A waiting game

Hi All,
I happened across this forum whilst looking for information on BC,
This is my story so far-
I had been 40 less than a month when I happened across a lump in my left breast early in December that had seemimgly appeared over night whilst I was lying in bed.
Booked in to see the G.P the day after and was referred to the breast care clinic.
My first appointment was the 13th Dec 24.
When I was examined I was told by the Consultant it was most likely a cyst but sent me for a Mamogram and ultrasound just to be sure…First mamaogram was done and he wasnt happy with the images so I then had to have a further 2 and tomosynthesis scan,Had a biopsy taken and a metal marker put in during ultrasound,
I knew at this point something wasn’t right.
Nothing was really said following in clinic other than it was a mass of concern,and they had also found some calcifications on the mamogram that also needed to be checked and I would have a further appointment for this in the next week or so.
The day after my appointment I had a letter come through for the 22nd of Jan 25 for the follow up with the Cons.
My second appointment for biopsies was the 18th Dec-I had a further 8 steriotatic biopsies taken.
From the first appointment until my follow up next week it will be nearing on 6 weeks!
I have been trying to keep myself busy,although I have had to stop running at the moment as I am finding it too painful on my breast.
But as much as I try the worry/stress/allllllll the emotions have been kicking in at regular intervals!! I have 2 daughters at home(12,17) who are blissfully unaware at the moment that anything is wrong!!!-(Other than me being a bit more short tempered as I am not really sleeping well!)
But the waiting has been horrendeous!!
I work for the same hospital trust that my appointment will be at just on a different site,And I’m afraid to say that I last week I had simply had enough of waiting!So rightly or wrongly so(please no judgement) happened across my own diagnosis which confirmed what I had suspected-
G3(NST)ER/PR-negative,HER2-positive.
The calcification are fibrocystic changes,Are Benign.
So next week is when I will formally be told,find out the Stage and treatment plan and hopefully stop the whirlwind that is currently going around constantly in my head!!
I have my notebook ready to go full of questions so I don’t forget to ask anything whilst I am there,
Can anyone advise anything else that would be helpful for my appointment,
So sorry for the long post!
Thanks :blush:

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Hi, sorry about your diagnosis. It is useful to have a list of pre planned questions as you have done. I would wtite down all the answers the give as well. One thing I regret, was not taking someone with me. Everything was a blur.
I am sure you will fell better once you know the treatment plan.
Best wishes x

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Thank You for your replyand best wishes,
Am am really hoping that my brain settles itself down a bit after my appointment.
My Mom is flying in from Spain on Monday to come with Me,So I will have someone there.
I regret not taking someone with me to my first appointment,As I went alone and came out of it a bit shellshocked!xx

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:heart:sorry you find yourself here, please do ring the number on here if you can and speak to a nurse they could help advise you on any more questions you might want to ask at your appointment that you might not have considered asking :heart: bcn and everyone on the forum is here for you as much or as little as you need us :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Hi
Waiting is at its worst pre diagnosis but im sorry to say that you’re going to have lots of periods of waiting so I’d urge you to talk to someone

. The nurses on here
. Your Breast nurse or wider team
. Your employee assistance support at work
. A trusted family member or friend
. Writing a journal ( no one needs to read it) as putting stuff in paper can sometimes get the anxiousness and worry out of your head
. Talking to a counsellor or mental health support, a Maggie Centre or Macmillan can help you find one

You need to be able to manage the mind games so look at all options and find something that works for you

In terms of your next consultation please take someone with you and plan to go somewhere afterwards where you can absorb the information

Im truly sorry that you are in a flux but once you know your treatment plan and options it will give you a bit more control

Good luck

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Hi, even take 2 people if u can. One to listen and one to write everything down!! That’s what I did!! All the best xxx

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Sorry you are having such a hard time. I can promise you that the waiting is by far the hardest. Not sure if it is allowed, but if you take your phone and record the meeting then you can play it back. I took my partner but he missed things too. To be honest, none of it really mattered as the breast care nurses are amazing and you also have the nurses in this site too. I rang and messaged them a few times. They were amazing. I would recommend the service through Breast Cancer Now called “someone like me”. They put you in touch with someone similar to you who has been through it and out the other side. I found this service so reassuring. Sending hugs your way :two_hearts:xx

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