I feel for you, I went through all the same emotions when I was first diagnosed with a brain met.
I was diagnosed with primary Breast Cancer (triple negative) in Feb 2012. I had a lumpectomy and the
sentinel lymph node removed, which was clear. So no other lymph nodes taken out. I thought I'd beaten it and I eventually had my wedding in May 2013 (which was postponed from 2012). Then towards the end of 2013 I started to struggle at work, my concentration and coordination wasn't right, then I found my left arm became weaker. My GP said I was depressed, but I decided to go to my oncologist and he determind straight away I had a problem and arranged an MRI scan and CT body scan. I had a 3cm tumour in the front/right side of my brain and a lymph node on the original BC side was swollen. It turned out the lymph node was triple negative as well but they are saying the brain met could be different. We are still waiting for full results. I was shocked .... I was told with the sentinel lymph node removed it couldn't spread any further. And it had also gone to my brain. I'm still not sure how this happened and even my oncologist cannot explain it. Anyway, the good news is the brain tumour was operable and it was completely removed in March (3 hour surgery) and now I'm on a tablet form of chemo to address the lymph. I also have a spot on my lung, but they have not been able to confirm if that is a met or not.
The chemo I'm on also crosses the brain/blood barrier, which apparantely not all chemo's can do. You find out so much when you start doing your own research, rather than taking everything for granted !
Its terrifying when you find out you have something in the brain, but once you have a treatment plan you feel you have some control and you will feel better. Ask lots of questions about the drugs, surgery etc and then you will be more confident its right for you. I have to pinch myself to believe I've got secondaries as I feel ok and the chemo I'm on has mild side effects. The worst part of it is that I cannot drive and its frustrating feeling normal and not being able to get on with things independently.
Take care and good luck with your treatment plan !
As others have said before, please see your Oncologist and not be put off by your GP. You
know your body better than any GP and the Oncologist will be more experienced.
I had very mild symptoms which I initially put down to the menopause - confusion, lack of concentration, emotional and anxious. Then my left arm became weaker and I found it hard to park the car straight and
was drifting to the left.
I made three visits to my GP, was told I was depressed, and put on anti-depressants !
I decided to bring my appointment with the Oncologist forward. Thank goodness I did, as he was very quick to determine something wasn't quite right in the coordination side of my brain. I had an MRI scan within a week and they found a 3cm tumour on the front right side of my brain (hence the left sided symptoms). It was in a good position to operate and I had a very successful operation in March.
The Neuro Surgeon said he got all the tumour out and it was only 3 hours, and I was out of the
hospital after 3 days (amazing what they can do these days).
It may seem very frightening at the moment, but you will feel better once you have checked it out and
I hope some of these postings help you cope with whatever the outcome is. The quicker you get a
diagnosis, the quicker you can get a treatment plan worked out.
Take care and good luck !
Thanks for the advice. I think my GP thinks I am neurotic and worrying needlessly. Have an appointment with onc soon. Fingers crossed. Just want to feel the way I did pre diagnosis.
As Olives said, if it is your g.p. you have seen, you definitely need to see your onc and ask for a scan. Hopefully it will be clear and your mind will be at ease. I always ask by onc team if I have any worries about my b.c. you get results much quicker and if you are worrying this is what you need!.
Hope everything is okay. Take care, love Sheila xx
Welcome to the BCC discussion forums, you've come to the right place for some good, honest support from the many informed users of this site. While you are waiting for replies could I suggest you give our helpline team a call and have a chat with them about your concerns. Calls are free 0808 800 6000 lines open at 9am today until 5pm.
Ladies, I'm looking for some advice. I was diagnosed in Aug 2012 with 2cm, grade 2 tumour. No spread to sentinel nodes but one breast node was affected. Had chemo, rads, herceptin and tamoxifen.
I have recently started to experience dizzyness and pressure in my head. No headache or nausea. I have had an odd niggly feeling in my head for about 6 months and I had one occular migraine a few months ago (Quite frightening as had never experienced anything like it before). Nobody is concerned. My doctor recently said she was not concerned about brain mets. Howeve, I feel awful. Have been dizzy for a fortnight, neck feels stiff and waves of pressure in my head. I know my statistical risk is not high but am confused by docotor's lack of concern especially when I read other people's stories.
I would be really grateful for any advice. I am petrified.