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fyefye
Member
since
30-03-2015
10
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2
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11-12-2016
10:13
2 Hugs
Hi , I've been taking Letrozole for 2 years since diagnosis in November 2014 and awaiting a mastectomy in Feb last year. My surgeon did warn me that I would experience symptoms of the menopause. I didn't worry because I had only had mild forgetfulness during my actual menopause. I was not prepared for hot flushes, joint pain, dry skin, hair loss, sleeplessness and loss of appetite, My surgeon recommended expensive thick amd thin shampoo and conditioner on the internet, which didn;t work. It wasonly when a new doctor asked if I knew I had serroboeic dermititis.? No! but immediately the dry skin and itchy scalp were sorted. I put a upside down sink strainer in my shower drain to stop hair from blocking it, I am awaiting a bone density scan results, but calcium tablets amd hay fever Cetrizine tablets daily, help with the joint pain and rashes. The only other tip is to take the Letrozole at bedtime so some of the rubbish side effects take place as you sleep.
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10-12-2016
09:11
Ihave been on Letrozole for over 2 years.since being picked up as needind a mastectomy by a routine scan,When my camcer surgeon said it would give me symtoms of menopouse I was sanguine because all had I ever ex perienced was mild forgetfulmess.. I was not prepared for hot flushes, sleeplessness, skin rashes, hair loss and joint pain. Whilst awaiting scan for bone density, I find daily calcium/vitamin D tablets help joint and pain and hayfever Cetriziene helps hot .flushes . My surgeon recommended very expensive thick and thin shampoo and condittionerfor hair loss blocking the shower. A new doctor asked if I knew I has serroboeic dermititus? No but that explained the dry skin on my forehead any eyebrows and itchy scalp. Now hair loss and skin rashes are better with the prescribed shampoo and skin cream. My surgeon also recommended taking Letrozole before bed so symptoms might take place whilst sleeping. This works sometimes.
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07-04-2015
06:55
I had a DIep flap reconstruction on the left 8 weeks ago. I had a long wait for the surgeons to get together but I didn't fancy silicon or implant using back tissue. Today I was told that I would not need radiotherapy because full mastectomy with good margins and no cancerous nodes. Although on Letrozole, in a funny way I feel a bit adrift. I don't know if you've had tattoos. I'm not sure if I want to bother.
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05-04-2015
07:01
The breast Screening nurse at the clinic where my tumours were picked up on a routine mammogram said they would be better every 2 years but there isn't the funding. Americans have mammograms every year if they can pay but my nurse felt that was excessive.
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05-04-2015
04:35
ps My Breast surgeon recommended taking it just before bed so that menopuasal symtpoms are lessened as you sleep. As I sailed through menopause with nothing less than slight forgefultness. I wasn't prepared for skin rashes. hot flushes, joimt pain and sleeplessness. As I have posted previously, Ive found combined calcium amd vitamin D tablets have so far eliminated joint pain, As a hayfever sufferer, suddenly cetrizine has sorted out the rashes All I have left is loss of appetite, hot flushes and sleep problems.
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05-04-2015
04:16
I don't go to a slimming club but letrozole has lost me 3 stone any any more I'll be severerely underwight.
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03-04-2015
07:20
Afte the first 6 months of Letrozole, with the prospect of osteorporosis, I take a combined Vitamin Calcium and vitamin D pill daily and previous knee and joint pains seem to have disappeared for now.
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02-04-2015
02:07
I am impressed that you were given a girdle. I was told to buy wear support pants to prevent bulges and like you after 6 weeks I'm wondering whether I still need them. I was also promised an appointment with the surgeon at 6 weeks but he is on leave. Thank you everyone on the forum. I have learnt a lot.
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01-04-2015
07:31
When I had a mastectomy with immediate DIP flap reconstruction 6 weeks ago, I was told in early December that this was an option because the tumours were small. I took Letrozole for the 2+ months before the operation .Now suddenly despite a good biopsy report I am being referred to an oncologist for possible radiotherapy. Today I received an appointment at Mount Vernon in 6 days for assessment along with many others because he is has been and is going on leave. I am on Letrozole to protect the other breast, My reconsructed breast is not completely healed and I have been dressing it myself with Jelonet and Cosmopore. Has anyone deferred treatment.? Would it make much difference to have radiotherapy in September? I
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30-03-2015
09:08
Hi My best tip is to have a great dressing gown. I wore my beautiful one inside out to put 3 drains into now inside pockets whilst carrying catheter. Dressing gown with large pockets My new front opening pyjamas were impractical because of the drains and catheter didn’t fit.. Front opening nightie ( nurses gave me one and cut it down at the front( hence need for safety pin) Slippers *deodorant *dry shampoo * hair brush*Safety pins *Ear plugs eye mask *Glasses *Hand wipes/ face wipes *Light perfume/body spray *Mints/breath freshener Bottled water if you don't want to drink hospital tap water Books/kindle *Crossword/puzzle book & pens Diary for future appointments Mobile phone and charger I put all the above into a large basket with handles . In holdall Toileteries soap flannel hold you in knickers comfy outfit to go home elasticated skirt or trousers zipped top or buttons. Thank you card/ biscuits or chocolates prepared for the nurses and brought in for when you go home.
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