Hi im sorry i dont post often but do read the posts. I have various bone mets liver and lung mets. Ive been on cap for 2 yrs (letrozole for 2 yrs prior) but bone mets have spread and am waiting for ct to see how liver is etc. Im scared the cap isnt working anymore and am terrified of what happens next. Is anyone else in this situation or has been at this point in their treatment? Also the new spread to hip is so painful even with mst and a very recent rt blast so any advice on pain relief would be welcome. Thank you Carol
Hello carol.
I’m a bit like you …had extensive bone mets dx 2015 and was on letrozole for over 2 years but it’s stopped working as now have liver and lungs mets . I have just started exmestance and everomus this week but oncologist isn’t that confident it will control things so cape or vinerobine pills could be my next treatment .
My bone mets have got more painful recently too although my scan says static. .good days and bad one relying. I have morphine to take but try not to use it daily …I just rotate paracetamol , ibuprofen, codeine and naproxen so I don’t get too resistant to them by using them regularly.
Hugs xxx
Hi Carol
I’ve just found out cape isn’t working for me. I’ve been on it for 9 months. I have extensive liver mets and minor lung and bone mets. I was on taxel initially.
I have been offered eribulin subject to my bloods being ok. It’s fairly new and expensive so I understand it’s only offered if 2 previous chemos have failed. From what I’ve read here it seems well tolerated and some ladies havery been on it for a long time.
All the best with the scan
Hugs Phoebe x
Hi Carol
As Phoebe has said you could be offered Eruibulin as another chemo if Cape has stopped being effective. Or, if you are hormone positive and have not gone through all the hormone treatments, you may be offered one of those. There are other chemos also available but are a bit harder on the SEs so it will depend on what you have had before, what receptors your BC has and what your oncologist thinks is the right treatment for you. There;'s no set pattern of treatments other than (as Phoebe has said) you sometimes need to have had at least two types of chemo to be offered another one, such as Eribulin.
Good luck and I hope the CT doesn’t show up any unexpected nasties.
Nicky x
Thanks for replies. Im seeing gp tomorrow re pain relief and will mention naproxen. I had chemo in 2004 on original dx so not sure if that would count towards 2 lots of chemos. I just spend my days…and nights…worrying lately! X
Hello carol
Naproxen is a very good pain killer but make sure doctor prescribes a stomach protecting pill ( cant remember the name ) as it can cause tummy problems. …I take them occasionally when my hip pain is worst …it’s nice to have the stronger stuff in the cupboard for bad days …I think my go to is codeine mostly at night though. Doesn’t seem to cause much side effect but of course everyone reacts differently.
Hope u feel pain free more. .I had real pain over the xmas time but it’s less now again. A lot of docs will say extra pain is good as rads and bone strengtheners healing the mets …but I’m not sure
About that to be honest .
Morning Carol
Think the treatment Carolyn might be thinking of is lansoprozole.
Try not to worry there are lots of treatments available to us.
Linda