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CatherineJ
Member
since
20-01-2016
47
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6
Hugs
27-12-2016
10:08
Thanks for replying. I'm seeing my oncologist tomorrow, fingers crossed!
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27-12-2016
01:42
Hello everyone. Hope you've had a nice Christmas. I have Stage 4 Triple Negative breast cancer, and have been reading about a clinical trial offered at several places in the UK - has anyone got any advice on how you go about getting on one, how fast can it happen and who sanctions these things? I've emailed the trial directors but no reply. Many thanks if anyone can offer any information.
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20-12-2016
05:42
Thank you all for replying. I did go for a second opinion last week and he said Carboplatin, so I will ask again about that tomorrow. So many choices at each stage!
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20-12-2016
04:14
Hi, I'm new to this area of the forum but have just been told I have bone mets and possible liver mets. I'm triple negative. My primary was found last Christmas and i was considered Stage 1b so this is a real shock. I've never had chemo as my tumour was considered too small at primary, so I had lumpectomy and rads. My question is: I'm going to have chemo next week and I've read that a lot of triple negative ladies have Carboplatin. My onc is suggesting Xeolda and Capecitabane. How can I find out if she's right? Is this combo because I've never had chemo before? We see the onc tomorrow for the final decision and I'm trying to learn as much as possible. Many thanks for reading this. X
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16-12-2016
09:34
Hello Bandit and everyone else. I've just been diagnosed with secondary bone mets after finding a lump in my neck. Not started treatment yet. How can I find that document you mention from the lady who knows about all the different drugs please? I'm triple negative and my primary was found last Christmas and everyone thought I was cancer free after that round of treatment, so this is a really big shock. Thanks. X
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05-12-2016
08:22
Hi Downbutnotout, we spoke earlier in the year and unfortunately I'm back on here - can you tell me how to PM you please?
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27-09-2016
09:22
1 Hug
Hi Rubycat how are you doing? I'm just waiting for my appointment for my first mammogram and also, like you, didn't haven chemo. Most days fine, but today need to get a handle on my wobbling!
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07-09-2016
06:19
Hi Amberstone just wondered how you were doing now and if you needed any more treatment. I'm TN and had 20 rads.
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07-09-2016
06:11
Hi Ruthie, I was just wondering how you're doing as I too didn't have chemo. 9 months out now since surgery and rads, and doing ok apart from the usual fears we all have on here.
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04-07-2016
10:47
Hi Bimbo, at last I've found someone else who didnt have chemo. Thank goodness! I've got my appointment for my first mammogram after lumpectomy in October. I had 20 rads in March. How are you feeling? My Breast Care Nurse told me that after my mammo, I will need to wait 2 weeks for the results, though they will try to get them back to me as fast as possible. It's such a nerve-wracking time, isnt it, as it is for all of us ladies. Keep strong and positive. Best wishes. Kate
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19-05-2016
04:23
Hi Yellow, how are you doing now? Shame more ladies don't pop back on to tell us newbies how they are doing. x
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19-05-2016
04:16
Hi Chrissy, how are you doing now? The tiredness is such a fickle thing isn't it?
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19-05-2016
03:55
Bumblebee, did you have chemo? I didnt, and some days get very worried about that.
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11-05-2016
05:14
1 Hug
Hi Kim I was diagnosed in Dec 2015 with a 6mm TNBC and had a lumptectomy to remove it. My surgeon got clear margins and no lymph nodes were involved at all. So I only had 20 radiotherapy sessions at The Christie in Manchester. No chemo. They said I could do chemo if I wanted to but as the tumour was small I was borderline. There is a set of NCCN Guidelines used in the USA and you could look these up to see what the protocol is over there for your situation. I also tried hard to listen to my body and its instincts. We are all different and I just didnt thing chemo was the right thing for me. Only time will tell and I will post on here. But take all the advice going and do your own research. Sending best wishes and a hug.
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14-04-2016
05:59
19 rads done, last one tomorrow. Had handsome guy drawing green dots on my boob today but left dignity at the door weeks ago. Am truly knackered now, but skin doing fine and just looks like a bit of sunburn, nothing E45 can't handle so far. Good luck everyone going thru this. x
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14-04-2016
05:56
Hi, I had 3 courses of Zoladex 12 years ago for endometriosis and well remember the joint pain. But I have no experience of your other medication. The things that helped me on Zoladex were huge amounts of water, Vit C and Omega 3 but I had to jiggle the dose with Omega 3 as too much gave me a headache. I got very headachy on Zoladex too and honestly, walking the dog in the fresh air was as good a remedy as anything. Good luck, try to really listen to your body in peace and quiet several times a week, it will probably tell you what else you can do to help.
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11-04-2016
03:57
Hi all, rad no 16 today (the first of my 5 boosters this week) - bit red but applying E45 twice a day (was using Bio Oil which was great for first 10 but then didnt seem to be enough). Nipple very sore but there's nothing to see. Think will burn bra on Friday! Anyone else expereincing pain behind the boob though? I told my rad team but they just said it was normal. Is it?
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03-04-2016
02:27
Hi Lizze, please can I ask what size your tumour was, and were your triple negative? Thanks. X
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31-03-2016
09:43
Hi Choock, just wondered how you are and did you have chemo for TNBC with no node involvement? x
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31-03-2016
09:33
Hi Lizaki, I had rad no 9 today and am fine. Only side effect is tiredness and today for the first time, a little redness. I put Bio oil on twice a day, every day and it seems to help so far. I go tomorrow for my second planning appt for the 'boost' too. Will let you know how it goes. Good luck. xx
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