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DiscoD
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25-06-2015
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31-10-2017
08:22
Hi all. I tried the magnesium tablets and spray. I take the magnesium phosphate when I can feel a bad bout coming on and it does work eventually. The magnesium spray is ok but it's very oily so it's putting me off a bit. The tonic water is due to the quinine in it and it is supposed to help but wasn't doing anything for me. I spoke to my oncologist who prescribed me actual quinine tablets 200 mg to be taken on a night. Apparently you have to be really careful with them as there are some not nice side effects (something else for us to look forward to). They seem to be helping but are giving me bad tummy cramps in the day. I have now asked my doctor to change my brand of tamoxifen as I honestly think it's worse when I have mylan brand. I've done a week now on the new brand and 3 weeks on quinine and touch wood I've been ok. Although I haven't taken the quinine for a couple of nights due to the tummy pain. It would be interesting to see if we're all getting different brands if it is related or not. Good luck everyone. Hope things improve. X Xx
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22-07-2017
08:18
Out of interest what brand of tamoxifen are you taking at the moment. It's just that I've been monitoring my cramps as I'm the same sometimes I can't walk and I think I've narrowed it down to mylan brand. I also now carry magnesium phosphate tablets as they do really help.
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21-08-2015
11:53
Hiya jky03 I'm not on the dotax but I do have a pain in my finger nails. Does it feel like when you pull a wick out and you touch it it feels kind of bruised? It's only on my right arm and did start after the chemo but I put it down to the mastectomy and then lymph node clearance. I will be devastated if I lose my nails. I've lost my boob my hair and all I have left is the nails. Your right it's the gift that keeps on giving!! XOXO
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07-08-2015
11:23
Hiya hopeful holly I am having bad headaches as well. Just waiting to see oncologist at the minute see what she says. I'm drinking the water and the alcohol lol. So not sure what's causing them. I'll update you if she says anything. I'm the same as manicmum I think if feels like I have had a bobble tied too tight all over my head and its sensitive to touch. I'm day 15 post 1st chemo and have cut my hair but still have the majority of it left (on my head anyway!!). XOXO Donna
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04-08-2015
07:44
Hiya jky I really feel for you go through all this and not having the full support of your family it must be awful. I know that some people deal with things differently. Have you mentioned to them about some of the forums on here or McMillan site for families so that they can see and speak to other people in the same situation. I know it's not for everyone but it's an idea and I know that I don't post a lot but reading all your positive messages on here helps me, I obviously don't know them but it might be worth a shot for your sake Take care XOXO
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14-07-2015
07:34
Welcome Josie I haven't heard that one. Looks like should be no nausea for me. Although I'm 41 (i have a 10 year old as well). I had zero morning sickness and have plenty of experience with the alcohol!!! Good look tomorrow Donna X
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14-07-2015
07:54
Well done holly. Glad you had a good time. I'm definitely going to follow your example and set something up for around day 19! It will definitely give us all something to look forward to! Am well jell about bette. She's in Leeds tomorrow and I couldn't get tickets! Gutted Xxx
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07-07-2015
11:04
Morning all. Hope everyone is well and enjoying the sunshine as much as possible. Ros hope your first chemo session went well today. This is my first post and I am loving your ladies positive and encouraging thoughts and feelings. I found a lump in April and I honestly can't believe how fast things have happened, I was diagnosed with stage 2 er+ and her-. Although in all honesty I still don't understand what it all means. I had mastectomy and lnb in May followed by a second op for a flap clearance (which is such an unflattering thing to call it) and further lymph node removal. I found out yesterday that Thankfully no more lymph nodes have been infected with the dreaded C and my flap is now clear!!!!! First oncology appointment is Friday so I am thinking that chemo will start any time after that so would like to join your group. I too have a 10 year old daughter who was in the middle of her sats when I had the first op. Bless her she has been a little diamond and I have to agree it is probably one of the hardest things I have ever had to do is to try and explain it all to her. We have been honest though and I think at 10 she understands a bit but I would hate to think I had to try and explain to a 4 year old it must be so hard. We've been making jokes about Cher wigs and Daughter is looking forward to wig shopping but I think I'm going to follow some of your examples and try the cold cap. It's right what they say the two things that probably make us the most feminine are are breasts and hair and not sure emotionally how we will all cope losing both! I agree with the other posts it's not easy for friends to understand fully and the amount of people that said to me yesterday "well at least you can relax and enjoy the summer now" was untrue. Yeah summer is gonna be a blast for us all in It! Although I don't intend to sit moping if at all possible. Looking forward to beating this bleep bleep thing with you all. Sending positive thoughts, love and hugs to you all. XOXO
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