I am not quite sure where to start, but I have been seeking advice and help. Are my problems happening to others.
In 2020 I was diagnosed, I had a lumpectomy, they didnt get it all and had to go in again. They say they got. Thankfully. I had Chemo and Radiotherapy. The second lots of chemo caused such bad reactions. It was docitaxel. I was changed to pixitaxel weekly rather than 3 weekly. Every bone from my feet to my head were agony, my urine burned and blistered skin and the rest that goes with chemotherapy.
3 weeks after my last chemo I couldn’t breath it was assumed it was PE. I was taken to hospital. At the worst time in our area for Covid. I was terrified.
After xrays, ct scans and meetings with consultants I’ve been left with chemo induced pulminory fibroisis. I was on hight dose predisilone for 18m. This was damaging my body and I was weaned off of it and am now on immunosupressants to dampen down my lungs. My bones were sore I was warned by oncology they would be, plus neuropathy in feet and hands. As I came off the steroids the pain in joints increased. The steroids had been camouflaging my pain. This pain just doesnt go away. Burning painful joints all over and now arthritis
In lumber region. Hip, groin and knee. I. Now using a stick.
I’ve changed letrozole a few times and at the moment I’m.on Cipla brand.
The isoban has damaged my gum I am awaiting treatment for that. And I’ve been getting UTIs. My GP and urologist said to use ovestin plus a daily antibiotic. My oncologist and breast nurse have said I cant use it for more than 4 weeks due to the fact it has estrogen. My cancer was estrogen receptive.
I’m at my wits end. I never got back to work. And I want to get back to being able to do more, enjoy my family and grandchildren.
I’m restricted due to my lungs and immunosupressants. But I do try, I’ve done physio. Tried walking.
Basically, will anything get better.
Sorry it’s been a long story, but it’s been building up in me for so long I really need help.
Thank you. And best wishes and good health to all of you always. GranC