Hi fallenangel hope you're ok after your first chemo on the 7th. I've joined the Anyone starting chemo in August 2015 thread if you fancy joining us - I did send you a pm but not sure if I needed to add you as a friend for you to receive it xxx
God Jo that's awful, Bless them both x x
You are right regards trying to stay positive.. just can't help the mind running away with itself at times.
I think I will get tested for bone, lung, liver and brain when i'm over the rads then I can relax hopefully. If they don't want to do it I will see how much it costs to go private. It may sound extreme but I know me... every little pain and I will be worrying. i love your attitude despite your personal losses.. good on you xxx
Thanks Jo x
whats the 8/8 you mention mean? result informationm seems varied for different people. I am going to ask for a copy of my lab reports. I am like you and probably lots of others in having known woman with BC who got the all clear only to have it come back further down the line and sadly die so I'm scared to trust the findings. I know I can't be on my own with this and wonder how people deal with it. x
Ohhhh enjoy your holiday carol.i start my chrmo on 7th .decided ti go ahead with it. Do you have facebook? If you do plz add me name edited by moderator xxx we can share the journey xxx best of luck sweetheart xx
Hi Carolec Mmmmm Georgie boy sounds good to me The Wedding venues sound so romantic wishing everything goes well for all and especially you. have a good weekend the Sun is shinning here in Cheshire as it rained all yesterday.
Hi Sheena You really are a gem sounds like you could brighten anyones day up. You make me laugh out loud, I dont know about Brad Pitt maybe a good few years ago, now its just a dream, my surprise package is more likely to be Rodney off Emmerdale (ugggh!) I am a very young 68
I have been up since 5.30am my husband gone to work he got up in night and slept on sofa, said spare room bed not the same as "our" bed, told that Company we had NO bed but we do have spare room- naughty me! now got to tidy bedding away from downstairs looks like we've had sleepover guests with bedding everywhere
Hope all goes well for you. Have a good weekend.
I should get my letter Monday from Onc to give me a date for first rads appoint for planning, not looking forward to "tatoo" bit. To me though Rads will be ok compared to how I felt when I thought I was having Chemo.
Great news! x
I thought I understood my initial diagnosis but the more I read and hear the more I'm confused! my results were grade 2 invasive ductal carcinoma. ER 99% PR 25% ( That adds up to more than 100% or am I being thick!? ) don't answer that! 🙂 FISH was negative. HER 2 neg (I think!) well they said one of these results determined if I would need chemo then called with results saying it was good news and I didn't. I guess like all of us I want to make sure I am getting the best treatment and that means reading up on everything but not sure I am understanding what I am reading! . Eveyone sounds so well informed I feel thick! lol
Thanks for replying x
Hey sheena I am losing it!!! the bed came and has no nuts/bolts/screws 2 legs missing and a damaged part of the steel frame thats it now night night. Maggie
Sheena forgot to say I will be without a bed for about 9 days now, they said they will order parts and offer some kind of compensation--- we will see I was too annoyed to answer , will phone them tommorrow Maggie
Hi Sheena you make me laugh, these men dont know who they are messing with God didnt give us these hormones for nothing. This is what this forum is sometimes for, take our mind off things, have a rant or a giggle.
There is nothing worse than not having your wheels especially if family rely on you to have that little light lit on top "Mum's Taxi". Is your son starting work on the Saturday? if so I do hope you get it done in time.
RELAX, take another pill or like me eat another piece of choccy. take care Maggiexx
Hi Sheena steam coming out of my ears The bed arrived 11am Husband started to unpack and guess what not one nut,bolt,screw with it plus 2 under bed supporting legs missing, and one steel side piece of bed has been so badly "dropped" and bent you would not be able to get the screw/fitting in!!! so not happy, have phoned, if I dont get fittings TONIGHT (told them I had no bed at all) and damaged part replaced I will ask for refund and they can come and collect. Phew! that felt good to let that out! I was on such a high yesterday, anyway whats your day been like? hope you are ok, any plans/treats for weekend. xx Maggie
Hi Sheena thanks for reply I have greedily started on 2nd bloc choccy after my Ice Cream I will come to my senses by weekend, and put on the rabbit onesey!! My Husband says we could look for a holiday after rads?? so will need to lose the choccy
Just sorting bedroom out, should have had bed delivered today! I saw it, wanted it my husband said I deserve it, we have divan no problems--- this is gorgeous Vintage as we have just decorated etc. He moved divan out not needed and guess what TNT not delivered, but they did come on Tuesday and Wednesday when asked not to as I was at Hospital! Not getting it until tommorrow - so have to sleep in other room tonight. ok night night to all, have to come off computer as it is spare bedroom and my other half bed 9.30 he is out to work 5am. Maggie
Thanks ladies... I'm getting the hang of it 🙂 great you don't need chemo. I wouldn't have even known to question it if I was told I had to have it.. it's an eye opener in here... knowledge is power! 🙂
Have a great day and look forward to chatting to you all,
Always love x
Hello Sheena I feel like I have won the lottery at the moment. I was hour and half with her and she went through it bit by bit and I didnt have to use my questions (I had spent ages compiling- so they didnt sound stupid):smileylol: If she had said she wouldnt give me Chemo cause of heart then I would have been worried, but the % for and against Chemo were so small she didnt want me to have it but my heart did come into it on the infection side, so yes suppose she did answer it for me. I could have still said I will take a chance but not worth it?
Rads: she said I will get letter Monday to go for first initial assessment? and then they will either send or tell me when I am starting, probaby the following Monday? so looks like could be around 10th August. I am having 15 also. Hey you will be a good template for me, I will track you like a radar
I suppose my good mood from yesterday will fade a little when on Rads.
I told my husband I really fancied a huge block of wholenut chocolate, eat choc now and then, he disappeared quietly and came back with two blocks 9.30pm how nice was that,
Because I jump in here there and everywhere by accident on this site, as I am not very good, can I ask have you had Chemo or just having Rads?
Hi Familytree I am fairly new to this site also having been diagnosed June 10th. It is difficult if you are not really ok with computers but you will learn from the other ladies = if you dont understand their jargon just ask them and they will reply to you. but remember all us ladies are basically on the same path as we say but every ones cancer/prognosis can vary in small ways so dont presume what someone else has or is going through is going to happen to you. If you seriously want questions answered about yourself ask the Breast Care Nurse who will know your case. What I must say though is that all the ladies I have chatted with have been really helpful with advice and tips so that you are a little more prepared.
You may have already had a reply: You need to register to the forum first. Then log in with your Username and then your Password. This brings you to the site. In the top right hand corner you will see your Username click on this and it will bring you to your own page were you can click on "Read latest threads/replies" you will find your replies here. You can also get a private message from one of the ladies this will show as an envelope in the top right hand corner - click on this and follow - Good luck
Keep in touch let me know how you get on with Rads. I am Triple Negative Invasive Ductal Cancer and was having Chemo and Rads but saw Oncologist at Macclesfield Hosp yesterday and because the % benefit of having Chemo or not having it is so small she doesnt want to put me through Chemo - I am so glad in a way I dreaded it, so am just having Rads my first appointment will be about 10 days. Have you had your first appointment apparently they have to measure and do things before your actual treatment starts? I am having 15 sessions. If your just in front of me it would be nice to know how you are feeling?
When you say 12months waiting for a surgeon do you mean the check ups they do from now on to keep a close eye on you- I will get checked for mammogram every 12 months but thats not with the surgeon?? It seems a long time to wait and I suppose we will wonder "has it come back" but ladies tell me you have to put this out of your head and get on with life.
have a good day Maggie xx
Just joined the site today so trying to navigate around it! I can't see where it tells me if I have had any replies to any posts?
You all sound so clued up, I don't understand half the terminology/abbreviations etc.. trying my best to read up on stuff and educate myself. I think I need a degree in breast cancer! 🙂
From diagnosis in April I was told my op was succesful and no chemo required, just rads and Letrozole for 5 or more years (10 seems to be the new recommendation) .. big relief! but then the more I read the more I wonder if I should be confident with this decision.Though after reading this thread and the percentages gained from chemo it hardly seems worth the bother?
Is it normal to get an appointment for a years time to see your surgeon? I thought it may be a lot more regular than that in the first instance.
I had all initial treatment at Wigan and was then sent to Preston for the radiation prep and treatment (which starts this Friday) I wish it would have all taken place at the same hospital. All starting to feel like a conveyer belt!
I'm rambling! lol
Sending love to all x
sorry to hear you're in this position, you'll see from my start to thread I have had to make this decision
although I diagnosis is different than yours all I can suggest is that you read all you can, have a chat with your gp if you get on well
I also visited the Maggie's centre here in Inverness and chatted to a lovely worker there
I will add you as a friend here and if you do the same I can try to give you more about how things have effected me emotionally, I am still very upset, but would like to support you if I can
Hello to everyone, can anyone help! I was diagnosed on specalist report as Grade 3 Invasive Ductal cancer, ER negative, ER2 negative he said no benefit withTamoxifen or Herceptin. I thought great only radiotherapy to deal with but he said Chemotherapy! just in case. I am terrified of having chemo. This is where I am at a loss, if it was clear in lympth nodes, and its gone from boob, why do I need Chemo? I understand rads. Am waiting for appointment to discuss Chemo/Rads seems like forever. Oncologist will have to weigh up the risks/benefits for me as I've had a heart bypass and 4 stents so she may not give me chemo. I am going round and round, someone will have to really convince me that I need chemo but it will be my decision I know and it is hard. The way I see it at the moment: "they dont think there is anything else in body but will give me chemo and make me poorly - just in case" I want to say "no I dont want chemo just in case!" and hopefully there wasnt anything anywhere else but if there is a cancr later down the line I would have to deal with it then?" or am I being silly to refuse the Chemo. by the way I am 68 now.
Sorry ladies you can see how mixed up I am. You all seem to have a better understanding of all the terms etc. Maybe I will be better when I see the Specialist Oncologist at Christies/Manchester butI dont even know what I am supposed to be asking her! its all like mush in my head.
Have a good day if you can ladies what ever you are doing.
Sending you virtual hugs Sheena x
just wanted to say a big huge thank you for all the advice/support you gave me. ! Ade my decision and onc gave me my script for tamoxifen and rads to follow, I said a big no thanks to the chemo
huge weight lifted from me, feeling very emotional but forward now and no looking back