Hello I did 5 years Tamoxifen, followed by 5 years Letrozole and finished that last year. Am I back to normal, no I am not. I can honestly say my stiffness and aches and pains are worse since I finished Letrozole. I have to do about 5 minutes of stretching before I even attempt to get out of bed in the mornings and if I don't I get what I can only describe as muscle spasms which are quite unpleasant. I get up, eat breakfast, then get dressed and then go out for a 30min walk and I don't risk bending over the sink to clean my teeth till after that(yes I know that is awful) By about 10am things are a bit better but if I stand in the same position for any length of times I get stuck again. I go out again in the afternoon again for another hour walk, I live in a village so there are lots of walks I can do. Now I did give myself some unofficial breaks from Letrozole because I was also diagnosed with burning mouth syndrome which is due to lack of oestrogen and my mouth was felt awful. Would I have stopped the Letrozole earlier, well on one of my unofficial breaks my back was so bad that my Onc sent me for a full body scan and then the wait for the result was so stressfull that I went back on Letrozole and stayed on it. It came back clear thankfully. I can't advise anyone what to do because we are all different but I do understand why people stop taking it but I couldn't.
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