I’m struggling to figure out how to post this. I apologize.
So I’ve been dealing with peau d’orange and pain in my left breast/armpit. It’s almost purple. My nipple is like deformed. My lymph node was enlarged in my armpit. So my doctor sent me in for an urgent ultrasound and then that turned into going back and forth between the ultrasound and mammogram rooms because there were also lumps detected on the right side as well. Well after all of that—my GP had to call them repeatedly to get my test results. Then they’re like we need to work on getting you a biopsy bc they shouldn’t have left you waiting indefinitely over a month. Well the phone lady at the Breast place where I had my scans felt bad and asked me to come in for a punch biopsy—which I accepted. I didn’t really feel great about going to a place that already didn’t seem to care. But whatever. I don’t have the best insurance so I’m not swimming in options. I go in and this breast surgeon that’s supposed to be doing the biopsy hasn’t even listened to a word I said and is talking SO fast and rushing around I’m convinced she was on several amphetamines (no joke—mom was with me and was like whoa what’s going on here this lady is making me very nervous).
From the 1st second the breast surgeon came in before even seeing my actual breasts (she admitted she’s not looked at my imaging which concerned me bc that’s the point of the biopsy) but she thinks I just need the dermatologist (again). I’m like I’ve been to—I’ve also been on just about every skin medication, powder, wash, creams even anti fungals and antibiotics it’s not working. She’s like well I don’t think it’s cancer. Totally different take from my doctor or the scan ppl. She has me lie down and then asks about the orange peel area I’m concerned about. I’m like my grandma had IBC. She died from it. They burned her to the bone it was all experimental and pretty traumatic…the scans showed I have dense breasts and problem areas in both breasts—the left skin and nipple changes and 2 growths on the right. Yes it’s painful. Shes like oh I didn’t even look at them. Uhhh what. She’s nice and everything but is rushing through everything to get it over with the anesthesia didn’t even have time to work at all before she got one very small sample on each breast and not even at the worst areas. Which blew my mind. The right she was focused on an ulcerated area completely at the bottom I specifically told her was not an issue and was from me scrubbing/disinfecting
the growths were up here. She ignored it. Then it was over after she struggled to get a left sample that was ‘good enough’ (she obstructed myself and my mother from seeing that). Then she says we are setting you up for a virtual appt. It was kinda wild she said my lymph node was fine to her when my doctor and 2 different scans showed it was definitely enlarged in my arm pit and very sore. So idk. I’ve also been getting random automated calls I need to set up an appt with the specialist (it’s a mystery which one tho bc oncology showed up along with about 5 others). I call back and they are like you already have an appt. I even got more calls on the day OF my appt—the breast surgeon said to ignore them she doesn’t know why I’m getting those. What ![]()
I just waited for the entirety of my appt which ended before FINALLY getting a call from her. She could not wait to get off the phone and I kept trying to ask questions like what does this scientific skin abnormality mean tho like how can you know it’s not cancer if it’s abnormal (it wasn’t mastitis, psoriasis or pitoriosis or dermatitis or anything bc I would have understood that). She cut me off when I tried to ask what those terms means and she’s like I have no idea what that means—I don’t think it’s cancer.
Thinking shouldn’t be in question. I have 4 special needs children and I’m already epileptic—my daughter just got diagnosed with epilepsy. It’s hard for me to get places bc I can’t drive and this lady is like well you’re in the hands of dermatology now. Again. I ask for a referral and she says she will put it into the system I got a referral but I myself can just go to the website and figure it out (so kind of a ‘go f
yourself, but I’m good on my end thanks). I just have a feeling I’m gonna be right back here with all this time wasted and I don’t think they wanted me to get my diagnosis at their office bc of that month long lapse with my biopsy that was rushed thru and not even taken at the problem areas. Plus they didn’t bank my GP would be hounding them for my scans they failed to send 3 times. I feel worse than I did during my scans and it’s just been a nightmare.
I at least would like to know for sure what it is or isn’t—I feel like discrepancy between scans, visible worsening of both breasts (my right breast is also now grown in size along with the left) is still an issue. I have never felt so dismissed in all my life and I cried. Not out of happiness or relief which I’d hoped. But because something is still very very wrong and I am still sitting with no answers and nothing is working. I just don’t know what to do and keep getting ran around which is already really hard ![]()
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Okay I just got yet another text from the same agency saying I’m due for urgent scheduling with specialists. Like what is going on with this place