Hi Wiffle......my heart goes out to you. The pain of first TAX can be horrendous......however it should improve for the final two rounds. You are right that you should adhere to the maximum dosage of paracetamol and ibuprofen over 24 hours. You could exchange paracetamol for co-codamol, or ask your medical team for something stronger, i.e. tramadol......however that might 'space' you out and with two boys to care for that might not be too helpful for you. Is there anyone who can help with your boys? I know it's really hard, and if you can try and stick with the treatment. If you talk to your Onc before next infusion, they might be able to suggest something to help i.e. perhaps a return to FEC, weekly TAXOL, reduced dose, more saline flushing between each TAX infusion or different approach with steroids? We are more resilient than we think, and hopefully the impact of side effects will lessen. For many the pain and some side effects do subside, however the tiredness can be cumulative. It is so difficult to offer any advice on how to deal with the side effects other than pankillers (try taking them starting day before TAX next time), warm 'radox' baths, heat wrap (microwave), hot water bottle, mouthwash, lots of pineapple in all guises, jellies, ice cream, crumbly mints, flavoured drinks, manuka honey tea etc. etc. If you can, try and keep a diary for medication, side effects etc. and include how you're feeling.....plan little treats. I wish I could wrap a cloak around you to take away the pain (over 3 years on I can still recall it)......hang in there.......hope you feel more positive over the next few days, and that future treatment is kinder to you 🙂 You take care x
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