@katie91 no problem at all. I didn’t have the EC up front but I can certainly tell you my experience of weekly Paclitaxel. First thing is it kind of takes over your week/life as every week you have to go in for bloods then 2 days later for chemo. So not a lot of respite. However, generally if all goes well you can be in and out in 2.5-3 hours if the team are efficient! So that’s a bonus. In terms of side effects, I wouldn’t say I sailed through but what I did have came on around half way through or even later, so the first 6 sessions or so did feel quite easy. My main side effects were:
Allergic skin reaction, mainly on my face but which was controlled using a strong antihistamine (and steroid cream which they gave me but I didn’t use in the end). I used La Roche Posay Effeclar Duo for the breakouts of spots and lots of Aveeno calm and restore oat moisturiser for the dryness. It all worked well.
Nosebleeds, especially in the mornings when my nose had crusted up overnight and then bleed when I blew it. At the worst points I did have a couple of bleeds during the night. Best advice is use steam (head over a bowl with a towel around it, I also bought a cheap humidifier to use in the evenings and at night when it was worst), and a bit of Vaseline to keep it moist. Not much else you can do. I think it’s a combo of lost nasal hair and weakened/sensitive tissue. It’s definitely improving since I finished chemo.
Hair loss and thinning - I never lost all my head hair (though a lot fell out and I did shave it), I’ve kept eyebrows and lashes (though they don’t grow and if some fall out they don’t get replaced), but otherwise my body is smooth as a baby!! Which sounds ok but I’m not a fan of the bare lady garden below!
Neutropenia - which you know about and almost everyone gets at some point. I only had it once and therefore was only delayed once with treatment. The magic cocoa
!
Peripheral neuropathy - this is a common Paclitaxel thing and I only got it in the last 3 weeks and only in the ends of my fingers. As soon as I told the team they reduced my last 2 doses to 80%. It’s basically nerve damage and the onco told me yesterday nerves take ages to heal and they might never be back to what they were. Fortunately it’s very mild and doesn’t stop me doing anything, I’m just aware of it. Key point here is as soon as you feel it you need to tell them as the worse the damage is the less chance it will reverse itself after chemo.
Acid reflux/indigestion - I only got this in the last 2 weeks and it was mild. Got prescribed omneprozole immediately and it’s been very effective.
Fatigue - again I only experienced this in the last 2-3 weeks, I was lucky. I didn’t have it every day, probably days 2 and 3 after chemo only. It wasn’t really bad, I never spent a day in bed or on the sofa.
I had absolutely no problems with bowels, nausea, mouth, nails (though I did use Polybalm religiously throughout) or joints/bone pain. I never picked up an infection of any kind. In summary I’d say my experience was a lot better than I thought it would be. I was able to keep on doing a lot of what I did before. I don’t know if my lack of really bad side effects was partly down to me being a very fit and active person before chemo.
Worth noting I was also receiving herceptin injections every 3 weeks alongside chemo; they continue now till mid August but having had one on Monday, I think I can safely say I’ve got no real side effects from it that I’m aware of.
I hope this helps! If there are any specific questions your friend has just shout. I’m not disappearing from this forum any time soon ![]()
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