Breast Cancer Now Forum

before I had liver operation I was advised the treatment was working and my cancer had shrunk from 5cm to 3.1cm the surgeon advised that he has known people to still be here 10 years later without cancer coming back but said he is not god and could not say how long I would have to live but this operation would give me the best chance. I was then taken into another room where I had to sign for cancer research to take my cancer after the operation  and the cancer research lady said the operation I was about to have is a virtual cure. I was shocked with what she had said as I was advised by my oncologist that I had probably 2 years to live and the longest they have known anyone to live with my type of cancer was 4 years and now I was being told that this is a cure.  I asked was she sure and was told that it is not documented and I would not find it in any journals but it is a virtual cure not for everyone but this is the best thing out there for a cure  and said again this is a cure.   I could not believe what I was hearing. I had the operation on 15th Sep 2020 and still recovering and in a bad way in a lot of pain and discomfort and coldness throughout my body and my fingertips are ice cold    after the operation whilst I was still in hospital the surgeon come to see me as I was in a bad way after the operation and said he was very pleased with the way the operation went and he said statically I would have a better chance now and statically 5 years now to live. I was left confused with this as was advised that the operation would be a cure and now being told that I may have a bit longer to live and may live 5 years instead of two years but what happened to the cure I was told. when I got released from hospital a week later I spoke to my oncologist who was shocked to learn that the hospital stopped all my treatment 3 weeks prior to operation and when I told her what cancer researched said about the operation being a cure. I could tell by the way she acted and sounded that this was not the case. the oncologist said she has been chasing the hospital each day to get the staging of the cancer that was removed.  this confused me even more as knew I had stage 4 cancer that had been removed and now I am told they need to find the staging of the cancer itself and then they would contact me regarding this and now I have received a letter advising that the oncologist want to see me in the hospital next week to talk to me to discuss. I am left again shaken and scared and very confused with it all. has anyone else had a liver resection ? any advise would be very much appreciated as i am very confused and scared. ... View more

I have just been diagnosed with secondary breast cancer and told I have months without treatment and 2 - 4 years with treatment my new metastatic ER positive/ HER2 negative breast cancer not to sure what all that means as my head is all over the place and finding it hard to except as have young children I am terrified of dying and leaving my children behind. I was told my cancer is oestrogen based and feeds of oestrogen. I have some hope of living past the two years reading stories on this site. I have been told by family I have to cut out oestrogen as the oestrogen is feeding my cancer as they found a 5cm lesion in my liver which they said they maybe able to remove part of my liver with the cancer but they would have to make the cancer smaller and I asked would this give me longer to live if they could remove and they said no it would still be 2 -4 years to live that has left me very confused. my partner has been making me stews and sups but using pearl barley and has bought me loads of antioxidant mixed nuts with almonds pumpkin seeds cashew nuts walnuts brazil nuts to try and fatten me up and give me more energy as the weight has fell off me. but I have been told by family members that all these contain oestrogen that helps feed the cancer. I am so confused what to eat ? I had bone scan and MRI scan and waiting for results as had scans in February that came back clear and the cancer was only in my liver and no where else and was advised that if it has not spread then they maybe able to remove part of the liver where the cancer is and can only do this if the cancer shrinks I am on at the moment Palbociclib and Goserlin and Letrozole but been reading on Miracle cure saves woman with breast cancer given months. the woman was given months after trying 7 types of chemotherapy failed she had tumours the size of fists in her liver and after trying new treatment adoptive cell transfer she has been cancer free for 2 years. has anyone heard of this the article I found was https://www.teegraph.co.uk/news/2018/06/04/miracle-cure-saves-woman-breast-cancer-given-months-live/ as reading the article it says these trials may be a cure for terminal cancer ? I am hoping others have heard of this and could I be a candidate for it to do the trials. . I so please to read about yourself and so many others doing so well and would ask what changes you have done and any help or advise would be greatly appreciated. I apologise going on for so long its just all so overwhelming. ... View more

I’ve sent you a private message xx ... View more

nobody is going to insure you once you have cancer ... View more

Hi Michu, how are you? have you started your tablets? i am having liver metastasis and it is a lot of them. i have started Letrazole and tmr I ll have a liver biopsy. Next will be palbociclib but I m taking some time as I am still overwhelmed by the situation. Giuliana ... View more

Hope you don't mind me jumping on! I have had Bc 3 times 2011 2013 and 2015. I have been really really tired for last 6 months or so and went to GP had blood tests and got call to say need Vitamin D tablets and another blood test as low liver function? I am panicking now that may have mets to liver? Did you have blood tests or just CT?  ... View more

Hi Littlez, Thank you so much for your supportive message and good advise I really appreciate it. I am so sorry to hear that you had a tough time with your husband and it ended in divorce. I do understand what you mean that it was being made even harder, more depressing and much, much lonelier because you were living with someone who made you feel that the pain and exhaustion were in your head. You definitely didn't need that! My husbands attitude last year knocked me for six and made my fatigue worse. We all need positivity and love and care from the ones around us. Saying and making us feel that we are horrible, lazy, selfish people because of cancer is unforgivable and sadly I wont forget the way he treated me. I don't know how they can do it and it has such a negative impact on our health and wellbeing! Thankfully things here have improved greatly and I am hoping will remain so.  He had a week in bed with the flu which I think reminded him of two things first I want lazy as I was up and down the stairs with food and drink for him all week and secondly what fatigue felt like.  Good advice not to apologise for being unwell... I have been doing so on several occasions.  This illness makes you feel like it's your fault if your not careful especially when the family isn't understanding and caring. Thankfully my daughter is loving and caring and much more understanding of illness than my husband. As I say things are back to normal now and I am hoping will remain so but I am a little apprehensive and worried how things will be in the future if I got worse or have to have the mastectomy due to severe lymphoedema.  This cancer thing isn't easy for anyone and the treatments cause so many problems but at least we are still here.  Thanks again for all the advise. I hope that you are well. Pat x ... View more

I’ve bought many books since my diagnosis, one or two I’ve only read a few chapters before deciding it wasn’t for me, others I read and take bits from, and then there’s the few that I go back to time and time again and Radical Remission is one of those! Personally I think it’s a wonderful book and often re read a chapter, it’s uplifting and offers hope even if you only make slight changes in your life. Kate x ... View more

Yes it was 4 from the start.  I was diagnosed via a bad back at the end of August. I had spinal surgery and then started on letrozole. I then had a mastectomy in early October. I have not long finished radiotherapy to my spine and chest.     I am due to start Ribociclib in Jan and also denosumbab which was delayed due to low vit D levels.  Lots to deal with!!! ... View more

Thanks love. Good of you to reply. A smoke for anxiety sounds good about now but I'm not giving in to temptation... all the best to you. Xxx ... View more