Hi blondeambition - such a shame that there was a tiny bit of invasive that was her2+ otherwise like me you were on the no chemo route - but we are lucky to have the wonder drug herceptin. Mine was just under 2cm invasive and dcis although not sure how much invasive. Also ER+ pr+ so will be having hormone therapy and three weeks of rads after chemo.
Good luck to all the new chemo starters - will be thinking of you all xxx
Thanks for the birthday wishes Carole & Sarah.
I'm glad you feel ok so far after no.2 Carole. Are you having FEC only like me, or FECT?
Sarah it's impossible not to worry about chemo before you start in my opinion. It really does seem to be the case that everyone is different in the way it affects them. My first hasn't been bad but I'm now worrying about the 2nd one!
Nevermind, we'll get through it together:-)
Thanks Carole. It's my birthday next Friday & I'm looking forward to a lovely day & a yummy meal in the evening, before the 2nd cycle the next day. Hoping the SEs won't be worse this time around.
How are you finding it?
I'm going to get my shoulder length hair cut before I have my first chemo session next Wednesday. I don't know whether to get it cut tomorrow or to wait until the last minute. Also, while the oncologist recommends I try the cool cap, the chemo nurse says not to bother as with the combination of drugs I'll be getting, I'll most likely lose all my hair anyway.
Hi Sarah, another tip I read on here is buy a silk pillowcase as apparently it helps the hair during the night and doesn't pull on it. There are various shampoos that ladies recommend on here. I found a shampoo bar in Lush who have all natural products and there is also one that stimulates the hair folicles naturally. I would recommend giving the cold cap a go as you can always take it off if you don't like it, but it is a personal decision and the downside is it prolongs your stay by just over 2 hours. Jakeb hope your chemo was ok today and you have been resting and Nico good luck for your next chemo xxx
Popping in again from my August 14 thread & have just been reading through your posts. Undoubtedly lots of concerns & questions...just exactly the same as myself & the lovely ladies I journeyed with a year ago.
Re cold capping - I had long hair & took the difficult decision to choose a short cut in preparation for the cold cap. It wasn't the nicest of feelings. I found the first 30-40 minutes & the last 20 minutes the hardest. It does mean that you're in for an age longer than your chemo but I really thought it was worth it. My hair did shed after my 2nd chemo but it only thinned in patches (luckily I had plenty of thick hair which covered the patches in the main).
Here's a tip....take some boiled sweets to suck whilst ' brain freeze' kicks in. Keep occupied.....if you have a chemo buddy with you take things to look at/do together. There'll be some times when you yourself don't want to speak but tell them to keep talking you through it.
Keep some flavoured ice cubes in the freezer at home. My mum bought me frozen pineapple & mango cubes...they were just nice to have to freshen my mouth if I felt a bit yuk after chemo. Ice lollies another handy thing to have in stock too.
Make sure you take your anti-sickness drugs even if you don't feel sick! & drink plenty of water.
Hope this helps you along for now & good luck to those of you starting treatment over the next few days!!.
I'll pop in again soon to see how you're getting on.
I thought some of you in this thread may find the BCC 'Breast cancer and hairloss' support and information helpful so here's the link::
For further support from BCC during this difficult time including our 'Someone like me' service please follow this link:
Hi bravescholar - I think we all go through a guilt trip on this worrying about everyone else but I've found that children cope far better than we think they can. I was diagnosed just as my daughters were taking their GCSEs and A levels and op 5 days after my youngest daughter's 16th. We had booked for my nieces wedding in Italy and thought I wouldn't be able to go but I did and it was the best holiday, My 2nd taxol is on the day of my youngest's GCSE results and my 3rd on the day of my oldest daughter's A level results, (having weekly chemo) but they are good distractions. The icing on my cake is that my sons partner is expecting my first grandchild in September - my son is a quite a bit older than my girls and they have been trying for so long. I know it will be your first chemo and you will be worried - I was, but I hope the distraction of your son's birthday will allow you to enjoy the day before chemo. We will all be thinking of you and sending virtual big hugs xxx
hi Blondeambition - I'm also on Herceptin and had first one last Thursday and have felt fine with it so far but early days. I bought my wig from a shop in west London and I think they give a list on this site. Tony and Guy also advertise a service but when I rang a couple of the designated shops they were a bit vague and didn't know about the service - think it' s a new thing maybe xxx
Thanks, sarahhd=1, and yes, the support on this forum is great. Keen (if that's the right word) to get on with it now, despite the nerves.
Hi Sarah hd,
Yes I am using a soft toothbrush. I didn't take paracetamol before cold cap but I know some do. Glad I could help x x
Hi Nico, Sarah and everyone. Thanks Codisue for those good tips - didn't realise you could get Aveeno on prescription and have been buying it from Costco which was a lot cheaper 3 tubes for under £6 but will ask my GP. Sarah I have the Dr organic nail oil from Holland and Barrett but think any nail oil will do. It's a pain having to wait but you'll be fine as soon as you get going and if they've said it'll be bank holiday should think they will keep to it. Nico glad your first one was ok - I joined you in the July thread but delayed mine as had holiday booked. I was thinking of cutting my shoulder length hair short but bcns said to leave it as if I lose it from the top I can do a sweep over! I must admit I did get my wig and she's sitting on the head stand at the ready. Feeling ok today and getting myself psyched up for chemo no 2 on Thursday. Been to work this week part time but not sure how much longer I'll be able to go in, just taking it week by week. Big hugs to you all xxx
Hi. This is my first post. I'm starting neoadjuvant chemotherapy (AC-T) on 19th August, the day after my younger son's birthday and the day before my older son gets his GCSE results. I have invasive lobular cancer in my right breast and it's also in the axillary lymph nodes. The plan is to follow chemo (eight two-week cycles) with a mastectomy (right breast) and full lymph node clearance, then radiotherapy and hormone treatment. So it looks like we're in for the long haul. Don't have much to say other than I'm as apprehensive as everyone else seems to be and am keenly seeking tips that might alleviate any problems/complications that might arise. Good luck my fellow August travellers. We can try to be brave together!
Hello Carole & August Starters
I started the July 2015 thread because I expected to start then but actually had my first chemo on 1/8. So I'm one of you really! I'm having FEC 75, to be followed by RTX & then 10 years of tamoxifen. I agree it feels like a very long haul but needs must I guess.
I was dreading chemo, especially as I had the whole of July to anticipate it. However, so far the worst I have experienced is about 5 days of feeling totally drained, light headed & foggy. By day 8 I was ok again. I have developed a very spotty chin, which I gather may be a side effect of the steroids, so hope it won't get worse with each cycle.
My hair is getting lifeless but not falling out yet. It's short but I may get it cut even shorter to make it easier to deal with. No idea when it will start to leave me!
Best wishes to you all on the journey no one wants to be on.
Morning August newbies, I am from the November starters and i too had FEC T. Not sure if you are aware but you are entitled to free prescriptions now and Aveeno is available on prescription...there have got to be some perks to this awful disease. Also for hands and feet I was advised by past BC lady to use Udder cream which yes, was originally for cows udders but it was excellent. You can get it on Amazon ......Udderly smooth cream with urea was the one I used about £8 big pot.My hand and foot probs only appeared with T and this really helped. Also some may lose their brows and lashes, as soon as I had a bit of stubble back I used Grande Lash MD also on amazon but about £42 but well worth it and within 6weeks had nice long lashes...better than before. Good luck on your journey ......not a nice one but worth it and you can do it, most of all stay positive! This site has been a godsend during active treatment and still is now and lots of ladies on the threads have arranged to meet after treatment as we have. Love to all Sue xx
Hi there - I had my first chemo on 6 August and am having 12 weekly Taxol and Herceptin and that will be followed by letrozole. It was a bit of a long day as also had port fitted. I am trying the cold cap and it was ok - haven't had any hair loss yet but expecting to lose some after second/third chemo. I will be having my second when you start yours JakeB so good luck. There are some really good tips from ladies on this site and I have bought some Aveeno cream for hands and feet and some oil for nails. I have also ordered some wide hairbands and scarfs. Like Sarn66 said just rest when you need to and I've also been drinking lots of water to flush out the toxins xxx
Just thought I'd pop into your thread to wish you all luck.
I formed the 'treatment starting August 2014' thread so am a year on from where you are now.
I am Cancer free but still have ongoing treatment. Had chemotherapy & radiotherapy. Now having herceptin every 3 weeks & am on tamoxifen for 5 years. Yes.....they threw the whole lot at me but I figured the more treatment you have hopefully the better chance of keeping the bloomin disease away!
I also cold capped & although my hair did shed, I managed to retain most of it (in a short style).
Just to give you something to aim for.......a few of us from our August 2014 thread met up just this Saturday gone....we had champagne afternoon tea at The Ritz which we had promised ourselves when we felt rubbish. It felt great to be a year on & actually doing it!!!!
You'll go through so much together on here....I know I've made some very special friends for life on this forum.
So I wish you all well & will pop in to read how you're getting along.
Stay strong ladies..... You can do this!!!
I had my first chemo on 30th July, so nearly Aug. Chemo was fine and also used cold cap which wasnt too bad either. I felt fine until the following day when I felt a bit light headed, tired and breathless. Also felt like I had a hangover for a few days. By day 5/6 the fog began to lift and I was much calmer. I have had a few mild side effects but nothing I couldnt handle. A sore mouth and throat was easily sorted by some gel that the Oncology Nurse gave me and I am also using corsodyl mouth wash everytime I clean my teeth. I had a few aches and pains so took some paracetamol and ibuprofen together which helped. Slight dry skin rash on back of my hands but unperfumed moisteriser kept that at bay and now it has gone. For constipation I had some prunes and prune juice. I had 1 day of diarrhoea but used tesco own brand anti-diarrhoea tabs which worked immediately. Most importantly drink LOADS OF WATER, they recommend 2 litres a day. It helps to wash the chemo through your system and makes you feel better to be properly hydrated. Dont beat yourself up if you just feel like staying in bed for first few days, do what your body tells you to do. You will gradually feel brighter I promise and dont be afraid to call the Oncology Nurse about anything that worries you, it doesnt have to be urgent.
Hope all goes well for you, if I can answer any other questions pls feel free to message me.
Hi, I'm starting my first chemo (FEC T) on thursday (13 August); I would llove to know if there are any other newbies out there. Feeling a bit nervous at this end!