Saw Onc a couple of weeks ago re results of CT scan which weren't that good 'somthing' on my liver now, however I did remember to ask about Subcut and she told me that I would probably be having a few more of the regular infusions but they will be rolling it out for Secondary patients in the Devon area, really hope they crack on with this it took 4 attempts at home for the nurse to find a decent vein and its gettin harder. xxx
Lucky you geordiex. Tell me more!
Did you have to stay on for a while? Will you be able to self administer in the future? How big of an injection is it?
Do you happen if it is expected to have similar side effects as the IV, I am really interested in the knowing whehter it can also damage the heart.
Yesterday I saw my onc and Oxfordshire NHS trust has yet to sign an agreement with Roche. I was told that only if it worked out cheaper than the IV will they move forward. Obviously they will take the cost of amdinistering into consideration. This being said, she was quite confident that it will happen.
FYI - at the moment they are saying it has been sanctioned for Early Stagers only ...
Getting my latest CT scan results on my lungs 4th of Oct so will be asking about subcut Herceptin. Just had my 3 weekly infusion and its starting to get a bit of problem with my veins, the health care at home nurse tried 3 times eventually she managed to get the canula in but its left me very bruised, I suppose considering I've been on it for the past 2 years I should expect this, this subcut would be so great, the nurse told me I'd be able to inject it directly into fatty tissue (heaven knows I've enough of that lol) rather than playing hunt the vein.x
my onc dr (name removed) says that will come eventually which newspaper said about staying in for observation I havent read that or been told that x
Thanks geordiex. Today's announcement was different to what I was expecting. If the drug itself costs the same & we have to stay in hospital for 90 mins afterwards for observation, then I'm not sure I see the benefit for us!
I'm guessing the trials have been done on primary patients, I'll be asking what evidence there is of effective suppression for secondary patients. I had hoped the benefit would be giving ourselves the jab at home, or at the GP and potentially allowing travel etc. Maybe that's all further down the line.....
Thanks for giving your hospital name geordiex, I'll mention to my onc next week.
As I understand it's still in trials, I'd be asking what reassurance there is that the subcutaneous application is as effective as the intravenous one...
Good luck, Sarah. x
I had heard of this back in 2011 when I was dx and due to secondarys on my lungs will be on herceptin forever anything that minimises time and my poor viens is worth it. Did your onc mention when they might be rolling this one out? My next onc appt is in early oct so will ask them about this then.
Some of you will know trials are underway for herceptin delivered subcutaneously for primary bc. Benefits are lower cost & convenience to us - eg, ability to travel with it.
My oncologist belives it wil come in time for secondaries too and reacted enthusiastically when I asked him to bear my interest in mind. (Cost no benefit to him as I have Bupa treatement!).
I'm interested to know if anyone else has any experience or knowledge of it. There was some previous discussion about this on Blondie's thread "ten years on" and with Vercors....