Breast Cancer Now Forum

So as the day looms closer, although how we got to this day is beyond me, it is in fact tomorrow at 16:40. We go to discus the secondary and its potential spread to spine. Found via CT scan on 30th December left neck, recorrunce, branching down T1,  underarm, top of lung, and trachea, although that bit was a bit of a blur. Seemed to remember no liver mets. What I do remember was inoperable!!   So (again) sorry,  there will be so many so's and sorry's I just know it!   I'm just plain SCARED! What if there is NO treatment plan!  What if I am worst case senerio? I have sat trying to go through every senerio that my unlimited SBC knowledge will allow me to go or research to! Also (nearly a so) my appt is very late so I suppose another appt will be scheduled to discus further if an option is available, or am I just rambling now?   thanks for reading Tina     ... View more

Hi ladies,    I have just had the news that I have a 10x5 mass bc recurronce in my neck, inoperable. So after an MRI on Sat 16th we go to visit Onc to discover the ins and outs, spread of spine as already effecting T1. Lung (hoping Braca1) as more options to treatment, etc and if there will be a treatment plan to try and shrink the blighter! I suppose the difference this time is the "inoperable" bit. Has anyone experienced anything similar. Trying to remain positive here.  Regards Tina x ... View more

  Hi, I seem to to have found myself here again! My first brac1 diagnosis was in 1993 I was 24. Treatment plan, lumpectomy, chemo, Tamoxifen , and radio. My second diagnosis was in 2004. Treatment plan, double mastectomy, chemo, radio, reconstruction no barc1 or herc2 Since my first diagnosis to left breast in 1993. After treatment I began to experience altered sensation and weakness in my left arm and hand. This left me with an appointment for a nerve conduction study, and and MRI examination to further investigation. The results in around 2006 came back showing as damage from radiotherapy to my Brachial plexus, In 2014 I was invited to attend the Bath Mineral Hospital that offer a two week in-house rehabilitation programmefor patients experiencing damage, pain, scycological damage due to this awful thing. So I met with an Oncologist, And a great team, who worked so hard. I mention the Oncologist. As she never seemed concerned with the gradual hardening orotund my neck. Upon my return from the rehabilitation in bath, I came back relaxed, upbeat, and prepared to continue with the exercise plan. I thought the programme was brilliant, and still do. What I wasn't prepared for was the aftermath that came with it when I came home. My pain levels went through the roof. I went fr being on 0 pain meds to Morpine patches, including others. I was zapped of energy, and generally felt unwell, although a bunch of bloods came back ok! How my employer kept me on is beyond me! So skip to November 2015, I visit a pain specialist, who in turn said "as a matter of opinion" I wil reffer you to a local Oncologist. Who in turn referred me to have a CT scan, and MRI just for my own piece of mind. Had CT scan on 28th Dec 2015. By the time I got home my mobile was calling from a Breast Care Nurse, asking me to get myself to AnE for treatment for a blood clot they have found on my neck, and that we will have you back into clinic to arrange three biopsy to be taken from the hardening of your neck, After a consultant and junior Dr looked me up and down a few times, medicated me for the blood clot (daily jabs in tummy), we finally here them utter Acute Oncology! Thanks, the moment we knew we were back. Once on the ward a nice Oncologist was sent to see me, with the news we have a recorrunce 10x5 mass in my left neck, inoperable, branching down under my arm, pushing toward lung, also wrapped round blood vessel, and T 1 front and back. Bit to much to take in at this stage. I hear LUNG, INOPERABLE. And we were told that they were hoping that the biopsy were going to detect BRAC1, as more options open to us. We were left to take this in, and I was released NYD with sterroids, sleeping pills etc. Oh and to wait for the MRI on Sat 16th to see if I had cancer to the spine! The wait and sheer terror is the worst, Since then I have lost a stone in weight, and taken to my bed because I don't know what else to do. I have family who can't understand why I am not ready to fight yet, and the simple thing is that, if I don't yet know what cancer, stage, prognocis etc I am fighting for, is there going to be any point to a treatment plan. I need my family to understand that there must be a certain degree of fight, positivity, support, and digniy for us all to do this, and if I can do it with dignity I will. Thanks for reading Tina   ... View more