In the week following on from your chemo, did a nurse or doctor call to check up on you? I was due a call 5 days after 1st cycle that never came. How do they know how I responded / felt? I did call to say that the expected call did not come.
I am just wondering if this is normal? I do understand that I may be feeling a bit low and sensitive.
Hmm that’s not acceptable - I was called on the Monday after having my chemo on the Friday and it was nice to get that call , I would call oncology back tomorrow and remind them again
I was never called between treatments - it sounds lovely to have people offering to do so. I had to call in with any issues, if I had them - and to be honest, I never felt anyone was bothered by my side-effects. Pethaps things are better in the NHS - my treatment has been private. I did, however, have appointments every 3wks with my oncologist, but he was severely lacking in any empathy and if my bloods were ok then he didn’t want to know how cr*p I was feeling!
But if they said they were going to call you, it’s disappointing to not feel supported. It’s always worth making a call to check-in with them. Hope you can get the right level of support for yourself. Xx
Thank you. I will call them again tomorrow. I was so upset as I felt so alone. Luckily I am feeling better and stronger now. Thanks for replying @arty1
I was having my 12 weekly chemotherapy in Velindre Cardiff and wasn’t called after my treatment to see how I was. It was up to me to call the helpline if I felt unwell or had any of the ‘Red’ side effects. I had weekly bloods with the district nurse and every 3 weeks at the clinic, when I was checked on to see how I was coping.
I’ve read quite a few chemo starters threads since last May nd have rarely seen people mention that they were being called to check on them. Having said that if you were told they would do this,I would call and chase them up. No wonder you are feeling sensitive if you were expecting a call.
Thank you @naughty_boob. I had the appointment in writing which is why I was surprised and disappointed it didn’t happen. Thanks for responding
If you have an appointment call scheduled then you should be called. In general, though, it seems we have to be proactive about getting in touch. I have to call the nurses or just go to A&E if I have any concerns with my symptoms. Like others, I feel that more support in between sessions would be helpful. I am now having the immunity boosting injections and have had a nurse come to give me the injections over 5 days. Obviously, the main purpose is to administer the drug but it has also been nice to have a medical professional checking in with me, especially as I have a 3 week cycle so it is a while before I go in to hospital again. I feel that having someone checking in and giving reassurance would be so helpful. At least we have these online support chats! 
@ruthb37 exactly as you say, it is nice to have a medical professional checking in on us during a difficult and worrisome time. I would never have expected to hear from them but only did so as they made the appointment. Hope you are coping ok with your treatment and are well on your way to a healthier future. Finally, yes these online support chats are so valuable. Sending you lots of love x
Hi Bonnie
So sorry you are going through this. It’s best if you call them and explain how you feel about them not calling you. They need to know the impact. In my own journey I have felt so unsupported but through perseverance I have now found a way to express any concerns.
So I hope that you call them and you feel more supported in your journey.
It’s really important to know that you are not alone and that the care is there for you.
Thank you @Anjuli. I did call to complain but still heard nothing back. I am sorry you have felt unsupported along your journey, well done for taking the lead. I think I just felt lost as it was first treatment and I didn’t know what to expect. I also don’t want to be moaning about the NHS as I am a massive fan, I was just really confused. Take care of yourself lovely x