Hi i have also just been diagnosed with fibromyalgia and because I am on blood thinners I am unable to take anti inflammatory drugs. I’ve never heard of this condition, and all the symptoms I had had been put down to the cancer and my reaction to the drugs like Letrosol that I had been given as they had all caused me major joint pain. My new drug is Anastrozole which I take with Abemaciclib and so far nothing has changed. My cancer appears to be responding so that is a good and positive thing. Any advice on how to manage the fibromyalgia would be appreciated. Due to my reaction to the cancer drugs I had to cut back on my exercise as I could hardly walk, which for a hill walker has extremely frustrating. Lack of exercise has not helped with gaining weight as it can’t help with my joints. I can last about an hour walking before I just can’t do anymore. I find that part so frustrating and debilitating but at last, after two years I now know why and I’m not going mad. I have a very limited appetite, but sweet things are a killer I was more a savoury person but now I’d kill for chocolate, it’s like a pregnancy craving and I had apples 🍎 for that!! I have upped my swimming and will hopefully restart my canoeing but the prospect of saving myself or my kayak is very slim at the moment😂😂 Try to keep smiling even if this feels like a mad carousel at times, which it does, with an ongoing onslaught of drugs, treatments and conditions and all we want to do is get off because there are times when it just gets too much. It is what it is and the best we can do is try and cope with it and not beat ourselves up when it gets the better of us and we just don’t want to face the world. Someone once said to me when I was not copying too well - ‘stop, breath and refocus and when you’re ready and it doesn’t matter how long that takes, then rejoin the world. All the best to you both.
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