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Cs66
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since
02-09-2015
656
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02-01-2020
02:51
Hi all, Good to hear everyone is doing ok and Ellie you are on the mend. How scary for you. i can’t believe it’s 4 years since we started our chemo journey together. I couldn’t have done it without all the support from you all. all is good with me- I’m enjoying life and I’m still very appreciative to be living a normal life again. I volunteer now for Breast Cancer Now on the moving forward course as I found it really helped me. Meeting others who are just at the end of treatment makes me realise how far I have come since those dark days!!! Happy New Year to you all! lots of love Claire xxxx
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23-08-2019
08:50
1 Hug
Hi, All good with me- It’s 4 years next week since I first went to my GP with a dent in my boob and the horrible story started to unfold! I had a small lipoflll op on one of my reconstructions in July, purely cosmetic but did not like being back in hospital! I still find it v traumatic doing anything medical! ive got my annual check up with breast surgeon in September so fingers crossed all is well! I hope all goes well for you Ellie it’s always such a worry after what we’ve all been through! and good to hear from you Fi. its nice to touch base every now and again! i hope everyone is well and happy! Love Claire xxx
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07-01-2019
06:53
Hi Fi and anyone else who still dips in here now and again! Happy New Year to you too. It’s three years next week since my chemo started. In some ways it seems like yesterday and in others it’s a distant memory! It’s lovely to be living life again and I am making the most of my good health as I will never take it for granted again! My aim for this year is to get out and about competing on my horse again. It’s been a long long time since I did anything like that but I feel ready for the challenge now!!! Love and hugs to all and for anyone reading this going through treatment, it does end and life gets better again. Claire xxxx
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29-06-2018
07:22
1 Hug
Great news! I hope everyone else is well and happy too. I'll never forget the support and comfort I got from everyone in this group as we all went through hell together! All good with me. My reconstruction has given me back my self confidence and I'm making the most of it by living life to the full! I've had two beach holidays this year which is something I would not have contemplated pre surgery and I enjoyed every second! Otherwise im working four days a week and spending my free time riding my horse and appreciating everything I have!! love to all Claire xxxx
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06-01-2018
03:31
Happy New Year to you Fiona and all the other jan 2016 ladies. I’m in France skiing at the moment- couldn’t have imagined that two years ago! I agree let’s hope this is the year we put bc behind us for once and for all! Love to all Claire xxxx
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03-01-2018
04:22
Hi January 2018 chemo starters. I just wanted to wish you all well as you start this part of your bc treatment. Two years ago I joined the jan 2016 chemo starters thread after having two mx and lymph node cleArance. The support I got from the other ladies on the thread going through it was invaluable and we all supported each other through the ups and downs. It was not easy but we all got there and came out the other side. Some of us cold capped (I did and I kept a reasonable amount of hair) others braved the shave and were bald and proud. Some of us went down the wig route. We shared our fears and were able to say and share things we might have kept hidden from our families. Two years later it seems like a disrant bad dream. I’m fit and well. I’ve had a double Diep reconstruction and I feel good! I just wanted to say you will get there. Lots of love to all of you Claire xxxxx
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30-11-2017
09:02
1 Hug
Wonderful news Mechele. I have been thinking about you a lot. Relax and enjoy Christmasceorh your family. Claire xxxxxxx
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26-11-2017
12:05
Oh Mechele I’ve just seen your post. How worrying for you. Hopefully it is just due to rads and they are being ultra cautious but I can imagine how you just feel. It’s what we all dread. At Least my new boobs are made out of stomach fat so I don’t have to have mammograms. I still get quite a lot of discomfort on my rads and lymph node side and that scares me. I had annual check up with breast surgeon in September and all ok but I’m seeing oncologist next week for check up. It’s never easy wLking back through those hospital doors! Take care and try not to dwell on it. Easier said than done i know but the docs won’t take any chances with your history so hopefully it’s nothing. Sending love to you and all the Jan 2016 chemo girls. Claire xxx
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04-10-2017
07:15
Hi Ladies, a Look good feel better course is fabulous. I did it about halfway through chemo when things were really beginning to take their toll. It was a real boost and we were given skincare advice, a makeup class and were given a fantastic bag of goodies! Good brands eg Lancôme, Clinique and even a Chanel lipstick. I still use my stuff and I've switched a Clinique moisturiser as it was so good. I booked it by e mail and was given the info by my BCN. It took place in my local hospital. Claire xxx
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02-10-2017
02:34
Hi CK and Sib, Docetaxel is different from Fec and I didn't have any nausea. The side effects don't kick in for a couple of days and then it's like a bad dose of flu. By day 10 or 11 each cycle I was getting over it. I rested loads and slept a lot but I kept in my mind that it would pass and I would feel better. It's a relief not having that nauseous feeling. There are still foods I can't face as I associate them with fec! Remember we are all different and react in different ways. The bonus is that once you get to docetaxol you are over half way!!! Love Claire xxx
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01-10-2017
09:12
Thanks Helena. It's sometimes difficult to put into words the message you want to get across. Also I'm not implying rads is easy- far from it! It's the loss of control over your destiny and putting yourself in to the hands of others which is so hard- especially to a control freak like me! I've spent today moving fencing, chasing my two Shetland ponies who are little terrors to catch, and moving my horse to a different paddock in the driving wind and rain! Very different from two years ago when I was reeling with shock and in tears most of the day. Claire x
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01-10-2017
08:53
Hi Ladies, I'm glad my post has been helpful. I did think carefully before posting as I didn't want to appear smug for having got through it all!!! I just know similar posts helped me see that there was an end to it all and life after bc. Sib the fourth chemo is psychologically hard to deal with. New drugs have different side effects and although you are over halfway it still seems a long way to the finishe line. My chemo nurse said cycle 4 was the hardest one mentally and physically. I just kept on ticking off the days and looking at the calendar as the end got closer. Rads was nothing compared to chemo! This time next year you will all be looking back on it and reflecting. I also felt as if it was a bad dream and almost felt as though it was happening to someone else not me! Probably a coping mechanism. I still find it hard to believe that I went through all that surgery and treatment! Love to all Claire xx
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01-10-2017
07:11
Hi Jencat, I was the queen of googling when I was first diagnosed and of course scared myself stupid over survival statistics. The fear of recurrence is always there, but as you move on its easier to put it in a box and not let it dominate. You are right, once you are actually having the chemo you will feel better about everything. You will have an end date and you can start ticking off the days till it's over. It's not easy, but you will get through it. The chemo monthly threads on the going through treatment board are really supportive as you can talk to other people going through exactly the same as you at the sane time. Lots of love Claire xx
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30-09-2017
09:16
Cold cap was tough Jen , but psychologically it was good for me as I felt it was a choice I could make not something that I had to have. It's not easy and you do lose hair but if you can bear it it's worth it. I just could not have coped with being bald and my thin straggly hair at the end was a small victory for me! I now have a thick wavy head of hair in a blonde bob, which is different from my old hair but I love it!! Xx
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30-09-2017
08:01
Jencat, my heart goes out to you as I know exactly how you feel. All I can say is that the thought of chemo was actually far worse than the reality. I imagined feeling rubbish everyday but actually there were times in the third week of each cycle where I felt pretty well. I did the cold cap and kept a covering of hair which made me feel as if I had some sort of control. I've just read Victoria Derbyshire's book about her breast cancer experience and it really resonated with me. It could have been me writing her words as I felt exactly the same as she did especially over the hair! Big hugs Claire xxxx
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30-09-2017
06:42
I remember a similar post to this when I was at the beginning and it really helped me feel more positive about the future as I was so s**t scared at the time. Hearing from people who had got to the end made me realise if others could do it then so could I! The just diagnosed and wanting to talk to people who understand thread was a lifeline. I remember you on that one Ruth! Glad you! Helena and Ann are positive and well too. There is life after bc! C xx
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30-09-2017
04:42
2 Hugs
Hi Recently diagnosed ladies. I wanted to post on this part of the forum as two years ago to the day I was sitting in front of my beast surgeon and told I had bc in both breasts. It turned my world upside down and at the time I felt as it my life would never be the same again. What followed was very hard. Two mastectomies, chemo, rads, tamoxifen and 9 weeks ago a double Diep reconstruction. However, i've had time to reflect on it all now and I'm in a really good place that two years ago I never thought I would get back to. I just wanted to say to all those of you at the beginning of this difficult road that you will get though it and out the other side. My advice would be to accept your vulnerability at a difficult time and lean on others when you need them. I found this very hard but soon realised it was not something I could do on my own! Luckily I'm now happy and more importantly healthy and live every day to the full. I'm praying it stays that way but make the most of everything I have! Love and best wishes Claire xxx
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22-09-2017
09:44
Hi, I had a double Diep seven weeks ago. I also had a caesarean 22 years ago and it was not considered to be an issue. They did find some scar tissue joined to my blood vessels when they opened me up but were able to cut them free with no problem. New stomach great and boobs fantastic. I've healed well, I'm back to work full time and I've even ridden my horse! Good luck Claire xx
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17-09-2017
06:46
I'm two years from diagnosis. Treatment finished June 2016. I'm well and happy and in a very good place mentally and physically. I had a double Diep reconstruction 7 weeks ago and despite it being a very long op I've bounced back and I'm delighted with the results. Now I can reflect on my bc experience I can see there are actually worse things that can happen. I have a very good friend who has Parkinson's. He's got to live with that for the rest of his life and it's not easy managing the symptoms. At least (all being well) once bc treatment is over the majority of us can resume normal life. Claire xx
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16-09-2017
09:10
Hi Rachael, I would take good prognosis as a very positive thing. I too have a good prognosis despite one lymph node being affected and a tiny tumour on my chest wall. Hopefully chemo and rads have done their job, so I now take every day I feel well and happy as a good sign. Breast cancer took 10 months of my life. If I allow the fear of it returning to dominate then it is winning and I won't let it do that!! Enjoy life and live every day to the fullest! Love Claire xx
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