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coffeetogo
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since
02-10-2015
12
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30-03-2019
04:41
Thank you for that - I had no idea oestrogen was produced elsewhere too, sadly my limited biology knowledge is from 1970s science lessons ,which were mainly plant not human related :-)) I hope my BC nurse can establish the options from Oncology sooner rather than later. Big thanks again for your reply - C
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29-03-2019
03:04
Hello - I was diagnosed age 44 ER +8 HER + 8 no lymph node involvement - had WLE in 2015 rads x25 plus Zoladex 2 years and now into my 4th year of Tamoxifen. Strong family history (maternal Grandmother breast in 40/50s Mother Ovarian in 60s) but BRCA negative. I have had an array of gynae issues after the Zoladex ended and, long story short, am having a private oophorectomy 5/4. In my mind, I had always assumed this would remove the need for Tamoxifen - but I understand that may not be the case! I have been trying for 6 weeks to get a response from my BC specialist nurse but it’s impossible:-( Whilst I wait for an answer from her, can I ask if others have experienced oophorectomy and what their action was on medication after?
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03-06-2016
01:11
I finally have my MRI results - yay - all clear - yay again! Such a relief after 6 weeks of waiting.
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13-05-2016
12:37
Had my Mammogram results in post today - all clear!! Just still waiting on the MRI results but unfortunately my BC Nurse hadn't got back to me & is now on leave 😞 Have left another message at the sister hospital to mine & hope to hear something soon
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10-05-2016
10:38
So, had my first post treatment mammogram yesterday - woman who performed it was really great. No hanging around in the waiting room, in fact was seen early. She was aware of my history & she made sure I was squashed for as little time as possible! She said results do take 2 weeks but I can contact them if I am getting concerned, to see where they are in the "queue". She said I can organise the next annual MRI & mammogram for the same day & apologised for the confusion & having to chase up the mammo - seems the consultant hadn't been clear on stating that I need both. Yes, it hurt but thankfully it was over super quick. No MRI result yet & its been a fortnight now but fingers crossed they come soon!!!
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06-05-2016
10:21
Just had a call back, today, from my Nurse Specialist - she said I just get the results in a letter so no appointment being made. Not sure how I feel now - those results are there and I still don't know what they are! And I also forgot to ask when I might get them so had to leave another message (which I feel stupid about, knowing there are people in more need of her time than me). Got my Mammogram Monday so going to keep myself distracted until then 🙂
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01-05-2016
09:28
Thanks Jill - feel like I've been confused for a year!! Wishing you all the best for June :-))
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30-04-2016
10:16
Hi - thanks for the reply - I'm not really sure what each of the scans show but I thought that the MRI would give more info? I am now scheduled for a mammogram on 9/5 & have left a message with my clinical nurse specialist asking if/when I should have an appointment arranged to discuss all the results. When I mentioned to her last week that I'd had the MRI, she seemed to think I wouldn't be coming back to see anyone until November! I hope to hear from her on Tuesday - I do hate thinking that someone has my results & I don't but then I think is it better to have all the info at one time, even if I have to wait a few more days? So confused!
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28-04-2016
01:24
Hello all! I was diagnosed age 44 in April 2015 with a grade 2 tumour in my left breast - no lymph node involvement. Had WLE 25 radiotherapy and have been on Tamxifen and Zoladex since May 2015. I have a family history (mother age 65 and grandmother in her 40s both deceased) but tested BRCA negative. The Genetics counsellor recommended annual MRI as well as Mammograms and my consultant was happy to agree. Had my first MRI on Monday &, after checking with my Specialist Care Nurse, I am now waiting on a Mammo appt (seems they forgot about that bit!). My query is - should I wait for the Mammo before I try to get my MRI results? They should be available from tomorrow but don't want to seem like I am jumpng the gun? Any advice??
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02-10-2015
11:14
Thank you for taking the time to reply - I really appreciate you sharing your experience. Glad that you are doing well, these are some big decisions to make. I hadn't thought about the radiotherapy and healing - my surgery was in April & my testing was during my radiotherapy course. I'm the first family member to be tested as my mother & her mother are deceased. The results took about 10 weeks and I think I have some more waiting ahead for the risk calculation. Oh well!!
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02-10-2015
02:28
Hi I am 45 & following a visit to Genetics have just got my BRCA 1/2 results back as negative. Due to the family history (Grandmother <50 breast cancer Mother Ovarian) & personal history (Grade 2 diagnosis April this year wle radiotherapy 23 sessions incl 8 targeted boosts) that qualified me for testing in the first place, I am apparently still considered high risk. I found my lump just after my 45th Birthday (!!) I have been told risk reducing surgery may be discussed if I wish and a risk calculation is being performed by the Genetics Clinic. Anyone been here & have any words of wisdom for a really confused person? I am on Zoladex & Tamoxifen (feeling ok on these though not loving the early menopause ... Needs must though!!).
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