Hi just thought i would bump this up…it was a great help to me re tamoxifen treatment…
Hi,
Just bumping this up again…
This has been no coincidence for me…a few months ago i was given Wockhardt tablets inside a box containing an APS sticker…in good faith i thought i was taking APS…took these for 11 days…
it wasn’t until the side effects increased…started with increased pain, hobbling out of bed in the morning, increased hot flushes and agitation and screaming at my poor hubby and it was when i was sitting there bawling my eyes out…all out of character for me… that i doubled checked and low and behold…E464 in the Wockhardt tablets…
Boots the chemist instantly replaced them and apologised…think they could see the thunder in my face at that point…APS reinstalled and all back to normal in a few days…still get side effects but nothing like the other side efects from the non APS brands…
Deb x
I have been using Tamoxifen for over a year, my pharmacist always alternate between APS and a Generic brand, however I noticed that the Generic brand does not really agrees with me. I made a request from my pharmacist to have the APS one and was told that the Generic one was all they had and that they have no control over what is supplied to them. I went to a couple of pharmacies and was told the same thing.
If someone knows of a pharmacy where I can always get APS please let me know.
Thanks.
My pharmacist always gets me APS, and has done so for the last three years or so after I sussed that the side effects were more manageable on APS. I know that sometimes he has to ring around his suppliers for me, so I guess it depends on how accomodating your pharmacist is. I live in a village and always use my local pharmacist, and always had before my diagnosis. He makes a point of knowing his customers and trying to be as helpful as possible.
hey
this has made very interesting reading.
i have been on tamo for 3 weeks now. didnt link my struggling to get up off the chair to the tabs. few hot flushes here and there.
sleeping is realy poor . keep waking.
i really didnt want to start taking this for 5 years as im scared stiff of having se’s. i hate hot flushes and its all a sign of us not being incontrol of how BC has impacted on our lives.
anyway, im on Wockhardt brand of Tamoxifen, so i have noted all yoru comments and will have a word with my doc when i get the next lot.
thanx
xx
Ohhh ekkk! Well I’m on wockhart and very achy…but then again I’m on herceptin and that makes you ache so cannot win! bit warm at night but no hot flushes to speak of…will watch this with interest!
Hi All, I’m on Wockhardt tamoxifen too. Four weeks and no SEs so far. I wonder if some of the SEs people have are from chemo/herceptin etc or whether I am just lucky? I didn’t have chemo just rads/tamoxifen, maybe it has lesser SEs this way?
I must say I didn’t really pay much attention to the brand of Tamoxifen I have had previously but this last 2 months I have had the Generics UK brand and have noticed a considerable decrease in number and intensity of Hot flushes. to what I had on other brands, I think it was APS before. It seems too much of a coincidence to be any other reason and I have been taking Tamoxifen for almost a year. What a relief it has been. Hopefully everyone will find a brand that suits them as it makes life so much more bearable.
After reading this thread a number of months ago I changed my brand from Wockhart to Generics as I was getting terrible joint pain and as there was a slight improvement stuck with Generics. Someone suggested asking GP to specifically prescribe the brand and although I did this Boots tried giving me any brand in stock. Explained my situation and the pharmacist did make the effort to get it for me. Just collected today’s prescription and was telling my OH how since I told her that Tesco did stock Generics so perhaps I would change to them if she was having difficulty getting it I have always been able to get it - coincidence?
Opalite - Tesco also stocked APS in a lower dose tablet so may be worth checking them out if one near you. Marli
Thanks Marli, really appreciate that info.
Hello, My local chemist always gets me APS Tamoxifen as i was so unwell on the wockhardt brand.
Just been to get my next prescription and have been told they are unable to get APS any more as they have been taken over by Teva?
Anyone know anything about this companys Tamoxifen? Thank you
I was told that the pharmacies order Tamoxifen but don’t always know which brand they will get. If you give them enough notice you can ask for a particular brand and my pharmacy said they would be happy to specifically ask for that one for me x
I have been told today, when I picked up my prescription which included Wockhart when I requested Generics UK, that the pharmacy get whatever is cheapest that week! They did suggest that I go in on Monday and have a chat to the Pharmacist so we’ll see what they tell me.
I had been happily taking whatever brand of Tamoxifen I was given since September 2010 until a month or so ago when I realised that something had changed over the previous few weeks. I had begun to feel quite unwell and was being regularly woken up at night with vicious cramps in my lower legs, ankles and feet. I finally realised that the period of feeling rubbish coincided with a change in Tamoxifen brand - I had been given APS until the last couple of months, when I was given Wockhardt. Of course it could have been just coincidence, so to test it out I asked my GP to give me a new prescription and make sure it was APS, which she did. Within a day or two I was feeling much better and have had no further problems with cramp at night. I now make sure to ask for APS each time I get a repeat prescription, and as long as I give them a bit of notice this is not a problem.
Sarah x
Thank you all for your advice,my local chemist has managed to get the APS Tamoxifen again.
I would stop taking it if i had to take the wockhardt brand again it just made me flush all day long,cramp,every muscle in my body ached,i just was so unwell.
Like you Cheshirecheese within a day or two back on Aps brand the side effects had gone.
Since being on Tamoxifen for nearly three years I have suffered with minor execma but was prescribed before Christmas the Wockhardt brand which resulted in the execma flaring up something terrible and hot flushes being unbearable. I went to my GP and asked to be put back on the Nolvadex which I was on for a month. Went back to GP to get repeat prescription but have been told by Boots that Nolvadex D is no longer being manufactured and have been prescribed and APS brand. Must admit that the hot flushes are not as bad (touch wood), night sweats still a problem and execma still bad but not as much flairing up. Hopefully things will get better.
My chemist told me last week when I asked for APS that when she checked her computer APS is not shown, therefore, she can’t order it for me. She said she thought APS had been discontinued and that Teva were now manufacturing it under the name of Teva. Anyone else taking the Teva brand? I’m due to start taking it on Thursday.
Pauline
Infuriates me all this. I have just finished 5 yrs of tamoxifen and had this constant battle with various pharmacies over brands. I found the APS, marvellous but would go and get my new prescription and suddenly find ‘tesco’ no longer get it. Had numerous discussions with pharmacists who told me I was being silly tamoxifen is tamoxifen. Changed to asda and hey ho after a few months got home after picking up perscrip and not my APS, they advised they couldn’t get it any longer.
I hate the side affects of some of these drugs.
I have just started femara and blimey i feel i have hot flushes more than not, so don’t moan about tamoxifen its easier than other drugs believe me.
Rx
Hi millsie
I was interested in your comment about eczema. I hadn’t even thought of that in connection with the Tamoxifen - that too has calmed down a lot since I switched to APS, but then on the other hand that might be because I’ve been much more diligent about applying heavy duty moisturisers.
Sarah x
I’d never had eczema in my life until I started tamoxifen. I’m not actually convinced it is true eczema. Both my palms are so dry they look weird and every couple of weeks I get itchy lumps on a couple of fingers. I’m sure it’s a reaction to the tamoxifen. My GP has given a couple of creams that keep it bay, just. Elinda x