I just thought I would drop in to say that today I am 19 years on from a triple postive diagnosis when I was 36. I had chemo radiotherapy herceptin and tamoxifen. I never take for granted that I am still here pretty fit, well and happy. Diagnosis day is always significant for me to take stock, pause and reflect. Also have a big glass of fizz. Best wishes to you all who are on this journey x
Thank you for that. I was triple positive, just on my last Phesgo and starting zoladex & exemestane. Fingers crossed I get at least 19 more years. I know lots of women who had BC years ago and are still here loving life. Sometimes we just need a reminder so thank you x
Ahhh whoop whoop for your last phesgo and hope the rest of your treatment is manageable. Best wishes x
Its so nice to hear positive stories,
Hi edp
Thank you so much for sharing. So good to hear positive stories
Glad you are happy and healthy
Keep on doing what you’re doing
Lynn xx
Congratulations! This is so lovely to hear. Thank you for sharing on here to give others some hope x
Dear edp,
What a great read, wonderful news keep well, with lots of happiness ahead.
Hugs Tili
Same for me 25 years on .
5 th June ,we always celebrate .
Health not hundred percent ,but I’m still here .
Enjoy your drink
Thank you for sharing this @edp & @lyndy61 . I really need the positive stories, they help a lot. Enjoy your fizz x
It’s nice to hear from you completing 19 years cancer free! I hope I make it that long!
what a beautiful positive post
inspirational
Shi xx
This is just wonderful to read, Its coming up to 2 years since I found my lump and I’m really struggling with the fear of recurrence. I was also triple positive. Can I ask you please did you change anything different in your life after treatment? I keep seeing and reading so much stuff, take this, don’t eat that, it’s a minefield xxx
Hi, my lifestyle is pretty much the same as my pre cancer days, as I continue to do everything in moderation and have not changed anything. I have always been vegetarian. I do drink, but never more than a glass or 2, but only white wine since chemo altered my taste buds, I loved red wine before. I have always exercised, I took up running after chemo and still do and the odd triathlon. I always feel and believe exercise has helped manage symptoms of lack of oestrogen. My weight has always been the same throughout this time. I have not taken any supplements other than a multi vit. I’m a public health nurse so have always been pretty healthy ( except for my cancer !!!) and I have never really been influenced by dietary changes or supplements. I do really believe exercise is very important to physical and emotional health, so have always been pretty active, and now getting older am adding lifting weights into my routine. I’m not sure that helps, but we need to be sensible, but also enjoy life too. Best wishes. Emma.
A big glass of fizz is exactly the kind of prescription I can get behind. Congrats on kicking cancer’s butt for 19 years and counting!
Loving this. I only finished treatment in February so need to know that people are making it years down the line still cancer free. The reoccurrence fear is real and sometimes feels like everyone’s cancer is coming back (or your brain just notices it more!). Love your outlook on things, everything in moderation, it’s very refreshing as I’ve been scared to even drink Diet Coke! I wish you well and another 19 years free! Xx
Wow what wonderful news! Love to hear this! Congratulations to both @edp & @lyndy61 ! Gives us so much hope! I want to make it to 80!!
I was 53 when diagnosed with IDC ER+ (100%), PR-, HER2+++ last year, completed ACTH chemo, lumpectomy and full lymph node dissection, 15 doses of radiation plus 4 boosts, have now just finished Herceptin last month and currently on month nine of Anastrozle. I feel terrified as it seems like such a long way to go but stories like this give hope! Thank you and enjoy the celebration!
Are you able to share what stage you were, treatments and if you had any lymph node involvement?
Hi, as it was a while ago, treatment was different. I was grade 3, stage 1, but did have a few cancer cells in my lymph nodes found on sentinel node biopsy. Sentinel node biopsy was a very new technique not offered for everyone yet. I had a wide excision with lumpectomy. I had 6 rounds of EC chemo, 3 weeks apart. 20 shots of radiotherapy, the end 5 were boosts. This was left side before any breathing techniques to protect the heart. I had 17 intravenous doses of herceptin, 3 weeks apart and 5 years of tamoxifen. Mum had exactly the same diagnosis 3 years ago and her treatment was quite different. I was one of the first to have herceptin for primary cancer, as it was approved for this use the month I was diagnosed. Prior to that it was only licensed to use for secondary cancets. It all seems a bit of a blur now.
Thank you edu for that really encouraging message. Whenever I read the papers online it is always doom and gloom about anything to do with cancer, but then that is how it has become, the papers love to dramatise things more than is necessary. I feel really cheered by what you said as sometimes I feel quite anxious about things which is not in my nature, probably the Letrozole (I hope), so what you say makes me feel hopeful. Thank you again and I wish you another nineteen years and everyone else on the forum.
Lots of love and thanks Minnie
Thank you @edp for your detailed response. I do appreciate it. I love to hear these survivor stories as they give so much hope that we can all do it!
Do you obsess over every little pain or headache or is that a thing of the past too! Do you still continue with scans?
I am in remission and am hoping that all this will be a blur soon for me too!
Hi, I just get 3 yearly mammograms and have been on just that for many years now. I don’t worry about the small stuff anymore, but occasionally I get a pain that lingers, then my mind drifts off . Then the pain disappears, and it’s all quickly forgotten again. Generally I dont think about it much. Interestingly I came to this forum to ask questions 3 years ago as my Mum had just been diagnosed. That brought it back into my head, but now she is well, it’s drifting off again. I promise you will move on, it won’t dominate your thoughts and it will only pop up occasionally . Best wishes.