La-La, am thinking of you. Xx ... View more

Good luck for tomorrow La-la! Xx ... View more

Jo, Claire's right. Please don't feel bad, I have to force myself to stay positive for my bump and my daughter, but if they were grown up I'm sure I'd be really pre-occupied with this cancer. We're each dealing with our own situations and nobody is really better or worse off than anyone. You always, always have warm words of encouragement and support for us and that shows me that you're a wonderful woman.   I also really like talking to others in the same situation, it makes it so much less lonely. Nobody else understands how it feels. I wish we all lived in the same street haha! I am going to buy my own Ranitidine, but insist that they prescribe me some for next time. My tongue is sort of numb today, and I had a hot sweat last night. This is all so glamorous! Head shave tomorrow...eek! Xx ... View more

Ah thank you! I've felt absolutely exhausted today, I had an obstetrician appointment and also my 20 week scan so I was glad to get home and I slept for an hour. Baby looks healthy and strong though and I'll be having scans every 4 weeks. I've also got horrible heartburn, I'm a bit annoyed as I knew I'd get it badly as I had a bit from the pregnancy anyway so asked for something to be prescribed but they didn't. It's awful. It's my last day of steroids today and I wondered about any changes to sleep. Are you not sleeping in the night? Are you still taking sickness pills? Yes the gene test is just another blood test...another two tubes of blood taken though, it feels like I'll have none left! I can't imagine the gene test will come back positive, but if it did I guess I'd have to think about doing an Angelina! Xx ... View more

Borbie, I'm hidden on fb (because of my job). Can you pm me your name on fb so I can find you please? 🙂 xx ... View more

Hi Emma. I think you're doing absolutely the right thing getting checked out again and thinking about what you need. I'd say you'd be within your rights to ask for whatever you feel you need. My GP didn't refer me to the breast clinic initially, because it was...and I quote..."impossible that it's cancer". I was thinking of that during my first chemotherapy session on Saturday. You fight for yourself and your health. I'm hoping yours is innocent though. Xx ... View more

Oh that's so lovely of your little girl 🙂 my little girl will be 4 next week and has said a few times that she's poorly, or has a poorly boob! I'm having my head shaved on Thursday so she is prepared. Personally I want to do it to just feel a bit in control. I'm just really hoping she doesn't associate this with the pregnancy. I've tried to explain that the two aren't connected but she's so little it's hard to know what she's taking in. It's so hard to protect them isn't? Have you had a gene test done? I had mine done on Wednesday and it'll be a 6-8 week wait for results. Xx ... View more

Oh the waiting is awful, by far the worst bit for me. I hope you hear soon. Xx ... View more

Such a shame about your holiday 😞 we're meant to be going on a week's holiday to Cornwall (not quite so fabulous) a week after my next chemotherapy session and I haven't even mentioned it to my onc yet. I'm hoping it won't be a problem, my daughter is so looking forward to it, as am I! Really nag for the critical illness stuff, I had to with my GP but just sent a surgeon's letter from the hospital which was enough! When the underwriter called to say it had been approved she said she was really sorry for our situation and it sounded horrendous. It made me wonder what the doctors had said haha! Xx ... View more

Count me in when it's set up 🙂 Kate, no constipation for me so far, long may it last! I've just been out for a long walk and a huge ice cream...I only had chemo on Saturday, can't believe it! Xx ... View more

Ooh Claire I meant to say to you that my critical illness payment came through! Yay! Hope yours goes smoothly too. They take ages to consider the paperwork but payment came through 3 days after the approval. Such a weight off my mind. I'm a bit more tired today, but I'm heading out for ice cream 🙂 xx ... View more

Hi Goldie, just wanted to see if you'd had your results? I'm currently 20 weeks pregnant and was diagnosed at 13 weeks. I started chemotherapy this Saturday just gone. My doc told me it was a blocked milk duct..... it was actually a 4cm grade 3 tumour! Good for you getting checked out. I hope yours is good news. Xx ... View more

Hi Claire, had my first chemo yesterday, was very much as you described. It was odd on the ward having it as everyone kept staring at my bump and my chemo nurse admitted that I was only the third pregnant woman he'd ever given chemotherapy to (in 25 years!!!) I'm doing ok so far. I'm interested to see your nurse said symptoms would probably kick in on day 4? Gutted, I thought I'd escaped the worst! I've got terrible heartburn and some nausea but haven't been sick and no headaches. Just really tired. Do let us know if things ramp up tomorrow. I hope they don't. Xx ... View more