Is it normal not to want to leave the house? I’m so worried of catching something that I can’t face leaving the house? I know it’s a bit silly and I am.on gcsf but the thought of winter and ill people is really stressing me out!
Hi
Yes, I felt like that too. Avoided going out and mixing with people as much as possible. Felt that was a better alternative to getting an infection and ending up in hospital. Also don’t like going out with my scarf as think everyone is looking at me.
Sending a hug x
Thanks Sue. I’ve gone as far as getting masks! If I survive this week then I might venture out!
Thanks blueash. I have a daughter and a cat but neither need cleaning up after. Both are being regularly sprayed with dettol antibacterial stuff and the kid is under strict instructions to wash her hands every half hour. Hoping this will be enough but like you I just don’t fancy going our. Mask or not!
Hi snail888
It’s a natural reaction - especially now we are into the season of colds, coughs and a variety of other nasties. My husband was knocked flat with a bug last week which sent me into overdrive - he works in a school as a site supervisor so has regular daily contact with 180 children and staff.
All you can do is mitigate the circumstances as much as possible - so he now showers with full change of clothes as soon as he comes in from work. As he does split shifts that means rather a lot of washing but we can live with that.
Also plenty of hand washing and lots of hand gel is used and as much as you may not fancy going out or opening windows because of the cold weather. It is actually rather good for zapping bugs.
But if I’m expecting any visitors no matter what stage of the treatment course I’m at - I check that they are bug/cold free - not because I’m paranoid but they need to understand that it could have serious consequences for me.
Plenty of other users of these boards have been hospitalised because their bodies simply don’t have the resources to fight off infection so your stressing out is perfectly natural!!
Just wanted to add a different view to give you some hope. I finished 18 weeks of EC-P three weeks ago and led a pretty full life throughout. When I felt ok I went to the cinema, theatre, shopping, restaurants, cycling and even caught the bus every now and then. I used antiseptic hand wipes a bit but otherwise did nothing special. I didn’t ask my tenn children or hubby to do anything different. Whilst I could tell my defences were low (skin rashes and a drippy nose) I never succumbed thank goodness and I was well enough to have every treatment as planned. Hope all goes well for you.
Thank you once wild. Ten children! Wow. I’ve manged 2 supermarket outings wearing a snood over my face! Hubby days to just wear the face mask. Interestingly I’ve developed a rash but I put it down to the filgrastim injections. Hopefully second round ill be a bit braver x
Oops! That’s so funny - meant to write ‘teen’ children, not ‘tenn’!! Just have two teenagers - thank goodness!
Bit of an anti climax. I was thinking of you and your 10 children today
You’re definitely not alone Snail888. I’m stuck indoors with my OH most of the time too, particularly in the ‘middle’ week of each cycle. I think it is a combination of worrying about picking up germs and increasing fatigue, feeling low and lack of confidence. It doesn’t help that my OH is (and always has been) paranoid about germs and doesn’t like me going anywhere I might pick them up. I was a lot more positive and active during the FEC cycles than I have been since I moved onto T (Docetaxel) because I’m finding the SEs are more unpredictable and difficult to cope with. I haven’t even been out for a walk since I started on that. The only places I’ve been lately are to the doctor’s, the hospital (the very places you are most likely to pick up germs lol, but sadly unavoidable!) and food shops. I’m not looking forward to Christmas, because my last T treatment is supposed to be on 13 December and I have nothing nice planned at all, no Christmas dinners with work colleagues, friends or family, because I don’t know where I would be well be to go and I also have or am expecting medical appointments which could clash. Bah, humbug! ?