Hi all
I was Dx with grade 3 invasive ductal cancer in 2007 had WLE then EC x4 and Taxotere x4 plus rads, then in 2009 I was diagnosed with a new primary this time I had Mastectomy and there were 3 tumours I had further chemo FEC x3 and Tax x3. Now I have just been Dx again with a local recurrance in the chest wall, had that removed yesterday and am waiting the results to see what further treatment I need if any. I have been told that this is not a new primary.
I am confused to what options maybe open to me, I do not see my consultant till next week, I hate this waiting, does anyone hve any advice or help they can offer me
Linda
Hi Linda,
I am so sorry to hear your news and just wanted to send you a cyber hug of support. You must be devastated to hear you have something else now and I can’t imagine how tough it must be for you to deal with. I am not speaking from personal experience but I do know there are a number of different groups of chemo and there are certainly ones you have not tried yet and you only need the right one once. I don’t know if they are talking about chemo but I feel they will still have quite a few tricks up their sleeve if you go that path again. Thinking of you and I am sure they will be ready with a good plan when you go for your appointment, which I hope will help you feel mor ein control.
Love
Lily x x
Hi Linda, sorry you have to go through it again. I had a recurrence (not a primary) in my pectoral muscle lymph nodes in 2008 4 years after mx in 2004. Had 6 x FEC first time and 6x tax 2nd time. (also surgery to remove the pec muscle). All I can say is, do make sure that you get the new tumour tested for Her2. I was Her2 neg with the primary and HER2 pos with the recurrence, which meant that I could have herceptin too. I was not aware that HER2 status can change, but apparently it can. I do hope all goes well for you. Mo x
So sorry to read your news and just wishing you well.
Sorry to hear your news but this happened to a good friend of mine and she is doing well and is now 9 years on doing well. Good luck.
Hi Linda
I am sorry to read about your new worry, please do call our helpline where you talk things over with one of our team on 0808 800 6000, the line is open weekdays 9-5 and Sat 9-2.
Take care
Lucy
Thanks for your replies, and its encouraging to hear what you said about your friend Lupin, I have to admit I have been thinking the worse since I found out, so that has helped thank you.
Its the waiting to find out what further treatment I may need, I do not react well to chemo as I keep getting infections, yet I want to have it otherwise I will think I have not thrown everything at it if that makes sense.
Thank you all again
Linda
x
Hi Linda
Its scary as I know only to well. I had an op to remove cancer from my chest wall in September, it was my 3rd recurrence, thats the only treatment I have had apart from taking Tamoxifen.
I have never had chemo despite my recurrences which have been I might add over a 25 year period, so not done so bad without it.
Been to hospital today actually as have small lump on op site but after a needle biopsy and a week of worry seems its nothing sinister. Have to go back in 2 months.
Hope they got clear margins when you had your op.
Take care.
Jan
Deleted as it repeated AGAIN.
Sorry
Thanks for you comments Jan, I am on extmethsane and not tamoxifen, I get the results next week so hope the margins are clear too. I am not a very patient person and waiting is the most difficult part, one I know what I have to deal with will be better.
Linda x
I don’t think there can be many people around with less patience than me I’m terrible but I can’t see an alternative to this waiting. I think its worse when it has recurred so often, its difficult not to think the worst. I know people say keep busy but I find nothing really helps.
I took Fermara for 12 months before my last recurrence but that obviously did’nt work thats why I’ve been changed to Tamoxifen, hope I have more luck with that.
I hope this does’nt decide to repeat itself, don’t know what happened to my last post, probable something stupid I did.
Jan
Linda, sent you a PM… I am not much help, I am jumping between tears and anger. You were such a support when I was diagnosed and now I cant even find words!
You are in my thoughts and prayers
Marguerite
Hi Marguerite
nice to b back in touch, even if not the best circumstances.
Lily, we were in touch last time on the essex girls page, but see its not used too much now. I took some time away from here during my last diagnosis but unfortunately fouund the need to back again. Do you still meet up occasionally?
Next Thursday seems so far away especially with so litlle to do with being off work.
My head is all over at the moment
Hiya,
yes we do meet up and as always you and everyone else is always welcome. In fact we would be really pleased to meet you. Quite a few of them contact by text as not everyone is on here now, I probably use the site most and will tell the others. They will be very saddened that you have this but very ready to give you support and help out if we can. One lady who comes if well enough is on chemo all the time and another just had her 3rd dodgy mamo but ok this time after hundreds of tests. So there may be someone to talk it through who really understands and maybe give you a little spark back in this scary time.
We should meet before too long and I will post here or essex girls,depending which I find first. Or pm me your mob number and I will send you a text if you wish, whichever you feel happier with.
Will be thinking of you next Thursday and please let me know how you get on. I think you may be offered more chemo so you could start working on building up your health and immune system, eating healthy foods, maybe do a little research on the net on this so you are going in to whatever they suggest as strong and healthy as possible. If you don’t like that idea do you have some books, photo albums of holidays, something you never got round to doing to distract yourself?
Big hugs to you
Lily x x
Hi lindysloo,just wanted to wish you all rhe best ,it must be hard for you going through this for the 3rd time. I’m coping for the 2nd time and i’m taking 1 day at a time .lol take care.yoyo .
Thanks yoyo, I shift between coping and not coping in a matter of hours if not mins, LOL, I am lucky I have good family and friends including friends on here
Linda
x
Removed as it repeated the message
Hi, I would just like to wish you good luck with everything. I’m also going through it for a 3rd time at the age of 43.I had a lumpectomy,chemo and radio in 2002,then a mastectomy 2004,and after having op just before Christmas I started chemo 20th January this yr (my birthday!)
Take care
Helenxx
Hi Helen
thanks for your message, I hope things go well for you too, this is such an awful disease, and there is no such thing as cured which is hardest thing to cope with.
xxx