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Kobeobe7
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since
24-05-2015
38
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04-07-2016
08:24
1 Hug
Hello everyone. I'm 6 months post Chemo and radio for TNBC. I've recovered well but have started having disturbed sleep with pins and needles in both arms at night. And aching in my shoulder (not my surgery side!) I'm riddled with anxiety and am frightened about what this could be. Has anyone experienced this?
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14-04-2016
04:02
Hello everyone. I'm 4 and a half months post chemo and my liver function is still not normal. My GP doesn't seem overly concerned. I'd really like it to fall back in the normal range as it's so easy to worry. Is it quite common for your liver function to be below par after chemo and if so for how long? Thanks in advance.
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05-01-2016
07:21
Hello everybody. I had an info session today at my radiotherapy department and was told no exercise (to build up muscles) for 4 months post treatment! We were told to keep up the daily mobility exercises to stretch scar tissue but nothing else. Is this the advice everyone is given? I had hoped to start yoga or gentle jogging as I was quite fit before diagnosis. Plus I'm sure I've seen a few posts saying people have gone back to the gym soon after rads ...
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03-12-2015
03:41
Thanks JenJen - it feels a bit easier today thankfully. Off to GP tomorrow x
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01-12-2015
11:50
hello all, I've just completed FECT and now have very swollen eyelids. They feel sore, a bit like I've got a stye but they are not sticky. I don't have any eyelashes so the overall look is pretty awful, especially as I can't wear eye makeup. I'm going to the GP but see it's quite a common problem with chemotherapy so thought I'd ask for advice in advance. I googled and found it can be a chronic problem so would love to hear that it can be treated. Thanks everyone. Jo
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24-10-2015
11:57
A big well done for completing the course! I've still got a way to go but can imagine you must be feeling a massive sense of achievement and so you should. I hope this SEs subside for you soon xxx
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06-10-2015
09:28
Have a glass of wine for me Joyce. I still can't face drinking. Looking forward to a lovely glass of red in 7 weeks xx
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06-10-2015
05:31
Joyce have you had the chest tightness on the surgery side with the T? I'm on the weekly taxol and finding that I'm still really feeling it around my scar. As its left side I'm always paranoid it's something more sinister. I'm glad the reduced dose has worked better for you. Jo xx
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20-09-2015
10:59
Mazzi I felt like that and didn't drive for a couple of weeks. I felt spaced out and a bit travel sick even when I was driven by someone else. It did ease by FEC 2 so drove after about a week I think x
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18-09-2015
05:18
Good news Joyce - I'm glad you've come through to the other side and can enjoy the weekend xxx
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16-09-2015
08:05
Thanks Sperry, thanks for the info. You're halfway there which must feel good xx
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15-09-2015
04:29
I second what has been said. I didn't feel anything at all. The person who fitted it was very experienced and chatted with me as she went along. There was also a radio on which also acted as a distraction. It took about 15 mins max. The next day it did start to ache and I was 'aware' of it for about a week. On a couple of days I took an pain killer as it was bothering me a little. Again this is very normal. Very quickly though I got used to it and have been very glad I had it as it makes chemo day much easier. Good luck x
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15-09-2015
03:41
hello everyone I am 13 weeks post MX and have had 3 cycles of FEC so far. I'm getting shooting pains that come and go in my arm on the surgery side. They are not muscular but feel more like electric shocks. They are not there all the time, usually start in the afternoon and not every day. But they are really quite painful and come and go throughout the second half of the day. I was wondering if anyone had experienced anything similar? I was thinking of getting some private physio as suspect it is related to the surgery and tension/stress in my shoulders...... Thanks in advance, Jo xxx
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14-09-2015
07:55
Thanks Carole. You've given me an idea of what to expect and if it did work out as a bit easier than FEC I'd be really pleased. I'm also injecting clexane for a few months - it stings a bit doesn't it. I hope your treatment continues to be bearable. Maybe by Christmas we'll all be feeling a bit more like our old selves Xx
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14-09-2015
07:18
That's brilliant news Manicmum and makes all the **** of chemo worth it. I'm really pleased for you and only 2 cycles to go xxx
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14-09-2015
08:58
I find a bit of retail therapy can do wonders too, especially internet shopping when I'm lying in bed on day 2! Joyce and Manicmum I hope you're through to the other side of Tax and the SEs are lessening. Joyce, your description of the Tax SEs did make me wince a bit but I completely understood how horrid they are. Much better than how my onc described them. My onc has changed my final 3 x Tax to 9 x Paclitaxel (weekly) because I've got a blood clot on my lung. I would just like to ask Carole and Sperry to give me a bit of a heads up on what to expect. When my onc told me I forgot to ask the important questions ..... like what effect does it have on your immunity? Are you immune suppressed for the whole weekly cycle, when does it dip or pick up again? Do you have any sickness? They won't give me Emend as I won't need it apparently but I was really nauseous with Emend on FEC and really hate feeling sick/being sick. And final question is how tired it makes you, are you tired on day 2 - 3 and then pick up a bit? I would just like to get mentally prepared and it's the unknown that is the most scary bit. By the way for those of us who've already had their op I've just received a 'Knitted Knocker' from the KnittedKnockers charity. It's a hand knitted softie which arrived beautifully packaged with a little note inside from the person who knitted it. It's actually quite pretty and I'm alternating between using that and my softie. Xxxx
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12-09-2015
11:52
Hi Sarah, I waited to shave my head until it became really sore and a lot of hair had fallen out and it looked very thin. I found it to be a major 'milestone' in this whole process. But after I had done it I felt more in control and was sort of relieved. Lots of mixed emotions. I don't think you need to shave it necessarily today, it took a few days to really start falling out and become very sore. In fact a lot if hair fell out over a number of days and it still looked quite 'normal'. Whatever you decide to do, have a great night out tonight xxx
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02-09-2015
10:21
Congrats to the chemo graduate. 😊 What an achievement to get to the end. I'm sitting here waiting for FEC 3 so hope it goes as quickly for me. Onwards and upwards xxx
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02-09-2015
08:12
Hi Joyce Does your op site get sore and swollen post chemo? I'm finding it gets really sore and tight from day 3 - 10 then goes back to 'normal'. It seems to be getting more noticeable with each cycle. I was going to ask my oncologist today about it but feel reassuured that it's not just me. I love my softie too. X
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