Hi - I didn’t have a great experience for my first cycle unfortunately and so already feeling anxious, worried and stressed out about the next one because of the lack of communication between the different people and departments involved in my care.
Sorry to be so negative, I’ve got support at home from partner, family, friends,
Colleagues and a counsellor but am becoming incredibly frustrated with the lack of care and communication from the medical care team who don’t seem to be very ‘on it’ with basic things not being addressed.
On a positive note, day 2 I felt okay physically after treatment, sun was shining and so I went for a wander round the shops. I’m slowing down a bit, slightly hot and cold tonight, mild headache and after a relatively good day I’ve had to get up as I can’t sleep, worrying about how to deal with how much unnecessary anxiety, worry and stress the people involved in my care at the hospital are causing me 
I’m going to try and speak to someone tomorrow… I thought it would be better after the first one but the lack of internal communications made it 10 x worse for me. There was no excuse for them to cause me so much distress on the day of my first treatment. I keep being told ‘we are here to look after you’ but I don’t feel very well cared for at all.
Hope everyone else is okay - sorry for the negative post. I know I need this treatment and that it’s going to be tough and challenging, I’m fully prepared for all of that… I just wasn’t prepared to have quite this hard a time with the professionals to ensure my basic care needs are met, and that I’m being supported, helped and cared for throughout, as opposed to them causing more stress and anxiety.
Any ladies reading with any advice or similar experiences on how to navigate poor experiences? Who do I speak to to try and get things on track before it’s too late and I lose all confidence in the care Team?