I spoke to the oncologist yesterday. For me it will be a daily tablet for three years. I am going to contact the nurses here as I need to understand the risk/reward aspect of it all. I am speaking to my oncologist again on Tuesday.
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I am having a similar dilemma. For me the oncologist said it was about a 2% improvement (but I donāt know what the risk without the treatment is).
He did say that I needed to have gone through the menopause. I had a blood test to find out my hormone status. (Using a Mirena coil stopped my periods many years ago).
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Glad you got that sorted and yes you do need to clarify the risks and benefits.
The only thing I will say from someone I know who is on daily tablets is that you have to remain upright for at least 30 minutes after taking them. The person said they are considering asking for infusions as itās every 6 months instead of daily. You also have to be careful about dental treatment. With an infusion you need to plan treatment at least 6 weeks before or after the infusion. You will need to check how tablets impact dental work 
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They havenāt checked if Iām in the menopause theyāve just said theyāll keep me on zoladex to keep my ovaries asleep. Tricking my body to think itās in the menopause so the drug works, maybe?
I think Iāll give it a go because I want to do everything I can. If the side effects get too much then I can always change my mind.
Hope you make the decision that is right for you x
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I am menopausal and went ahead with the infusions as they can help strengthen the bones but also prevent cancer from appearing there as well. I want to do everything I can to stop it coming back. Like you said if the side effects are unbearable and the % are not too high then you can have that chat about stopping.
For me the first infusion was surprisingly ok, only a few days flu like symptoms. My only issue was sitting in a āchemoā chair. I couldnāt believe the emotions.
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I had my first infusion and havenāt felt well since. Aside from the flu symptoms, lymph node swelling, feeling generally unwell tired weak aches. I experienced pain while walking which got worse each day until I have been using a walker to get around for three weeks now and havenāt felt normal since. Iām hoping symptoms subside.
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Have you called and let your team know the side effects you are experiencing? If it was me I would have a chat with them and see if there is anything they can do.
Hi everyone
Had 3rd zolendronic infusion a few weeks ago
Took paracetamol prior and drank lots of water
Still cant stop the anxiety and my blood pressure is always high when i go in
This time around my after effects were acute tiredness and a mild headache
Just had flu and covid jabs and apart from aching arm all good
Think my body is getting used to all this finally
Hope everyone is coping
Take care
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@Curlywurly1 thanks for the update, itās prompted me to post an update aswell.
I had my 2nd infusion mid October and had flu like symptoms and a headache. Iād had my Covid and flu a week before the infusion, just had a sore arm.
I lost a filling and called the dentist who did they couldnāt see me until February 2025 on the NHS, yes Iām lucky to still have an NHS dentist, but if I wanted to pay privately I could be seen the next day! I hope the NHS dentist stuff gets sorted by the new government as itās so bad. Having these infusions should give us priority but the dentist didnāt care. I was told to buy temporary filling, I did and it fell out every 3/4 days. The box said to see a dentist within 48 hours! After a month I phoned the dentist again, hoping I could be seen earlier. They eventually agreed an emergency appointment as I suggested that I would call the health board dental line (usually for those who donāt have an NHS dentist). Got a tempo filling from them and still have to go back on February for a permanent one. Itās been 2 weeks nd it hasnāt fell out.
Hope everyone else is doing ok.
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