Mike please don’t feel you have to stop posting. Your posts aren’t depressing just so very sad…this bl**dy disease is awful. Lots of us here have made and met good friends and have had to deal with loss…and many of us, me included, are now living with this as a terminal condition so we have had to deal with harsh truths and find our own way of living with cancer. So please be reassured you are not depressing us.
Does your wife want to stay at home?..it sounds as though you are both dealing with this without much medical help. You’re right your wife cannot be left like this…if nothing else she needs to be made more comfortable. I don’t know whether to add this but I hope it’s ok to say my Mum died from her cancer due to the same problems as your wife’s. It happend very quickly and it was only 2 days before this she was coming home and getting her strength back to start a chemo. I stayed with her and we were given ice cubes for her as her mouth was so dry and we had fans dotted around the bed as she felt so hot. (I do hope it’s ok to say this to you)…but these little things helped at the time and made her more comfortable. The nurses were just outside the room which was reassuring but we were left alone unless we called them. I hope your wife can get through these next few days and if that’s not possible I hope she will be made comfortable and pain free.
You too need some rest…there’s a lot of help available I hope you are able to access it. Take Care both of you.
Morning Mike, It is a terrible time for you both and I am so sorry to hear that your wife has had a fall on top of everything else. I hope that the hospice nurses can help with the symptom control and at least let her have some respite from vomiting. Please don’t think because you cannot post good news that you should stop using the Forum. It is a necessary release for all of us at times.
Thinking about you both.
X
HI all
OK update.
Been speaking to the hospice nurse and doc today.
The reason why they are not jumping to give her IV fluids is due to her kidneys being very low.
Apparently if they shove lots of fluid in it could cause them to fail from the shock.
That is why they want to use the home natural method.
I accept that now.
My wife has kept down a fore t sip drink, which has all the nutrition of a medium sized meal.
Very positive.
She has just had some Corn Flakes and fresh strawberries and seems OK but has gone for a lay down.
Her skin does now have a yellow hint to it and there is a smell from it (not too bad) I am to keep a check on the whites of her eyes and report any increase in yellow there.
I have taken some close up photos so I can be sure.
She is weak, very tired but fighting of which I am very proud.
Now to get myself something to eat, I have two way radios so she can call me instantly.
Cheers all
Mike
Mike you are doing a great job.Its good they have explained the reasons behind her treatment to you.One step at a time,the cornflakes and fortisip drink are a good step in the right direction.
My thoughts are with you both today,
Love
Dot
xx
Please do not stop posting x
Hi Mike
just to reiterate what the others are saying - we are checking in because we care about you both. This is something we can all do to support each other. I too am thinking about you both
take good care of yourself as well as your wife
sending love to you both
monica
Hi again Mike…I agree with Dot I think that’s very good news your wife is eating. It sounds as though the hospice nurse and doctor have been able to answer your questions. Take care both of you.
Saturday evening update. Slightly more positive this one! Norlei has not been sick since 05:00 today! she has kept down two of the special med drinks and a bowl of Corn Flakes and strawberries. She has also sipped her way through a number of drinks during the day. She has been very tired and listless all day and remains so now, sleeping most of the time. The yellow eyes and skin is no worse maybe better.
I discovered she had taken both the new anti sick pill (which has a strong sedative effect) and her pills to help her sleep last night!
With the approval of the hospice I have left them off tonight so maybe she will not be unsteady on her feet? Don’t know.
Thanks again for all your support, you people really are the top!
Mike
Hi Mike hope things keep improving for you both and we hear good news from you the next time you post.She is very lucky to have such a caring person with her.Take care both of you as you will need to look after yourself in order to support Norlei.Joycexx
Sunday update. I think I worked out why she collapsed Saturday! one of her other meds clashed with the new one for sickness, with agreement of hospice I left it out and she was better, still very sleepy but much more steady. Retching at 01:00 nothing came up, that was it so kept everything of Sat down. Today has had CornFlakes and Strawberries again, I made a smoothie for her including bananas which have vital Vits
Hi Mike, So pleased you are able to post on this site. Just wanted to tell you that we are all rooting for you and your wife. Keep up with the good work. LOL Scottishlass
HiMike, just like to repeat previous post. I do hope your wife has a comfortable day and that you can now get a little rest too.
Irene.
(does everyone have to sign in every time they post here?)
OK, bit downhill today 
Was doing OK, had breakfast and took some of the smoothie I made.
The we had a short family visit.
She really enjoyed it but I think it tired her out.
She had a glass on milk and settled down to sleep but in about an hour brought it all back up!!!
Back to square one again trying to get fluids in to her.
Odd smell from her skin and it has a kind of cheese taste, guess this is the impurities the kidneys can’t deal with?
She is going to the loo for wees, she says they are not the same quantity as normal but are worth it all the same.
Does this mean her systems are at least trying to work?
Why is she still feeling sick? what is the cause behind it, can dehydration alone cause it?
Sorry so many questions.
Had a family member going to come and stay when they get back from hols, but just discovered they don’t like the put up bed downstairs.
Trouble is, this house was designed by a midget! there is one medium bedroom (our room) a box, that you would struggle to get a bed in (our office) and one very small room which has two wardrobes, a chest of draws, 10 large storage boxes housing a valuable collection of mine and our very precocious collection of things that we both get a lot of pleasure from even now. (never really understood by others)
So now I have to face tearing apart our world if I want support?
Did wonder about screening off the rear part of downstairs, putting are valuable dining table outside and getting a single bed there?
Me? I have to start worrying about work soon, they are being good but I somehow have to keep a roof over our heads, how can I do that and look after Norlei 24/7 ?
I am a train driver, so work loads of shifts, long hours, quite apart from the fact they won’t probably let me drive now due to my state of mind!!!
God alive, is caner not enough
Sorry
Should not be unloading here…
Mike
Dear Mike,
I am sure the other forum users will soon respond to your latest post.
I just wanted to remind you about our Helpline which is a free and confidential service staffed by experienced nurses and specially trained workers with a personal or professional experience of breast cancer. They will be able to offer information and support. It is open 9.00am-5.00pm on weekdays and 9.00am- 2.00pm on Saturdays. The number is
0808 800 6000
Kindest regards
Janet
BCC Facilitator
Mike ,feel free to unload whenever you need.Its better to unload here than to your loved ones who are suffering too.
Not sure what you can do re accomodation but if I had offered to stay and help out,I wouldn’t turn my nose up at a put me up bed in a small house.Could a friend/relative/neighbour store the dining table or your collections in a spare room or garage?
I hope you get to the bottom of the sickness as yesterday seemed a good day,lets hope tomorrow is another one.
Thinking of you
Dot
x
Hi Mike, Don’t know what to say to you after your last post. My heart goes out to you both. You should not be having to worry about work on top of everything else and you do need family and friend’s help at this time so am really disappointed in them not wanting a put-up bed.
You haven’t managed to come on-line this morning but I do hope that Norlei had a comfortable night and think maybe get in touch with hospice nurses again and let them know the problems you are experiencing getting help to care for her. Reading between the lines you now sound exhausted.
Will be thinking about you both and please if putting posts on here help you, never apologise.
X Irene
Norlei goes into the hospice tomorrow. Unless the hospice nurse is very wrong. we could be looking at as little as two weeks! I am sorry but I don’t think I can post mnay mo0re updates. Thank yoiu all for trying and please continue just in caser… there is a slightest chance of a miricle. Mike 11:11
Mike,my heart goes out to you,please be assured we are all thinking of you both.
Love to you both
Dot
xxx
Mike,
we are here as and when you need us. We all know this is something we have to face and we owe it to others to tell the truth about this disease.
Thinking of you both at this very sad time.
Love Debsxxx
Mike,
So very sorry, you have done everything you could for Norlei.
Both of you will be in my thoughts and prayers.
X
thinking of you both mike.
xxxxxxxxxxx