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GiulianaB
Member
since
14-05-2015
36
Posts
10
Hugs
2 weeks ago
Hi Michu, how are you? have you started your tablets? i am having liver metastasis and it is a lot of them. i have started Letrazole and tmr I ll have a liver biopsy. Next will be palbociclib but I m taking some time as I am still overwhelmed by the situation. Giuliana
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2 weeks ago
They say there is only palbociclib. I still have not recovered from the shock of the diagnose especially because it is a huge tumour. Tmr I m going to the secondary breast cancer meeting at the Haven in London and it might be helpful to speak to other women who are taking this medications and see how they are/look. Friday I have to repeat the liver biopsy because the first one did not pick up enough cancerous cells. At the moment I have no side effects from the tumour not sure why I want to have side effects from a treatment, considering how bad it was for me the first time and the fact that I never went back to my former self.
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3 weeks ago
1 Hug
I ordered Radical remissions and waiting to receive it. It was suggested by Annie Brand in her video. https://www.youtube.com/watch?v=skiT0Vt7B8U&list=PLFL4cq5M5wSULcKsKvXBZdP18i-rTn-fc it is an interesting story. I wish I had watched before my aggressive chemo.
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3 weeks ago
may I ask was the polmunary embolism a side effect or the Ribociclib or is a previous condition?
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3 weeks ago
one question I would ask is weather her cancer was primary cancer?
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3 weeks ago
There are many alternative treatments. Weather they work or not there is no research. I am reading this book by Dr.Mark Sircus that is about sodium bicarbonate. There is former oncologist Dr Simoncini whose theory is that cancer is a fungus and can be treated with bicarbonate. I havent read anything by J. Magnusson but I ll have a look. Nothing to lose.
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3 weeks ago
1 Hug
what chemo did you have? can it be possible that the cancer did not respond? I am sorry to hear that. I have a pretty bad diagnose myself not sure what the future holds. However there are so many new medications being develloped all the times. Gx
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3 weeks ago
Hi Nicky08, you mention that the recurrence is the liver and the response was different because there are different type of cancer cells. I wanted to ask you did you have a liver biopsy? Were they able to get the samples and identify the tumour cells? The recurrence in my liver takes over the right lobe, however the liver biopsy was inconclusive. They suspect it is breast cancer because that what I was treated for in 2015. They are repeating the biopsy. Thanks G.
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4 weeks ago
1 Hug
Hi Ruby 2016. My moods alternate from despair mainly when I alone or cannot sleep to being ok as at the moment I have no symptoms apart from the fatigue and I would normally be quite happy person. Thanks for taking this time to put it in perspective for me.
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a month ago
they offered me Ibrance too. It is a very expensive drug, if they offered it to you is because they think it ll prolong your life. https://breastcancernow.org/information-support/facing-breast-cancer/going-through-breast-cancer-treatment/targeted-therapy/palbociclib-ibrance I am at the stage I am just too angry that it has taken them 4 years to diagnose me however I have accepted it. I will start it in the new year I did not want to be sick at Christmas I want them to repeat biopsy and do the per scan first.
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a month ago
3 Hugs
I hope this does not happen to you but it can happen if fact it happened to me. I had a diagnose of primary breast cancer in April 2015. It was a grade 3, 27 mm intraductal carcinoma. Lynphnodes were negative. I had chemotherapy Fec-T, operation and radiotherapy. It was ghastly . Never felt well afterwards, Always reported extreme fatigue. They called it chronic fatigue. I had a CT scan in May 2015, a bone scan and a liver function blood tests in June 2018. Of course for the chronic fatigue GP sent me to talking therapies because it is in your mind or because this is what is available and somebody has to use the service. After that there was another service that needed patients so I was sent to that some new privately run physio service. Blood tests and ultrasound must have been too expensive, I had mammograms every year and a yearly visit with the oncologist as they say that you are 'considered' cured if it does not come back within 5 years. The last visit with the oncologist I had in April I was advised for the 'fatigue' to visit the cancer support center. After 4 1/2 year I eventually got the CT scan. The tumor is cm 11 as big as small melon. Of course the fatigue was in my mind.
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a month ago
1 Hug
I m sorry to hear that. I have been feeling extremely tired since the treatment infact i never went to my former self. You do need all the love and support you can get it is difficult to cope with this **bleep** without having to deal with more unwanted judgemental **bleep** from the ones who are supposrd to support you. Big hug
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a month ago
2 Hugs
Me too. Primary breast cancer was diagnosed in 2015. I never stopped saying how tired I was during the last 4 years. It took them 4 years to do a ct scan. I now have have a tumour the size of a melon in my liver. I start to think that we are gineapigs for the Big Pharma. The gave me the pills and say see how ir goes.
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21-11-2015
09:31
I had surgery on the 5/11/15. Mastopexy. They had to remove a bit. It still does hurt. How long is this going to take to get better? G.
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21-11-2015
09:26
Hi, I feel the same. I had chemo, I had surgery, I m waiting radio but this tamoxifen feels like too much, I had a estrogen and progesterone sensitive cancer. The sentinel lymphonode were clear. They keep talking about 'insurance' however I m not convinced. I have met women at the cancer support centre who did everything they were told including tamoxifen and they just got the cancer back. Some after 1 year one after 10. Do not know what to do. I m 49 and my period stopped after the 3 chemo. FEC T. J.
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