Hi again November ladies, at last had some great news, my CT scan came back clear, no spread !! Phew !!! Chemo start date 16th Nov, 4 x EC then 12 x Taxo ( i think thats right). a little break then for lymph node removal, a little break again and the radio therapy ( its nice how they call them breaks isnt it, just like having a holiday, yeah right !!) I know that being tested and poked and prodded and them finally diagnosed is absolutely horrible, but when you have been given your chemo schedule, its sort of another road and you've somehow moved on from that initial diagnosis era and start to concentrate on the treatment, the side affect, the hats, bandanas, wigs etc. ive been on ebay and bought loads of beanies and yes I also bought a russian hat (as mentioned in a threat below). Tommorow I am going to a place called Dimples, they sell wigs, hairpieces and strangely enough stick on eyebrows !!. Its clear from the recent messages on this thread that losing our hair is a major worry, but at least we are going into winter where nearly everyone will be wearing a hat !! Is anyone considering a Cold Cap ???
Just popped over from the October 2015 thread to wish everyone good luck thats starting their treatment this week. I'm having my second TC chemo tomorrow so sending virtual hand holding to anyone starting tomorrow. I can honestly say that the nurses in the chemo units are fantastic and it isn't half as bad as we think, I was a nervous wreck beforehand but came away thinking 'that was ok what was I worried about'. Good luck x❤️
Re hats & scarves -look for Headlines -they are based in your cancer hospital or local cancer support centre. They have very cheap scarves (3.00) Which are 100% cotton (sit firmly and don't slide and warm but not sweaty on your head), and other head ware. Will give advice on fitting. In my area first scarve was free.
You can use scarves or beanies under hats -give extra warmth when outside and also if you go back inside you can simply take hat off and still have another hat underneath if you don't want to expose head. (A friend of mine forgot about that and wore a lovely Russian type fur hat but then went into a pub and cooked as she didn't want to take her hat off as nothing underneath) I was told layering is the way to go.
I also used little straight narrow oblong scarves to tie or twist round scarves to jazz up and ring the changes. I wore beanies indoors but cotton is best and seamless so you don't sweat/itch where seams are. There are some great styles out there. I also used badges or brooches on my beanies to jazz up -looks great.
Pretty sure Breastcancercare.co.uk have a list of different stockists.
Hi Janey Just popping in from August. Most of our hair didn't start to shed until day 15-20, so plenty of time for your fitting. Also most felt normalish again after 5-8 days, so you will be fine to go week 2/week 3. All the best with everything ladies. xx
Is it a bit surreal when you get the actual start date isn't it? I have got my meeting with Onc twenty minutes before my first FEC to discuss test results, hopefully all is well and it has gone no further than Lymphs, great to hear that yours has not gone any further. Will be having a realxing and chilled out weekend to prepare myself for the start of treatment, a little retail thereapy perhaps!
Hi all, I work as a TA in a secondary school and have been told to avoid anyone with an illness. Pretty difficult when you are in the firing line for every germ going!!. So I won't be working while going through chemo. Our headmaster told me I should stay away to avoid picking up any infections too. They are very supportive. I am hoping to go back between the last chemo and radio though on reduced hours just to get back into the swing of things again. It will be exam time shortly after that so I hope to be back to help with exam invigilation cus it's always very stretched.
I have had a week free of appointments this week but the hospital have made up for it next week. I have my pre chemo appointment, hair/wig appointment and an ECG booked on the Friday. Can only hope that means it's all systems go for the following week but should get my start date on Tuesday.
Take care ladies x
Hello again ladies. Regarding work, as Wavylocks says, it really depends what you do and how you react to treatment. I worked reduced hours (2-3 a day) throughout my treatment - FEC 3 weekly and T weekly - from October 14 to April 15. Personally I found it helpful to have a routine (I also did yoga 4-5 times a week) rather than sitting in my PJs feeling sorry for myself. I was fortunate to be able to work from home and juggle my hours to suit my energy levels - I don't think I could have gone into the office.
You have to have some contingency plans and be open with employers, and do whatever feels best for you x
Popped in from the November starters, last years lot.
It is possible to work during chemo but it does depend on what you do and the likely hood of contact with infection -especially during the winter months you really need to avoid it. My oncologist said absolutely no to me as I work in multiply settings with a wide range of children. So I didn't work -actually in reality I don't think I would have coped -all that driving in/out of places equipment to lug. I tired really easily during chemo (FEC-T three weekly)even on good days -but everyone's different!
I did meet someone who had worked throughout -taking a few days off each round to cope with the se's. So my advice is to be open to the idea but also realistic. I found the few days I felt better I needed for housework, laundry, food shopping and restocking of easy meals.
Good to plan something nice to do to in that little window, something to look forward to. 😊😊
Also just looked at one cycle at a time, ticking of each day and not looking ahead -helped loads!!
Good luck!! I'm a woose and got there 😊😊 xx
I intend to be working, I am also three weekly and will be haveing treatment on a Wednesday so am hoping to return to work the following Monday. Luckily for me I have hospital grade hand sanitiser on my desk! The owners of my company are Doctors and fully understand what I am going through and my team are already keeping their distance if they feel unwell!!
That being said I do know of someone who worked through out their treatment, they just had to work flexible hours and obviously take time off when needed so it is possible depending on how you feel. I think the important thing is to know your limits and not try to work when you are too poorly.
Thanks for stopping by, yes I will be on FEC T. I will look into the drops, hope your treatment is going well. xx
I wish I had time to have a holiday, enjoy Babypink!
My appointment was fine yesterday, still waiting for my Bone Scan results but BCN thinks it will be fine as the CT scan was ok. Unfortunately I have a sinus infection and am on anitbiotics! So fingers crossed I will be ok to start next week, the waiting is getting on my nerves!
My Chemo nurse mentioned that if I wear a thick dark nail polish it will help protect my nails during chemo, has anyone heard of this or tried?
Good morning all!
So after a hectic week I am back to work for a few hours before seeing my Chemo nurse, so be the end of today I should have confirmation of start date and whole lot of other information that I will not retain!
Jenjen, I agree it is the best course of treatment just dreading the unknown world of chemo, I don't react well to over the counter drugs! I am glad to have the support of everyone here, it does make a big difference! xx Hugs to all.
I am 45 and will be going through the same treatment and you, I due to start chemo on the 4th November. On Thursday I had an ultrasound and a little coil inserted into my tumour at 11.30, then straight in for a ct scan 12.20, that was way more fine than it should have been! Except for the metallic taste the warming feeling from the meds really relaxed me! After that was an Echocardiogram so a very busy day and then I had a bone scan yesterday.
I have been advised that most likely I will have only have the lump removed so am hoping all tests results are normal.
Hope your tests go well and look forward to swapping chemo notes with all in the group.
Thanks. I sort of thought I've never cut under my arms in the last 30 years, legs yes when younger, but pits no. On the FEC-T the FEC will be 3 weekly, but the T can be given 1, 2 or 3 weekly. I have gone for weekly because the SEs are minimal compared to 3 weekly from what I've read on previous threads. Also it's 45 mins administration compared to 3 hours & our unit wouldn't let me cold cap because total time would be 5 hours, which they consider too long (I have seen others doing it though). As I've kept most of my hair (back from ears down has thinned by 1/3 where cap didn't fit so closely) through FEC I wanted to carry on primarily to speed regrowth. You are lucky you have the option of weeklies, a lot don't. Write down any questions for the nurse. You won't get all the SEs, if you read the last few you can see what usually comes up. All the best. BBxx
Hi All Sorry to see people all lining up for another month's thread. You will find this a good outlet for support/a moan to to very sympathetic ears. I am from Aug 2015, so feel free to pop in & ask us anything anytime. We are all about halfway through now & so will you all be soon. All the very best. You can do it ladies. BBxx
PS Bobbie I was wondering about getting a NONO so please post if you find out. I've been a bit naughty & started shaving again 10 data after op. You will find you on't need to shave much from about week 2/3 after FEC (not sure about the rest)anyway, nor file your nails, so do make sure you keep them supple, because they might not grow for a while. Best is onicolife, but also expensive. Next best is horses hoof/ thick nail oils.