Advice Help Please

Advice Help Please

Advice Help Please Hi

I am in a dilema!
I was dx dec 05 small lump,grade 2 ,no lymp or vascular involvement.No chemo,had rads and am now on zoladex.
A few months ago I developed a backache,it came and went but over the last few weeks got worse.I went to see my gp who advised an x-ray ,but the pain has got worse,and is now affecting my hips knees and one shoulder,the x-ray came back clear but because the pain is in other areas and has got worse he has suggested a ct scan.
The hip pain is the worse and sitting is really painfull.
I have read that in some people bone pain is a side affect of zoladex ,I am bothered that I am being paranoid and if I should have the ct scan I dont want to go down the road of thinking every little twinge is something more serious.
I suppose what I am really saying is that I dont like the fact if I ignore it and dont have the scan and albeit a small chance of spread I would of acted stupidly,but am I over reacting and should I just wait a bit?
I just really want my life back,I dont want to keep thinking is this it,I just cannot seem to stop dwelling on what might happen.
I am going to see my gp tommorrow for a chat so maybe he will be able to help
Thanks
Sarah

Saying Hello Hi Sarah

I just wanted to say “hello” and to let you know I’m thinking about you. It’s a pity we cannot meet up and have a chat about things as I’m sure you would benefit from some company. I’ve had such an awful time with my GP here (mustn’t mention the place but I’m sure you are aware where it is) and my consultant is trying to get me into Callander. I’m not sure how he is getting on but I’m sure you could offer me helpful advice.

My advice on your pain problem would be to go for the ct scan. Never think you are being paranoid. I know, from what you say, you are Stage 1 and spread would be unlikely but it will make you feel so much better if you had it confirmed that it was nothing to worry about.

I hope all goes well with your GP tomorrow.

Regards.

Jeannie

sarah you MUST have test because it sounds as if you might be getting bone mets- if you are you need bisphosphonates and possible RT to spine pronto.
If no bone mets [hurrah] may be that the hormonal you are on needs changing.
Zoladex stops Oestrogen being made by fat or ovaries [can’t remember which]. Either way you will feel the lack with achey joints- O keeps body young, lack of O produces unwelcome feelings of old age.
Evening Primrose capsules are recommended for this and suit some but not all br cas.
Get checked, find out if you need to worry or not- yes it is frightening but shivering in a corner never helped anyone.
Hope it all turns out to be innocent and adjustable, dlly

Bone pain Hi Sarah,
don’t know if this is any help, but I got severe bone pain in my hip about 2 yrs ago (dx with stage 2,grade 2 invasive ductal cancer Jan 2003) and went to see my GP. He sent me for an ordinary x-ray at a local cottage type hospital, not the hospital I go to for bc and Crohn’s.The x-ray was clear, so he finally arranged for physio at a local health centre. It did get a bit better after 3 months’ weekly sessions.
When I had my next annual bc check-up with the bc surgeon some months later (Onc discharged me after finishing chemo and rads) I mentioned my hip pain and he very quickly arranged a bone scan. This came back with a dx of osteo arthritis in both hips, feet and hands. Nobody mentioned bc mets to the bones. No treatment was offered.

However, the pain is back even worse now, and it is difficult to sit for long without the pain spreading down my leg. Sleeping is a nightmare as I wake up 6 or 7 times a night with the pain - turning over helps for a while. My hands are pretty bad too, with the joints on my fingers grossly deformed and painful.

Meanwhile, my gastro arranged a DEXA bone density scan (different to a bone scan) which I had 2 weeks ago. He is concerned that after being on steroids for some 30 years, and now on Arimidex, my bones are crumbling. Haven’t had the results yet - tech said it would take at least 2 weeks. I am seeing bc surgeon next week for annual check and will mention it to him.

Guess what I am trying to say, and give you some comfort, is that bone pain is not always due to bc mets. Please have the CT scan so that a proper diagnosis can be made, and hopefully, some treatment.
Good luck.Liz.

try not to worry Althought not been on the same meds as you l did experence severe back/leg pain recently one phone call to my breast care nurse and bone scans etc arranged swiftly and then mri which shows slipped disc.Really glad it was all quickly checked out because l was scared stiff .What lm saying really is contact your breast nurse/surgeon and they can sort things and either reassure you or if there was a problem could get things moving quickly.thinking of you
sharon x

bonedensetiy scan I would definetely go for the bone scan. But also for a bonedensity scan since zoladex is a good reason for osteoporosis.
Then the treatment would be those phoso thingies (Dilly mentions them, I think).

You need to have your mind put at rest.
I was told osteoporosis can be very painfull.

I’ll be thinking of you

Thank You Hi Ladies

Thanks for all the advice ,I went to see my gp and he suggested that it could be the Zoladex bone pain is a side effect.We had a long chat and decided that he would book a bone scan .So I now await an appointment,also I have another lump in the same breast I have had it for a while and been back to see the breast surgeon who said he could not find anything.I did have a scan and only found moderate ductual something or other I think my breast is still suffereing the effects of rads [ouch]
However he found the lump straight away ,it is quite large so I am now going back to the breast clinic.
I have had enough of all this its like a roller coaster,I have never liked them and I cant seem to get off.

Jeannie
thanks for that I was really busy before christmas,I would love to meet up for a coffee and chat my husbands away at the moment and I exhausted looking after the kids [its real wake up to how much he does for me now,I seem to be so tired] so once he is back I will post to you under the heading " message for Jeannie"

Thanks to everyone
Sarah x