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Cath50
Member
since
14-08-2015
6
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1
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08-04-2016
12:15
1 Hug
Hi all, I am 3 months into tamoxifen post lumpectomy, chemo and radiotherapy. and also had to have a hysterectomy a month ago my main problem is sleep disturbance and hot flushes as I have the double whammy of tamoxifen and no overies. i saw my oncologist last week who approved me taking 5htp for the sleep disturbance ( it increases uptake of seratonin and melatonin ) and she also suggested evening primrose oil and acupuncture. in researching these I came across lots of recommendations for taking sage as a supplement for the hot flushes. Looking at all the posts there seems to be a huge range of conflicting info so I had a look on the NATIONAL INSTITUTE OF CLINICAL EXCELLENCE website which makes the following recommendations Menopausal symptoms 1.13.8 Discontinue hormone replacement therapy (HRT) in women who are diagnosed with breast cancer. 1.13.9 Do not offer HRT (including oestrogen/progestogen combination) routinely to women with menopausal symptoms and a history of breast cancer. HRT[13] may, in exceptional cases, be offered to women with severe menopausal symptoms and with whom the associated risks have been discussed. 1.13.10 Offer information and counselling for all women about the possibility of early menopause and menopausal symptoms associated with breast cancer treatment. 1.13.11 Tibolone or progestogens are not recommended for women with menopausal symptoms who have breast cancer. 1.13.12 The selective serotonin re-uptake inhibitor antidepressants paroxetine[14] and fluoxetine[14] may be offered to women with breast cancer for relieving menopausal symptoms, particularly hot flushes, but not to those taking tamoxifen. 1.13.13 Clonidine, venlafaxine[14] and gabapentin[14] should only be offered to treat hot flushes in women with breast cancer after they have been fully informed of the significant side effects. 1.13.14 Soy (isoflavone), red clover, black cohosh, vitamin E and magnetic devices are not recommended for the treatment of menopausal symptoms in women with breast cancer. as you see they clearly state that we should avoid soy, red clover, black cohosh, and vitamin e and magnetic devices so am I wrong to chance taking the sage ?
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20-08-2015
07:21
hi I had lumpectomy and SNB last week and I get my results on that next week. If the margins are clear and SNB ok then I think the plan is to go straight to radiotherapy ( do not pass go do not collect £200) . I am sore but not in pain and considering going back to work after results as I understand it might be another 4-6 weeks before radiotherapy. Any advice or views out there? Will I have lots of appointments to attend? thanks Cath
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20-08-2015
07:08
Thanks lorna, Jo ,Jill looks like 6-8 weeks is the consensus. I'm trying to decide if I should go back to work in between. The hospital gave me a two week sick note after the surgery and that runs out the day I get the results on SNB and if the margins are clear. I feel a bit stir crazy after just a week off. How was it for all of you ? On a more important note I will try Turkish delight but I have been on a CET trial or coffee eclair therapy if you don't know the clinical term. With regard to tears- I have had a few little moments but it's the silly things that have set me off- I think the enormity of it all passed me by or is yet to hit. My cancer was picked up on my first routine mammogram so I had no idea what to expect and just went with the flow. my breast is blue and yellow and black quite a remarkable sight but pretty pain free. lovely to chat to you all. Cath x
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20-08-2015
06:29
Barry ... What a great idea breasts out for a free filling, I think I might try that next time CathCath
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20-08-2015
05:29
Thanks lorna, Jo ,Jill looks like 6-8 weeks is the consensus. I'm trying to decide if I should go back to work in between. The hospital gave me a two week sick note after the surgery and that runs out the day I get the results on SNB and if the margins are clear. I feel a bit stir crazy after just a week off. How was it for all of you ? On a more important note I will try Turkish delight but I have been on a CET trial or coffee eclair therapy if you don't know the clinical term. With regard to tears- I have had a few little moments but it's the silly things that have set me off- I think the enormity of it all passed me by or is yet to hit. My cancer was picked up on my first routine mammogram so I had no idea what to expect and just went with the flow my breast is blue and yellow and black quite a remarkable sight but pretty pain free. lovely to chat to you all. Cath x
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20-08-2015
03:49
Good afternoon lovely ladies. I was diagnosed a few weeks ago and had a lumpectomy last week. I have avoided most of the threads but have been hugely entertained by the vodka sprouts, twiglets, and large amounts of alcohol being consumed in your gang. Reading the 59 pages ( which I did this morning like it was a gripping best seller) I have seen your journeys and can see the peaks and troughs. To those recently diagnosed I suggest you back track and see how worried some of these lovely ladies have been when they were in your shoes. Those first few days are a bad place to be. I am doing really well excepting a really sore armpit where they took the SNB from. Breast healing nicely - I try not to look; off the strong meds nice as they were the constipation was a bummer if you pardon the pun. Back in a week to get my results on WLE and see if I have to have chemo as well as radiotherapy. I try not to watch the crap daytime TV. Short slow walks to the coffee shop or down to the beach - I live in Brighton- good books and the odd film. Anyway keep up the inspirational chat and if anybody can tell me when I might expect radiotherapy to start after lumpectomy it would be nice to hear. Cath x
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