Breast Cancer Care Forum

Good luck with your appointment Nannyval and with your op on Monday .It is 5 years ago this week that I was first diagnosed - still here ( 🤞 ) and still keep in touch with a group of ladies I met through this forum who were a great support .Best wishes Jill x   ... View more

Hi Twinkle, welcome to the forum .You have done the right thing by contacting your doctor as any breast changes need checking out .The vast majority of lumps and changes are not cancer - if you have a look through the other threads in this section you will see lots of people coming back to say that after lots of worry their changes /lumps were found to a have a " non cancer " explanation .Its hard not to think the worst I know but worrying yourself sick will not change anything at all - stay away from google it's not helpful and just gets you more and more anxious .Try to keep busy and distract yourself until you are able to discuss this properly with your doctor .Please also remember that if it did turn out to be breast cancer the vast majority of us diagnosed are successfully treated and are still around to tell the tale.Best wishes .Jill x   ... View more

This is the link to the Cape thread also if you want to post there too . https://forum.breastcancernow.org/t5/Treatments-and-medical-issues/capceitabine/td-p/1327870 ... View more

Hi Soozy ,welcome to the forum ! I got to the end ! Your poor sister sounds like she has really had a hard time with the treatments so far and it must have been very hard for you as a family too .If you post in the secondary section of the forum you will be able to get some advice re Cape and talk to others on the same treatment as your sister.This is lovely supportive forum with lots of positivity no matter what situations people find themselves in so don't be afraid to post here for support or advice .I will post you a link to the treatment section in the secondary part of the forum - there is a thread about Cape .You could also post in the living with secondary breast cancer section also .Best wishes .Jill x https://forum.breastcancernow.org/t5/Treatments-and-medical-issues/bd-p/4496   ... View more

Hi ,welcome to the forum .Sorry you are having such an anxious time .Dont read anything into the speed of your appointment - at the moment times vary considerably - a lot of clinics have capacity to see people more quickly because routine screenings have been cancelled .As Seabreeze has said -the vast majority of breast lumps are not cancer - if it is most people with breast cancer have good outcomes and there is lots of support here to help you through treatment .I am 5 years on now and still here 🤞 🤞 🤞 🤞 ... View more

Hi Delly ,I think someone did post there so not a hoaxer - but wise to be wary .Im still having a lot of problems with joints and bones - diagnosed with a genetic disorder that is behind this but the treatment is only accessible via national funding panel and long process - so still hobbling around on my crutches . ... View more

Not surprised you are feeling deflated even if you suspected it but from reading the secondary threads for the last few years I know that it's a matter of trial and error what works for each person - I hope you strike lucky 🤞 🤞 🤞 🤞 .There seems to be options coming through for triple negative ladies at the moment I hope one is suitable for you . ❤️ ... View more

With the 2 groups Im a member of you just need to click on the group name and you are in .Have you been notified you've been accepted into the group ?  ... View more

I think the guidelines say 31 days after they decide you are " fit to treat " i.e. healed enough from surgery.I had my surgery on the 18th June started radiotherapy on 21st August - that felt like a long time but I was told it was fine. All guidelines seem to have to be stretched at the moment which is very hard for anyone worrying and waiting .x ... View more

Good luck Jencat - maybe because your Consultant has had covid she feels more able to offer face to face appointments to her patients without them having the additional anxiety of contracting it from their doctor ?  ... View more

I'm actually just coming up to my 5 th anniversary of diagnosis ! Had another cancer diagnosis since then and other health issues but currently cancer free 🤞 🤞 .I still remember very vividly how it felt and affected me .I got a lot of support from this forum and I'm still friends with a small group of ladies I met through the forum.I went through the radiotherapy department to go for a scan last week - first time in 5 years - gave me pain in my gut can still come babk and hit you sometimes  - but life really does move on and cancer becomes something on the fringes of your life not central to it .  ... View more

Never a more important time to look after you and just accept work will wait - its only a couple of weeks but it's an investment in your future . ... View more

That's great .You should send some feedback about your Oncologists approach to the Trust. ... View more

I know Herceptin is only licensed to be used in certain circibyabces and drug combinations but I think I've read about it being used with carboplatin ? You could ask about this in the Ask the Nurses section and def ask for a second opinion - maybe also ask the person who oversees your epilepsy for their view and any suggestions x ... View more

Hi Mandy ,you could post this in the hormone therapy section of the forum - there is always discussion about this issue as many people find hormone therapy tough going - very difficult and very individual both in the impact it has in your quality of life and the possible benefit .I had to come off hormone therapy for medical reasons and this does make me uneasy at times although I was seen a pretty low risk given the size grade and stage of my cancer .I will post you a link to hormone therapy section .Best wishes Jill x https://forum.breastcancernow.org/t5/Hormone-therapy/bd-p/4438 ... View more

Hi ladies ,good luck with your radiotherapy .Just a couple of things that may help - I was told the main cause of fatigue during radiotherapy was dehydration and once I increased my fluids I found that I felt a lot better .After the first 3 or 4 sessions they get a lot quicker at positioning you so it is over much more quickly - they did explain why but I can't remember why exactly !! I've was also told  that the machine cuts out automatically if you move out of position which was my fear - the same principle applies to managing the breathing .Every day is one less .All the best Jill .x ... View more

We understand and we are here to listen .It was a sanity saver for me when diagnosed to talk to people who really understood what it felt like .The additional chaos makes everything so much harder .I was a mess when first diagnosed - anxiety palpitations insomnia - my GP was lovely he said don't ever underestimate the impact of being faced with your own mortality it really makes you feel vulnerable indeed . ... View more

If you want to start a new thread -go to the section of the forum you want to post in and click on the big pink bar at the very top of the section called " start a topic"  .If you want to contribute to an existing thread you just click on reply to the last post. ... View more

Hi Mel ,welcome to the forum .It certainly is a very scary emotional time when you are first diagnosed so hard to get your head around and all the terminology used just goes right over your head .The first few weeks after I was diagnosed was a bit of a blur and very surreal .I was 51 when diagnosed,coming up to my 5th anniversary now and so very glad I found this forum the day after I was diagnosed as it gave me so much comfort and support .I still keep in touch with a group of ladies I met on the forum.Fingers crossed for your surgery .Please come and chat /ask questions / vent your spleen when ever you feel the need .Jill x  ... View more

Pawsome - hopefully some misunderstanding but I have advised moderators of this earlier. ... View more