I am approaching 6 years since my diagonosis and I would just like to ask others what they are feeling like now. I have been on Airmidex for the past 5 years and I would imagine that they will try to take it off me this time, has anyone gone onto another inhibitor?
I am getting lots of little aches and pains at the moment and I really don’t know if it is all just in my mind as my cousin was diagnosed with exactly the same multi focal as me last year and as we have been speaking 2-3 times per day I don’t know if it has just brought it all up in my mind again?
I did start the Celebrity diet about 7 weeks ago and at first did feel great, but of late I feel sickly and am getting niggles in my stomach
and rib area…so of course my mind is wandering…
Sorry to seem a little vauge, but thats just how I feel, not quite sure of what could happen next, there are days when I just say to myself, well if it has spread I will just get on with it as I did last time…but…I still can feel the old worries all coming back
Can anyone else please let me know how they are feeling after being on Arimidex for so long?
Hi Lancslass,
I was diagnosed in 2003 and 6 years later I was fine, but there is always a little niggle at the back of the mind. I took tamoxyfen for 5 years and them arimindex. Don’t forget (I’m sorry to say) that you get older every year, and aches and pains seems to get worse with age. Are you still checked annually ?, do you still see your onc or bcn ? I found my annual check-up always a difficult time, but once I had the results I managed to get on with my life, which has always been pretty busy. Your cousin’s diagnosis will certainly not help but she is lucky to beable to share things with you. I wish you and her all the best.
Take care of yourself.
Maria X
Thank you so much for your posting. I have 12 monthly check ups with both the oncologist and my surgeon, I have one coming up in November.
I had my ovaries removed as a precaution as my Aunt (my cousins mother died of ovarian cancer at the time of my diagnosis) I have just been to see the genetics team at St Marys and am waiting to see if I can be checked to see if my cousin and I carry one of the 2 x genes.
Like yourself I do try to get on with life and am very busy with two jobs, my sons and my 2 x dogs, and generally I do try to have a positive attitude, just sometimes the jitters creeps up on me!
Once again thank you for taking the time to post.
Best wishes.
x
Hi, I was diagnosed in 2004 and am now coming up for 7 years - had 5 on tamoxifen and now 3 on Femara.
Every now and again I get the jitters about some ache (I think we all do), but have developed a technique for dealing with them… I write everything down on a dated sheet of paper and put it away and try and forget about them. If I am still bothered a couple of weeks later I look at the list and if I feel things are getting worse, I might ring a bcn, but if its the same or less I assume these are just my normal aches.
Writing them down seems to calm me down as after I dont have to keep making mental notes of things, I can just ignore them all.
best wishes
Sarah
Thanks for that, I agree great idea! (PS I notice that you mention that you were on Tamoxifen for 5 then Femora, did they not try to take you off them after 5 years, and are you still taking anything?)
x