Hi
Just some positive thoughts for those who are as scared as I was.
I was petrified to start abemaciclib.
I’m on my 3rd month. I’ve started with 100mg twice a day. It was increased to 150mg twice a day after 4 weeks.
I have no side effects at all.
I am also on 2.5 mg letrozole a day. I’m taking sun pharma. Only side effect is morning stiffness, bit of pain and aches but as day goes on so do I.
Have a lovely day
K
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Hi,
That’s brilliant. I’ve managed 21 months at 150mgs but have just gone done to 100mgs. For me it’s been challenging at times but I’m nearly at the end and still recurrence free and that’s what it is all about. I wish all my fellow travellers on this journey well.
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Same here, no side effects. I had a bit of nausea the first couple of months, but all settled now.
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I have been pretty good too once I gave up caffeine. I am careful however and respect the reality of the side effects. Imodium is key as prevention.
Can I ask what happens when it ends as worried about this and the two year stop? There is no generic drug available right now so is the two year stop related to the high costs of the drug?
Hi,
The two year course of Abemaciclib is based on research. The Monarch E trial showed there was a 7% reduction in recurrence in the group that was in the intervention arm of the trial. Just as Letrozole is prescribed for a set duration and that is said to have carry over effect, the hypothesis is that this will also occur with Abemaciclib but as yet the long term data is unknown.
I’m am a few months now from completing the course of Abemaciclib and I plan to enjoy each and every cancer free day. I’ve decided worrying about recurrence will not enhance my life.
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