35 and under?

Hi
I’m posting on here because I’m looking for friends, in particular age 35 and under. Although I’m not opposed to having friends over 35 I have found it particularly hard in my local community to find other thrivers that are ‘so young’ and/or have young children.

I’m 33 I have a little boy and was diagnosed in June 2023 with TN MBC. I have been on immunotherapy and chemotherapy for three months now.

:sparkles::mushroom::cupcake:

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Sorry you haven’t had a reply yet hopefully me responding will mean someone notices your post .
You could also contact the someone like me service and see if they can match you up with another person of a similar age to chat to - I think it’s either on line or telephone contact ?

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This may be an option for you also , BCN organises get togethers for younger women with secondaries .

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Hi.
You’re not alone! Apologies, I haven’t been onto the forum in a while, otherwise I’d have replied sooner.

I am 35 and was originally diagnosed with TNBC when I was 32. I don’t have children and that is one of the things that I left too late in life I suppose. I’m still at work but have now reduced to 3 days per week, I got married a few months before my secondaries diagnosis in January last year, and I am determined to live life as much as possible for whatever time I have.

I hope things are going well on the treatment. Unfortunately, it is no longer effective for me and am just about to start Trogelvy (saying this I know a few others who have been on that treatment longer and I hope that’s the case for you). Wish me luck.

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Hi, I also think I’m switching to trodelvy too, will know more on the 27th… breast tumour has become so huge I look as though I’ve got a breast implant and has now had some serious issues.

Where in the UK are you? I’m from Essex- would love to chat more - am desperate to make friends who are on this journey.

Hope the trodelvy is going well :sparkles:

Hi. This is the first time posting on this forum and I’m struggling with the unknown but likelihood of switching from primary to stage 4.

I am 33. I have a 3 year old and a 7 month old. I was diagnosed with stage 3 in September. Lymphnode involvement. I have been through 12 paclataxel/carbopltin and 4 E.c with pembro thrown in every 3 weeks. Finished mod Feb.
MRI showed CPR in my breast and node. Woohoo although i haven’t been able to celebrate as something flashed on the amri, so they sent me for a bone scan which shows subtle metobalic activity on breast bone and now they need even more confirmation and detail so going for a PET.

Breast surgery in limbo. Feeling quite lost and frightened at this moment.

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:two_women_holding_hands::heart:breast cancer now and y’all of us have got you :heart:sorry you find yourself here. Please call tge number on here and speak to a nurse, there is also the someone like me option you can use and the younger women with breast cancer :heart: no one has a magic wand, but we do care, we do listen and breast cancer now is your invisible safety blanket :heart: ask away on here, take it a day at a time while your team are doing further tests, they have seen It all before. Keep reaching out on here as much or as little as you need to, :two_women_holding_hands::heart:we got you :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Y’all don’t know where that came from but we do have people from all over the world use the forum, so sending :heart:to y’al :two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Thanks Shi, I honesty don’t know what I would say on the phone line. I know i’ll feel more foucsed and less lost whcih should help after more testing but these waiting weeks between are absolute torture. Emotional rollercoaster of fear Xxx :heart:

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Hi @leftyb :slight_smile:

I’m 35 this year, I was diagnosed TNBC July 2023, 6 weeks after giving birth to our second boy. Mine had spread to 3 lymph nodes. Hoping your PET scan goes ok :crossed_fingers: I’m not sure what metabolic activity means, but it could still be nothing and hopefully it is?? Could it be steroids or chemo/immuno affecting anything? I think consultants often forget how scared we are going through this, so if you need to then call your BCN and just voice your concerns. I’ve had to do this a few times, they’ve called me as soon as my results have come through so I don’t sit around worrying.

I used the someone like me service as I finished chemo, it was a low point for me and I think I just needed to speak to someone who would be able to encourage me to keep going. It really helped me at the time. I also thought I wouldn’t know what to say, but you don’t have to say a lot if you don’t want to.

If you have a local maggies, they’re also so helpful. I went last week and just sat and cried for half an hour, but I had a cuppa and a biscuit and felt so much better after. Sometimes we just need a safe space to talk about what we’re going through.

Shine is another charity I’ve relied on, I’ve gone to a few meet ups, again it’s another safe space.

Thinking of you and hoping you get this all sorted asap :heartpulse:

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Thanks for your kind reply. I found out 6 weeks after my son was born too. I have a 3 year old daughter and 7 month old son. Hope you are feeling well xx

My closest maggies is about an hour or so on the train but i’ll definitely look into the someone like me thing.

They said it seems suspicious so im trying to prepare myself for that. They can’t PET scan me untill 27th so its horrible waiting.

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Hi @leftyb it’s been a few days for my reply, I had a routine MRI and mammogram of my right breast (I had a left side mastectomy) last week. Mammogram was clear but the MRI has shown something so I’m back in next week for more follow ups…

It’s not easy, mentally/emotionally to constantly go through this waiting game, as you are still waiting too. Hope you are keeping as well you can and managing to distract yourself, get a good sleep etc. hope the kids are ok too!

I’ve started reading The Comfort Book by Matt Haig, I actually found it at my maggies, and then ordered it online. It’s really helped my headspace while waiting for results and follow up appointments.

There might be support groups more local for you? They are sometimes hard to find, but just in case you find it easier talking to someone in person.

Thinking of you, and hoping for the best for your scan :crossed_fingers:

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Hi. Im sorry your waiting too, it is so so difficult. The comfort book, I might grab a copy.

I’ve got the ball rolling for some counselling.

Kids doing well, hope your boys are too?

Hoping for the best for you too x

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