Again and again

Connect to people like me Family history, genes and cancer
1

Hi all. My background is:

Oestrogen positive breast cancer in October 2010 aged 38. I had WLE, chemo, radio, axillary clearance and herceptin. 5 years of tamoxifen. I was an active member on this forum, I was known as Truddles then later, Trudy2010.

Then in January 2022, I had DCIS in the other breast, aged 49, picked up on my FINAL annual mammogram. I had WLE and radio.

Early 2023 my sister in law had bilateral mastectomy for breast cancer, aged 50. Obviously not blood related to me but her mother died from breast cancer in 2020.

October 2023 my sister had breast cancer aged 49. She had nipple sparing mastectomy and implant reconstruction. No other treatment just tamoxifen.

Roll on to September 2025, after several tests for genetics, I have been identified as having ATM gene, and I am shortly to have an appointment to discuss this with a genetics hospital in Birmingham, west Midlands.

To put ‘ icing on the cake’ , in November 2025 my sister had a wedge biopsy of a new, unhealing wound on the nipple of her mastectomy side. 2 days ago we had the results it’s positive for Paget’s disease with underlying DCIS. Plans need to be finalised but she’s looking at surgery in January 2026.

I am in a whirlwind, there seems to be no end to this crazy journey.

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Hi @trudy2010,

I’m so sorry that you haven’t had any responses to your post yet, I hope someone will share their experience with you soon.

You and your family have been through so much, I’m so sorry to hear this. It must feel really overwhelming waiting on your own appointments and results, as well as coming to terms with your sister’s diagnosis and her upcoming surgery.

If you ever need support, want to ask any questions, or just need someone to talk things through with, you can reach our nurses on 0808 800 6000, and the forum is here for you any time you need it, day or night.

You might also find it helpful to look into our Someone Like Me | Breast Cancer Now service, where we’ll match you with a trained volunteer who’s had a similar experience to you. They’ll be a phone call or email away to answer your questions, offer support or simply listen.

We are sending you, your sister, and your sister-in-law all all our very best,

Alice :heart: