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Elaine67
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since
21-09-2015
9
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28-12-2015
06:00
Hello ladies - I hope you all had a good christmas under the circumstances. Lesley - I will probably hop over to the chemo chat that you suggested - I'm 3 weeks in now - achy achy bones! I still have my hair but almost hoping i will wake up tomorrow and it will not be there now as I'm tired of waiting for it to go. Wow this feels like the longest 'journey' ever doesn't it? I feel like I've learnt more about myself in the last 3 months than I have in the last 48 years! Wishing you all health and a much much better 2016 Elaine xx
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11-12-2015
12:45
1 Hug
Hello ladies - Gaynor - hope you're feeling better - I'm a reader and occasional poster on this thread 😉 I'm starting chemo tomorrow and as mentioned in a previous thread I have just shaved my head - Thought it might be useful to some who need to make a hair decision to take a peak - it's on youtube here - https://www.youtube.com/watch?v=jlW4qPEHzAQ Nervous about chemo but just want to start now - and therefore be closer to ending it! Hugs to anyone who needs them - I have lots to give at the moment (apparently you need at least 8 hugs a day to maintain a happy outlook - although I may have just made that up for my own benefit 😉 xx
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22-11-2015
02:48
HI All - Delly - triple negative means that I have no oestrogen/progesterone/HER2 receptors in my cancer so it will not respond to treatments to suppress hormones (like tamoxifen/arimadex/herceptin) -i.e. suppressing my hormones wouldn't make any difference as my cancer is not 'fed' by hormones. Triple negative accounts for about 10-20% of cancers and tends to happen in younger women. The only treatment available is therefore chemotherapy and radiotherapy - that's the long winded answer to why I'm having chemo and radio even though I have no node involvement. The scariest thing about triple negative is that it has a higher recurrence rate than other breast cancers for the first five years and I think it's more like to come back to other areas of the body. There is also a 30 per cent chance with triple negative that it's hereditary and that I have the BRCA1 gene (my mum also had bc) - in which case I will decide to have a double mastectomy and ovaries out after my current treatment starts (oh yes - it just gets better and better!) Charlie - I followed you onto the other board - really pleased for you that only one of the 5 was bc. x
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20-11-2015
11:50
Hi All Delly - Thanks for asking after me - So I had a lumpectomy in October but unfortunately they didn't have a clear margin so I had to go in for another op last Monday. I'm waiting to hear next Wednesday whether or not they now have a clear margin. If they do, I'm starting AC chemotherapy followed by radiotherapy around 9 December. The most difficult bit of news that I'm digesting at the moment is that I have triple negative bc which is a bit of a blow - also there is a strong possiblity that I am BRCA1 positive as my mum has had bc too - I will get genetic tests back in the middle of January. On the plus side there was no lymph node involvement. I'm going for a full head shave the day before I start chemo (I have hair down to my waist and can't bear to watch it fall out) - I'm strangely looking forward to shaving my head as it seems to be the only part of this that I have any control over! Charlie - you will feel so much better when you know what you're dealing with and can start to take steps to deal with it. I'm so sorry you've had this when you're so young. I currently reading a book called the C-word which is written by a lady who had bc at about your age - maybe not for now, but when you know what your treatment plan is it may be helpful. I think you are getting your results today and I am thinking about you.. Elaine xx
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28-09-2015
09:21
Hi everyone, I just wanted to say hello. My name's Elaine and I am 47 with 2 boys - 4 and 7. Not sure where to start but I was diagnosed about 2 weeks ago with grade 3 cancer - at the time they said the lump was small -1.2 cm I think - and that they would do a lumpectomy. I have my mri tomorrow which I'm guessing should either confirm, or deny, that. Results on Friday. The first week I just cried, but the second I've been really up and down - sometimes euphoric just to be alive, other times getting through it with black humour and other times reverting to crying. As I've read over and over on here, the wait is the worst bit - completely doing my head in and I'm just at the start of this life changing journey. I have an operation booked in for the 15th, we're supposed to be moving house on 23rd and I've just been offered a new job - talk about all at once!! Can any of you who have already had your operation let me know how long you were in hospital for and how you felt the week after? My mum had a mastectomy 7 years ago and was on a drip for a week - is that standard or would it just be for a lumpectomy? Thanks Elaine x
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28-09-2015
08:56
Thank you Jill, Sarah and Marie for replying to my post. I haven't been back on here for a while as I think I needed some time to digest the fact of having breast cancer. Marie - I'm so glad yours hadn't spread and am hoping I will have the same. I have my MRI tomorrow and will get the results on Friday. The whole thing is so nerve wracking on so many levels ... I will go onto the newly diagnosed thread that you suggest Jill and Sarah Elaine xx
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21-09-2015
03:54
Hi there I am 47 and was diagnosed last Wednesday with a grade 3 lump in my left breast. They don't think it's in my lymph nodes but my mri is on 29th September and I'm guessing I will know more then. They are going to operate within the next 3 weeks or so. My worry is this - Since diagnosis, I now have memories of heavy night sweats about a year ago, also of extreme nausea about 2 months ago as I was trying to get to sleep. Could the cancer have been in my body for that long without me knowing? I'm a busy mum of 2 small boys so have put down my recent tiredness to this - but I'm guessing the tiredness is my body trying to fight the cancer. Since diagnosis, my anxiety levels have been through the roof and I can't stop crying. I'm completely paranoid that I have cancer elsewhere and since diagnosis, I've been feeling really nauseous and have aches everywhere in my body. I know noone can give me any answers, but I just need to express this somewhere as I don't want to scare my husband.
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21-09-2015
03:15
Hi Star I'm also recently diagnosed (last Wednesday). I'm 47 with two small boys (3 and 7). I took my husband with me as a friend who has just come through the other side had told me to as she was on her own when she was diagnosed - otherwise I would have gone on my own in the complete belief that it wasn't going to happen to me. I'm so sorry you went through that on your own - do you have friends around to support you now? Your surgery sounds similiar to what I'm going to have - I have my MRI booked in for next week. I agree that the wait is the absolute worst part of this. Message me if you would like to Take care of yourself Elaine x
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21-09-2015
03:05
Hi there - Is there anyone from Brighton newly diagnosed who would like to hook up? I'm 47 with two small boys (3 and 7). I was diagnosed last Wednesday at the Park centre and am waiting for my MRI scan on 29th - suspect this is going to be a very long week. Swinging from being really positive to totally despairing and struggling to sleep (hence this post at 3am!). My husband is being totally supportive but I know that only someone who is going through the same thing will understand. x
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